Login

CUAC-2020-WebHeader.jpg

Cooking Up A Cure is October 21!

We can't gather in person this year, but we've cooked up a fun online event for you! Info & tickets: CookingUpACureChicago.com.

 

GC Stop Scleroderma 2020 Homepage

There's Still Time to Support 2020 Fundraising Walks!

Couldn't join us for this year's virtual walks? Don't worry - there's still time to donate! More info on our events page.

Web banner support groups

Have You Joined a Support Group Yet?

You're not alone in struggling with scleroderma. Find a support group near you!

 

Online Educational Resources Available

Visit our YouTube, WordPress, and SlideShare websites to access our online resources!

 

 

Follow us online!

Facebook Icon Small    Wordpress Icon YouTube Icon

 

E-Newsletter Signup

Please leave this field empty

COVID-19, Reviewed July 1, 2020: Read the most recent update from the Foundation's Medical & Scientific Advisory Board Leadership Committee regarding COVID-19 information and recommendations for individuals with scleroderma, including links to videos and resources. Read More

 

What's New at the Scleroderma Foundation Greater Chicago Chapter

Cooking Up a Cure Is Now Online!
We can't gather in person this year, but we've cooked up a fun online event for you! Join us Wednesday, October 21 and enjoy cooking demos and interviews from celebrity chefs, along with beer and wine experts - plus live music, and a silent auction! Join us for a fun night to benefit the Scleroderma Foundation Greater Chicago Chapter. Tickets are just $25 - on sale now!

There's Still Time to Support 2020 Fundraising Walks
We may not have been able to gather in person this year, but scleroderma patients need support now more than ever. If you haven't donated to a walk near you, there's still time! Together, we can provide support and education to scleroderma patients and their families while funding innovative research into scleroderma's cause and cure. Thank you for continuing to support this important work! More info on our events page.
 
Upcoming Patient Education Webinars
 

Patient Education Webinars

Jennifer LaCivita Headshot Square.jpg

Finding Joy Everyday Through the Arts: Real Ways to Improve Emotional Health

October 15, 2020 at 4:00pm CST

During these uncertain times, Jennifer La Civita, PsyD of Adler University is here to show you practical, yet inspiring ways you can instill peace and calm by using the arts. You’ll learn easy, relaxing ways to soothe body, mind, and spirit. Find joy everyday! You don’t have to be an artist to benefit from this webinar! 

More info and registration here. 

Guided Relaxation Yoga Person Crop.jpg

Free Weekly Guided Relaxation

Every Wednesday at 5:30pm CST

Join the team at Yoga for Scleroderma for "Wednesday Wind Down," a free weekly guided relaxation. You can join from a land line, cell phone, or you can join on Zoom.

Join via Zoom here.

 You can also phone in, no internet needed:

+1 (669) 900-6833 US
Meeting ID: 82635317704
 
SF Virtual University.png

Patient Education Virtual University

Every Wednesday at 3-4:00pm CST

 

The national office of the Scleroderma Foundation is offering its "Virtual University" Patient Education Series in lieu of the 2020 National Patient Education Conference. It's a series of weekly webinars, live meetings, workshops, and Scleroderma-related patient education videos. These events cover everything from managing symptoms to everyday living advice from individuals with scleroderma, physicians, and specialists.

 

 
 

Our Mission

Improving the lives of patients. Making strides toward a cure.

The mission of the Scleroderma Foundation is focused on three critical goals:

  1. SUPPORT: To help patients and their families cope with scleroderma through mutual support programs, peer counseling, physician referrals, and educational information.
     
  2. EDUCATION: To promote public awareness and education through patient and health professional seminars, literature, and publicity campaigns.
     
  3. RESEARCH: To stimulate and support research to improve treatment and ultimately find the cause of and cure for scleroderma.

Whether you're a scleroderma patient, have a loved one struggling with scleroderma, or just want to learn more about the disease, we have resources, education events and fundraisers you'll love!

Contact Information

Stephanie Somers Gresh, Executive Director
Melissa Kuhr, Marketing & Fundraising Manager

Scleroderma Foundation Greater Chicago Chapter
125 S. Clark, 17th Floor
Chicago, IL 60603
Phone: 312-660-1131
Email: GCchapter@scleroderma.org 
Facebook: facebook.com/gcscleroderma

Board of Directors
Tony Cogan, President
Jennifer Bryson, Vice President
Eliisa Capstick, Secretary

Dan Clarin, Treasurer

Mary Carns
Jules Cogan
Julie Drewniak
Cleetus Friedman
Carol Goldman
Peter Goldman
David Helfand
John Varga, M.D.

Medical Advisory Board
Richard Burt, M.D.
Jane Dematte, M.D.
Ikuo Hirano, M.D.
Amy Paller, M.D.
Stuart Rich, M.D.
Dean Schraufnagel, M.D.
Nadera Sweiss, M.D.
John Varga, M.D.

 

 

Patient Education Webinars

Jennifer LaCivita Headshot Square.jpg

Finding Joy Everyday Through the Arts: Real Ways to Improve Emotional Health

October 15, 2020 at 4:00pm CST

During these uncertain times, Jennifer La Civita, PsyD of Adler University is here to show you practical, yet inspiring ways you can instill peace and calm by using the arts. You’ll learn easy, relaxing ways to soothe body, mind, and spirit. Find joy everyday! You don’t have to be an artist to benefit from this webinar! 

More info and registration here. 

Guided Relaxation Yoga Person Crop.jpg

Free Weekly Guided Relaxation

Every Wednesday at 5:30pm CST

Join the team at Yoga for Scleroderma for "Wednesday Wind Down," a free weekly guided relaxation. You can join from a land line, cell phone, or you can join on Zoom.

Join via Zoom here.

 You can also phone in, no internet needed:

+1 (669) 900-6833 US
Meeting ID: 82635317704
 
SF Virtual University.png

Patient Education Virtual University

Every Wednesday at 3-4:00pm CST

 

The national office of the Scleroderma Foundation is offering its "Virtual University" Patient Education Series in lieu of the 2020 National Patient Education Conference. It's a series of weekly webinars, live meetings, workshops, and Scleroderma-related patient education videos. These events cover everything from managing symptoms to everyday living advice from individuals with scleroderma, physicians, and specialists.

 

 

Patient Support

Support groups provide a forum to share thoughts, concerns, information and meet others who understand the experience of living with scleroderma. Find a support group in your area or connect with others on our online support community, Inspire.

Looking to start a new support group in your area? Contact us at 312-660-1131.


 
Diamond National Sponsors
 
Actelion Plain   Boehringer Ingelheim Plain