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Awareness Month 2021 Home Page Carousel
June is Scleroderma Awareness Month. Follow us on Facebook, Twitter, and Instagram.
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Connect & Thrive Together at the National Scleroderma Conference, July 17 & 18, 2021

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COVID-19 Mask Advisory from the Medical & Scientific Advisory Board

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Important Updates on COVID Masks for People with Scleroderma

2021 Virtual National Scleroderma Conference

New Foundation CEO

  • Read the announcement welcoming Mary J. Wheatley, IOM, CAE, as the Foundation's new CEO, as of July 1, 2021.

Announcing the 2021 Research Grant Awards

  • Learn about the 8 new research grants awarded for 2021.

Pre-Doctoral Summer Fellowship Awards

  • Learn more about the new Arnold Postlethwaite, M.D., Pre-Doctoral Summer Fellowship Awards

Awards

  • See the 2020 awardees and celebrate the dedication and passion of our volunteers and chapters to advancing the Scleroderma Foundation's mission of support, education, and research.

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Who We Are

The Scleroderma Foundation is a federally qualified 501(c)(3) nonprofit dedicated to serving the needs of the scleroderma community.  Our primary goal is to raise funds and awareness for our three-fold mission of support, education and research.  All donations are qualified charitable donations to the fullest extent of the law.  Our federal tax identification number is 52-1375827.  All donations are gratefully accepted. 

What is Scleroderma?

Scleroderma, or systemic sclerosis, is a chronic connective tissue disease generally classified as one of the autoimmune rheumatic diseases. The word “scleroderma” comes from two Greek words: “sclero” meaning hard, and “derma” meaning skin. Hardening of the skin is one of the most visible manifestations of the disease.

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Download Our Free Scleroderma Information Packet

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See our 2018 GuideStar Gold Star profile
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eLetter

Visit the eLetter Archive to read the stories behind these headlines.  Submit your email address to receive the eLetter every week.

eLetter #922: June 18, 2021

  • Awareness Month: Here for You
  • Learn About Scleroderma and Lung Health at the 2021 virtual National Scleroderma Conference; Saturday, July 17, 12 p.m. - 8:30 p.m., July 18, 12 p.m. - 5:15 p.m. Eastern Time
  • ZOOM: BIPOC Support Group, Sunday, July 11, 2021; 4 p.m. Eastern Time
  • ZOOM: The 20%: A Virtual Support Group for Males Living with Scleroderma, Wednesday, June 23, 2021; 7-8 p.m. Eastern Time
  • WEBINAR: Black and Rare: Scleroderma in the African-American Community, Tuesday, June 29, 2021, 1 - 2 p.m. Eastern Time
  • Happy Juneteenth!
  • WEBINAR: Scleroderma Education Forum, Thursday, June 24, 2021, 12 p.m. - 1 p.m. Eastern Time.
  • VIDEO: Monitor Your Blood Pressure to Improve Your Heart Health
  • Online Mental Health Intervention Significantly Helps the Isolated, Immunosuppressed During Pandemic
  • Para Información Sobre COVID-19
  • Important Updates Regarding Mask Wearing for Immunocompromised Individuals with SSc, Updated May 17, 2021
  • Thank You to Our National Scleroderma Conference Presenting Sponsor, Boehringer Ingelheim Pharmaceuticals
  • Idiopathic Pulmonary Arterial Hypertension: Your Guide
  • WEBINAR: Ticket to Work, Wednesday, June 23, 3 p.m. Eastern Time
  • 7.10 Chronic Disease Day
 

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