Patient Education Days
The Scleroderma Foundation hosts various educational events for patients, family members and caregivers throughout the year. Many of these events are run by our chapters and support groups. To find an event near you, contact your local chapter or support group.
Patient Education Summer Series
The Scleroderma Foundation is proud to announce the Patient Education Summer Series. In lieu of the 2020 National Patient Education Conference that sadly was canceled to protect individuals with scleroderma during the COVID-19 pandemic, the Foundation has adapted its programming to the virtual environment. The Foundation will present an exciting series of weekly webinars, live meetings, workshops, and Scleroderma-related patient education videos. These weekly Wednesday events will cover everything from managing symptoms to everyday living advice from individuals with scleroderma, physicians, and specialists.
The series kicks off Wednesday, July 8, from 3 p.m. to 4 p.m. Eastern Time, with a presentation by JoAnna Harper, Pharm.D., R.Ph., CEO of Pain Partners, LLC, titled "Telemedicine: Strategies for a Successful Visit." Although it isn’t a new concept, the role of telemedicine in healthcare has become increasingly important with the rapid spread of COVID-19. Discussion includes pros and cons of a virtual visit, when not to use telemedicine, privacy and security concerns, and insurance coverage.
National Patient Education Conference
Sadly, the 2020 National Patient Education Conference planned to take place in Washington State, was cancelled to protect the health of individuals with scleroderma and other attendees. We look forward to 2021 and the chance for an in-person conference.
The Scleroderma Foundation brings together the leading scleroderma experts from around the world to our National Patient Education Conference. This event - held in a different U.S. city each year - is one of the largest gatherings for the scleroderma community. It includes panel discussions, workshops and other activities to help answer your questions about the disease.
Sample workshops and discussion topics include:
Conference attendees also can meet with vendors in our exhibit hall, attend a welcome networking dessert reception, and meet with high-profile scleroderma physicians, researchers and other health care professionals in a one-on-one environment. The conference is an excellent opportunity to meet new friends and discuss ways to cope with the disease the a supportive, positive environment.
**Please note that these titles are subject to change. If you attend the conference, be sure to check your program book for the most accurate listing of topics and workshop offerings.
African-American Patient Education Day
On Saturday, March 22, 2014 the Scleroderma Foundation will host its 2nd educational event dedicated solely to the African-American community. We have partnered with scleroderma experts from Johns Hopkins University Medical Center and Georgetown University Medical Center to host this unique event.Find out more about the African-American Patient Education Day >>
Physician and Continuing Education Courses
The following continuing medical education (CME) and continuing education (CE) courses are available for health care professionals about scleroderma and related diseases:
- Patients & Newly Diagnosed
- Healthcare Professionals