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Join us in Chicago for the 2019 National Patient Education Conference, July 19-21

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Stepping Out to Cure Scleroderma
Take a Step for Scleroderma

Find a "Stepping Out to Cure Scleroderma" walk/run near you today!

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Learn about how scleroderma affects the body

Who We Are

The Scleroderma Foundation is a federally qualified 501(c)(3) nonprofit dedicated to serving the needs of the scleroderma community.  Our primary goal is to raise funds and awareness for our three-fold mission of support, education and research.  All donations are qualified charitable donations to the fullest extent of the law.  Our federal tax identification number is 52-1375827.  All donations are gratefully accepted. 

What is Scleroderma?

Scleroderma, or systemic sclerosis, is a chronic connective tissue disease generally classified as one of the autoimmune rheumatic diseases. The word “scleroderma” comes from two Greek words: “sclero” meaning hard, and “derma” meaning skin. Hardening of the skin is one of the most visible manifestations of the disease.


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See our 2018 GuideStar Gold Star profile
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Reata Catalyst Trial



Visit the eLetter Archive to read the stories behind these headlines.  Submit your email address to receive the eLetter every week.

eLetter #814; May 17, 2019

  • Apply to Attend Capitol Hill Day, September 16-18, 2019, Washington, D.C.
  • All You Need to Know About Scleroderma Lung Involvement, Webinar: June 18, 2019; 11:30 a.m. - 12:30 p.m. ET
  • Taking Charge of Systemic Sclerosis
  • Results of Controlled Trial Evaluating Internet-Based Self-Management in Systemic Sclerosis
  • May 22 Deadline for Early Bird Discount, National Patient Education Conference
  • Kids Get Scleroderma, Too! at National Conference
  • Reach for the Cure
  • Where are You Stepping Out?

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