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Join us in Chicago for the 2019 National Patient Education Conference, July 19-21

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Stepping Out to Cure Scleroderma
Take a Step for Scleroderma

Find a "Stepping Out to Cure Scleroderma" walk/run near you today!

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Learn about how scleroderma affects the body

June is Scleroderma Awareness Month

Know the Face of Scleroderma 2019

Who We Are

The Scleroderma Foundation is a federally qualified 501(c)(3) nonprofit dedicated to serving the needs of the scleroderma community.  Our primary goal is to raise funds and awareness for our three-fold mission of support, education and research.  All donations are qualified charitable donations to the fullest extent of the law.  Our federal tax identification number is 52-1375827.  All donations are gratefully accepted. 

What is Scleroderma?

Scleroderma, or systemic sclerosis, is a chronic connective tissue disease generally classified as one of the autoimmune rheumatic diseases. The word “scleroderma” comes from two Greek words: “sclero” meaning hard, and “derma” meaning skin. Hardening of the skin is one of the most visible manifestations of the disease.


Download Our Free Scleroderma Information Packet

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Buzzworthy Reads>>

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See our 2018 GuideStar Gold Star profile
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Visit the eLetter Archive to read the stories behind these headlines.  Submit your email address to receive the eLetter every week.

eLetter #819; June 21, 2019

  • Twitter Chat to Prepare for World Scleroderma Day, Tuesday, June 25, 11:30 a.m. Eastern Time
  • Know the Face of Scleroderma, June is Scleroderma Awareness Month
  • Ticket to Work, Webinar: June 26, 2019; 3 p.m. Eastern
  • Treatment for Scleroderma Interstitial Lung Disease (ILD), Webinar: June 27, 2019; 3 p.m. - 4 p.m. Eastern
  • Emergencies in Scleroderma, National Patient Education Conference Workshop, July 19-21, 2019, Chicago
  • Kids Get Scleroderma, Too! at National Conference
  • myPHteam pulmonary hypertension
  • Where Are You Stepping Out?
    • Research Participation Opportunity

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