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Get updates on what's happening at the New England Chapter.

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Click here to see events happening throughout New England!

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Join a Support Group

Click here to find a support group near you. We're here to help.

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Choose from a variety of scleroderma information videos offered by the Scleroderma Foundation, or news on Scleroderma Foundation New England.

COVID-19 vaccine Q&A from the Foundation's Medical & Scientific Advisory Board. (Updated 8/20/2021)

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Scleroderma, or systemic sclerosis, is a chronic connective tissue disease generally classified as one of the autoimmune rheumatic diseases. The word “scleroderma” comes from two Greek words: “sclero” meaning hard, and “derma” meaning skin. Hardening of the skin is one of the most visible manifestations of the disease.

The mission of the Scleroderma Foundation New England is to help constituents make contact with each other through support groups, newsletters, and meetings; to provide education about scleroderma; and to promote and raise funds for medical research seeking the cause of and cure for scleroderma.

We meet our mission through the support of volunteers, creating opportunities to connect our community, and the support of our constituents throughout New England. It is only through your support that we will reach our ultimate goal - to find the cure for this disease and relieve the suffering it causes to patients and their loved ones.


Stepping Out to Cure Scleroderma New England 

Our Stepping Out events for 2021 will be virtual to ensure the safety of our community. We are excited to share our 2021 Stepping Out New England Virtual Walk on Saturday, June 26. June is Scleroderma Awareness Month and we challenge members of our community to create fun and inventive personal fundraisers, or "adventures" to help us meet our stepping out goals! Learn more

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 Wall HangingChapter Support Group Meetings

Find a support group in your area or connect with others by phone. Support Groups are currently meeting via ZOOM. Support groups are a great way to share information and provide encouragement to one another. Looking to start a new support group? Contact us!

Click here for more information >>


Click here to access presenters from past New England Patient Education Seminars. You can also view videos from our Stepping Out to Cure Cure Scleroderma Walks. Check it out!

 

The New England BEACON

Check out articles and past editions of our newsletter, The New England BEACON, for information on research, SFNE activity updates, event information and more.

BEACON Fall 2020

About Us

Board of Directors
Jane Ladas, President
Andrea Mahoney, Vice President
Steve Lang, Clerk
Chris Simms, Treasurer
Brenda Brown
Elysia Cappellucci
Tony Cappellucci
Zak Karsan
Carla King
David Rosenberg
Scott Winslow

Board Advisors
Tom Curran
Don Legere
Walter Zagrobski

Medical/Scientific Advisory Board
Vincent Falanga, M.D.
Harrison Farber, M.D.
Carol Feghali Bostwick, Ph.D.
Humphrey Gardner, M.D.
David M. Leader, DMD
Thomas Medsger, Jr., M.D.
John Mulliken, M.D.
Nicole Orzechowski, D.O.
Andrew Plaut, M.D.
Robert Simms, M.D.
Michael Whitfield, Ph.D.
Michael York, M.D.

Contact Information

Executive Director: Anne Sweeney

Office Mailing Address
Scleroderma Foundation New England Chapter
462 Boston Street, Suite 1-1
Topsfield, MA  01983

Phone: (978) 887-0658
Fax: (978) 887-0659
General Information: admin@sfnewengland.org

 

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Photo Gallery

Look through photo galleries from previous events held by our chapter.

 

 

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Watch videos on scleroderma, news events, and a few fun extras. 

 


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National Sponsors
 
Platinum Corporate Sponsor

       Janssen
 

Gold Corporate Sponsors

Boehringer Ingelheim Plain
 

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Local Sponsors

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