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Caregivers and Friends

family at 2011 delaware valley walkIf you're the family member or friend of someone who has been diagnosed with scleroderma, you may have a lot of questions about this complex disease. While scleroderma can be a very overwhelming diagnosis for both the individual with the disease and his or her family and friends, we have created this website specifically to provide you with the necessary information to help you work with your doctor and health care team for the best possible care.

As a family member or friend, you may also fill the role of caregiver. You will also find this website to be a great resource for information to help you be a more effective partner and assistant.

About Scleroderma

There are two major classifications of scleroderma: localized scleroderma and systemic sclerosis (SSc).

Medical Information

Becoming better informed and more organized will help you be a more effective partner in your healthcare.


We have compiled this list of resources to help family members and friends of people living with scleroderma.

Connect with Others

You are not alone! We offer chapters and support groups all across the U.S. to offer guidance to family and friends.