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Awareness Month 2021 Home Page Carousel
June is Scleroderma Awareness Month. Follow us on Facebook, Twitter, and Instagram.
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Connect & Thrive Together at the National Scleroderma Conference, July 17 & 18, 2021


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COVID-19 Mask Advisory from the Medical & Scientific Advisory Board

Read the Statement >>

Important Updates on COVID Masks for People with Scleroderma

2021 Virtual National Scleroderma Conference

New Foundation CEO

  • Read the announcement welcoming Mary J. Wheatley, IOM, CAE, as the Foundation's new CEO, as of July 1, 2021.

Announcing the 2021 Research Grant Awards

  • Learn about the 8 new research grants awarded for 2021.

Pre-Doctoral Summer Fellowship Awards

  • Learn more about the new Arnold Postlethwaite, M.D., Pre-Doctoral Summer Fellowship Awards


  • See the 2020 awardees and celebrate the dedication and passion of our volunteers and chapters to advancing the Scleroderma Foundation's mission of support, education, and research.

Current Job Openings


Who We Are

The Scleroderma Foundation is a federally qualified 501(c)(3) nonprofit dedicated to serving the needs of the scleroderma community.  Our primary goal is to raise funds and awareness for our three-fold mission of support, education and research.  All donations are qualified charitable donations to the fullest extent of the law.  Our federal tax identification number is 52-1375827.  All donations are gratefully accepted. 

What is Scleroderma?

Scleroderma, or systemic sclerosis, is a chronic connective tissue disease generally classified as one of the autoimmune rheumatic diseases. The word “scleroderma” comes from two Greek words: “sclero” meaning hard, and “derma” meaning skin. Hardening of the skin is one of the most visible manifestations of the disease.


Download Our Free Scleroderma Information Packet

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Visit the eLetter Archive to read the stories behind these headlines.  Submit your email address to receive the eLetter every week.

eLetter #922: June 18, 2021

  • Awareness Month: Here for You
  • Learn About Scleroderma and Lung Health at the 2021 virtual National Scleroderma Conference; Saturday, July 17, 12 p.m. - 8:30 p.m., July 18, 12 p.m. - 5:15 p.m. Eastern Time
  • ZOOM: BIPOC Support Group, Sunday, July 11, 2021; 4 p.m. Eastern Time
  • ZOOM: The 20%: A Virtual Support Group for Males Living with Scleroderma, Wednesday, June 23, 2021; 7-8 p.m. Eastern Time
  • WEBINAR: Black and Rare: Scleroderma in the African-American Community, Tuesday, June 29, 2021, 1 - 2 p.m. Eastern Time
  • Happy Juneteenth!
  • WEBINAR: Scleroderma Education Forum, Thursday, June 24, 2021, 12 p.m. - 1 p.m. Eastern Time.
  • VIDEO: Monitor Your Blood Pressure to Improve Your Heart Health
  • Online Mental Health Intervention Significantly Helps the Isolated, Immunosuppressed During Pandemic
  • Para Información Sobre COVID-19
  • Important Updates Regarding Mask Wearing for Immunocompromised Individuals with SSc, Updated May 17, 2021
  • Thank You to Our National Scleroderma Conference Presenting Sponsor, Boehringer Ingelheim Pharmaceuticals
  • Idiopathic Pulmonary Arterial Hypertension: Your Guide
  • WEBINAR: Ticket to Work, Wednesday, June 23, 3 p.m. Eastern Time
  • 7.10 Chronic Disease Day

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