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2021 Virtual National Scleroderma Conference

Save the Date: July 17 & 18, 2021, for the "Virtual" National Scleroderma Conference.

National Scleroderma Conference logo

As the COVID-19 pandemic continues, a virtual conference is the best option to provide access to vital scleroderma information and experts, and at the same time protect the health of individuals who have the disease and of all those who attend and support the National Scleroderma Conference.

Details about registration and programming will be published on this page as we plan the event. Please check back from time to time and submit your email here to stay up to date.

Programming for children who have scleroderma and their adult caregivers will take place later in the year. To receive email updates when Kids Get Scleroderma, Too! information is available, please enter your email address here.

The Foundation continues to be the best resource for information about scleroderma. A wealth of information can be found on scleroderma.org. Information requests can also be submitted by email, SFinfo@scleroderma.org, or by calling the Hope line, (800) 722-4673.

The National Conference is a special experience, particularly for first-time attendees, but also for those who return every year. The Scleroderma Foundation staff and Board of Directors values each of you very highly, and we look forward to the next opportunity to share time together in person. Thank you for your understanding.

Video recordings of presentations by scleroderma experts at prior Foundation national conferences can are posted at www.YouTube.com/sclerodermaUS.

COVID-19 information and recommendations from the Medical & Scientific Advisory Board of the Scleroderma Foundation.

About the National Conference

The annual National Scleroderma Conference offers educational and networking opportunities for people living with scleroderma, their caregivers, family members and friends.

Workshops, panel discussions and other educational sessions are led by leading scleroderma researchers and healthcare professionals. Whether you are newly diagnosed or have had scleroderma for many years, the National Conference is a great way to learn about the disease and become connected with others that are dealing with scleroderma.

With more than 60 workshops, dozens of exhibitors and the chance to meet other patients and caregivers, the weekend's activities offer an excellent opportunity for attendees.

Did you know that the actual per person cost of hosting the conference is more than $700? We would like to thank our corporate sponsors and donors for helping to reduce the cost for participants.

Name Change. The conference name has changed from National Patient Education Conference to National Scleroderma Conference for two main reasons. The first is that the Foundation is changing the way it refers to individuals who have scleroderma because that's what they are, individuals; their identity is not "patient." Secondly, the conference is so much more than education, as vital as that is to attendees, the conference is also an essential opportunity to connect with others who have the disease. We hope that you understand and appreciate the decision to change the conference name for these reasons. 

Thank You to Our Sponsors

National Sponsors
Janssen   Boehringer Ingelheim Plain