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Other Organizations

Disclaimer: These links are provided as a public service. Providing these links does not imply endorsement or support of any program or organization. The Scleroderma Foundation is not responsible for the content of the pages to which links are provided.

Here are some other useful links to health-related websites:


Self-Manage Scleroderma (TOSS)
Yoga for Scleroderma


National Health Council 
National Institutes of Health (NIH)
National Institute of Arthritis and Musculoskeletal and Skin Disease (NIAMS)


Scleroderma Clinical Trials Consortium
Office for Research for Women’s Health

Associations, Foundations, and Societies

Access Dermatology
American College of Rheumatology (ACR)
American Medical Association (AMA)
Arthritis Foundation
The Arthritis Society of Canada
Association for the Study of Systemic Sclerosis and Fibrosanti Diseases
Caregiver Action Network
Chinese Organization for Scleroderma
Croatian Society for Patients with Scleroderma (CSPS)
Cyprus League against Rheumatism
Danish Scleroderma & Raynaud’s Association
French Scleroderma Patient Organization
International Rosacea Foundation
Italian Association to Scleroderma Fight
League for Chronic Inflammatory Connective Tissue Diseases
Lupus Foundation of America
National Alliance for Mental Illness
National Eosinophilia-Myalgia Syndrome Network
National Foundation for Ectodermal Dysplasia
National Marfan Foundation
National Multiple Sclerosis Society
National Organization for Rare Disorders (NORD)
National Osteoporosis Foundation
National Psoriasis Foundation
N.V.I.E Patient Organization for Lupus, Scleroderma, and MCTD
Patients Association for Scleroderma (APSB)
Patient Organization for Scleroderma
Portuguese League against Rheumatic Diseases
Pro Rheumate - Group of Scleroderma Patients
Pseudoxanthoma Elasticum (PXE)
Pugliese Association Arthritis Patients
Pulmonary Fibrosis Foundation
Pulmonary Hypertension Association (PHA)
Raynaud’s Association
Romanian Association of Scleroderma Patients (APSR)
Scleroderma Australia
Scleroderma Research Foundation
Scleroderma Society of Canada
Scleroderma Society of United Kingdom
Sjogren's Syndrome Foundation
Spanish Scleroderma Association
Swedish Rheumatism Association
Swiss Association of Scleroderma Patients


ABILITY Magazine
New England Journal of Medicine