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Registration is open for 2021 virtual walks!

Register, fundraise and help us stop scleroderma in its tracks. Those living with scleroderma are counting on us - and we're counting on you! Find a walk near you.

 

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Get the information you need to live better!

Our YouTube channel has 50+ educational webinars covering topics that impact your daily life - GI issues, nutrition, mental health and wellness and more!

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Have you joined a support group yet?

You're not alone in struggling with scleroderma. Connect with fellow patients and get the information and support you need. Find a support group

 

 

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COVID-19: Imporant information regarding mask wearing for people with scleroderma and the CDC guidelines, from the Foundation's Medical & Scientific Advisory Board. (Updated May 17, 2021)

What's New at the Scleroderma Foundation Greater Chicago Chapter

Registration is open for 2021 virtual walks!
Mark your calendar - August 21 is walk day! By joining us for this year's virtual walks, you're supporting our mission to fund the development of new treatments for scleroderma while we search for a cure. It's crucial work, but to do it, we need your help. Learn more and find a walk near you!
 
 

Online Patient Education

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Registration is open for the 2021 National Scleroderma Conference

Whether you are newly diagnosed or have had scleroderma for many years, the National Scleroderma Conference is a great way to learn about the disease from recognized experts and become connected with others living with scleroderma.

Learn more and register

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Navigating the Pandemic in 2021: Vaccines, Telemedicine & More

Join us for a discussion with Dr. Chase Correia and Dr. Jane Dematte D'Amico from the Northwestern Scleroderma Program to answer questions regarding COVID-19 and scleroderma. We'll discuss and answer questions about the COVID-19 vaccine, talk about the opportunities and challenges that arise with telemedicine and answer any questions that you might have about the virus.

Watch the video here

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Finding Joy Everyday Through the Arts: Real Ways to Improve Emotional Health

During these uncertain times, Jennifer La Civita, PsyD of Adler University is here to show you practical, yet inspiring ways you can instill peace and calm by using the arts. You’ll learn easy, relaxing ways to soothe body, mind, and spirit. Find joy everyday! You don’t have to be an artist to benefit from this webinar! 

Watch the video here

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Free Weekly Guided Relaxation

Every Wednesday at 5:30pm CST

Join the team at Yoga for Scleroderma for "Wednesday Wind Down," a free weekly guided relaxation. You can join from a land line, cell phone, or you can join on Zoom.

Join via Zoom here

You can also phone in, no internet needed:

+1 (669) 900-6833 US
Meeting ID: 82635317704
 
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Patient Education Virtual University

The Scleroderma Foundation's "Virtual University" Patient Education Series was offered in place of the 2020 National Patient Education Conference, which was cancelled as a result of the COVID-19 pandemic. 

This series of webinars, workshops and videos covers everything from managing symptoms to everyday living advice from individuals with scleroderma, physicians and specialists.

Watch the fall video series here and the summer video series here.

 

 
 

Our Mission

Improving the lives of patients. Making strides toward a cure.

The mission of the Scleroderma Foundation is focused on three critical goals:

  1. SUPPORT: To help patients and their families cope with scleroderma through mutual support programs, peer counseling, physician referrals, and educational information.
     
  2. EDUCATION: To promote public awareness and education through patient and health professional seminars, literature, and publicity campaigns.
     
  3. RESEARCH: To stimulate and support research to improve treatment and ultimately find the cause of and cure for scleroderma.

Whether you're a scleroderma patient, have a loved one struggling with scleroderma, or just want to learn more about the disease, we have resources, education events and fundraisers you'll love!

Contact Information

Stephanie Somers Gresh, Executive Director
Melissa Kuhr, Marketing & Fundraising Manager

Scleroderma Foundation Greater Chicago Chapter
125 S. Clark, 17th Floor
Chicago, IL 60603
Phone: 312-660-1131
Email: GCchapter@scleroderma.org 
Facebook: facebook.com/gcscleroderma

Board of Directors
Tony Cogan, President
Jennifer Bryson, Vice President
Eliisa Capstick, Secretary

Dan Clarin, Treasurer

Mary Carns
Jules Cogan
Julie Drewniak
Cleetus Friedman
Carol Goldman
Peter Goldman
David Helfand
John Varga, M.D.

Medical Advisory Board
Richard Burt, M.D.
Jane Dematte, M.D.
Ikuo Hirano, M.D.
Amy Paller, M.D.
Stuart Rich, M.D.
Dean Schraufnagel, M.D.
Nadera Sweiss, M.D.
John Varga, M.D.

 

 

Online Patient Education

2021NatScleroConf_ConnectAndThriveTogether_Logo1s.png

Registration is open for the 2021 National Scleroderma Conference

Whether you are newly diagnosed or have had scleroderma for many years, the National Scleroderma Conference is a great way to learn about the disease from recognized experts and become connected with others living with scleroderma.

Learn more and register

COVID Image Square Small.jpg

Navigating the Pandemic in 2021: Vaccines, Telemedicine & More

Join us for a discussion with Dr. Chase Correia and Dr. Jane Dematte D'Amico from the Northwestern Scleroderma Program to answer questions regarding COVID-19 and scleroderma. We'll discuss and answer questions about the COVID-19 vaccine, talk about the opportunities and challenges that arise with telemedicine and answer any questions that you might have about the virus.

Watch the video here

Jennifer LaCivita Headshot Square.jpg

Finding Joy Everyday Through the Arts: Real Ways to Improve Emotional Health

During these uncertain times, Jennifer La Civita, PsyD of Adler University is here to show you practical, yet inspiring ways you can instill peace and calm by using the arts. You’ll learn easy, relaxing ways to soothe body, mind, and spirit. Find joy everyday! You don’t have to be an artist to benefit from this webinar! 

Watch the video here

Guided Relaxation Yoga Person Crop.jpg

Free Weekly Guided Relaxation

Every Wednesday at 5:30pm CST

Join the team at Yoga for Scleroderma for "Wednesday Wind Down," a free weekly guided relaxation. You can join from a land line, cell phone, or you can join on Zoom.

Join via Zoom here

You can also phone in, no internet needed:

+1 (669) 900-6833 US
Meeting ID: 82635317704
 
SF Virtual University.png

Patient Education Virtual University

The Scleroderma Foundation's "Virtual University" Patient Education Series was offered in place of the 2020 National Patient Education Conference, which was cancelled as a result of the COVID-19 pandemic. 

This series of webinars, workshops and videos covers everything from managing symptoms to everyday living advice from individuals with scleroderma, physicians and specialists.

Watch the fall video series here and the summer video series here.

 

 

Patient Support

Support groups provide a forum to share thoughts, concerns, information and connect with others who understand the experience of living with scleroderma. Find a support group in your area or connect with others on our online support community, Inspire.

Looking to start a new support group in your area? Contact us at 312-660-1131.


 
National Sponsors
 
Gold Corporate Sponsor

Boehringer Ingelheim Plain
 

Silver Corporate Sponsor

Horizon Therapeutics logo