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COVID-19 vaccine Q&A from the Foundation's Medical & Scientific Advisory Board. (Updated 8/20/2021)

Tamanya Jones

2021 New Chapter Board Member: Tamanya Jones

Tamanya is from Westmoreland, VA. In 2016, Tamanya was diagnosed with a severe form of Scleroderma, causing rapid weight loss, loss of mobility and flexibility, skin pigmentation, severe muscle weakness and a various of other things.

Scleroderma made Tamanya's life very difficult, she struggled to to the very basic tasks, all while in school to get her Bachelors degree. Tamanya did not let Scleroderma stop her and with the support of her family, In 2019, Tamanya graduated with her BS degree in Business Administration focusing on Accounting and Financial Qualitative Analysis. Read more
 

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2020 Clinical Trials and Research Projects: Johns Hopkins Scleroderma Center

The Center is actively investigating treatments that can improve our patients’ quality of life and better control disease activity. Current, formal research studies are listed. New studies are being planned to begin in the near future. Read more

 

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Treakle-Moore

2020 New Chapter Board Member: Dr. Evelyn Yvonne Treakle-Moore

For 31 years Dr. Treakle-Moore worked as an area physician focusing on Internal Medicine, Nephrology and Medical Administration. In 2004, she was diagnosed with Systemic Scleroderma. Dr. Treakle-Moore managed to work until December of 2017, at which time she retired. Read more
 

 

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2020 Central Virginia Walk - A Great Success!

Our 2nd annual Central Virginia Walk held March 7, 2020 at Sweet Briar College was amazingly successful both as a fundraiser and as a community event supporting those affected by scleroderma.
 
A grand total of over $16,000 was raised for the mission at this year's Walk, far exceeding the original goal. The majority of money raised came from 80 dedicated walkers, their families and over 30 other enthusiastic contributors and supporters. In addition, 26 local sponsors (listed below) were sold sponsorships by Suzanne Raine, Margaret Ann White and Amherst Woman's Club members who organized this walk that is sponsored by our SFGWDC Chapter.
 
2020 Central VA Walk
 

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About Us

Board of Directors
Sharon P. Fine, President & Interim Treasurer
Elizabeth Theisen, Vice President
Tamanya Jones
Marty Beth Theisen

Medical Advisory Board
Dr. Kathleen Holton
Laura Hummers, M.D.
Victoria Shanmugam, M.D.
Virginia Steen, M.D.

Contact Information

Scleroderma Foundation
Greater Washington, D.C. Chapter
5004 Domain Place
Alexandria, VA 22311

(703) 282-3016
DCchapter@scleroderma.org

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Photo Gallery

Look through photo galleries from previous events held by our chapter.

 

 

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Watch videos pertaining to events held by our chapter and a few fun extras.

 


Find Us On The Web! (coming soon)

 
National Sponsors
 
Platinum Corporate Sponsor

       Janssen
 

Gold Corporate Sponsors

Boehringer Ingelheim Plain
 

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