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2017 Rochester Scleroderma Educational Forum
Rochester Educational Opportunity Center

2017 Edu Forum stationery header

The Rochester New York Scleroderma Patient Education Forum brings you information that is important to scleroderma patients, family members, friends, caregivers and healthcare professionals.


R. James White, MD, PhD - University of Rochester, PHA Comprehensive Care Center
Topic: Scleroderma and Lung Involvement

Katie Orem, MPH - Excellus BCBS, Geriatrics & Palliative Care Program Manager,
eMOLST Administrator for NYS
Topic: Advance Care Planning, Palliative Care & MOLST

Katherine Adamides, Esq - Staff Attorney, Legal Assistance of Western New York, Inc. (LawNY®)
Topic: Powers of Attorney and Wills

Program Schedule

11:00 am Registration & Lunch

11:30 pm Tri-State Welcome: Mary Beth Bobik-Kadylak,
  Director of Patient Education & Support

Marilyn Sibley, Greater Rochester Support Group Leader

11:40 am Award Presentations:

                                Community Service Award: Nana Duffy, MD and Janice Harbin, DDS

                                Messenger of Hope: Professor Virginia (Ginny) Orzel

12:10 pm Education Program Welcome

12:15 pm Advance Care Planning, Palliative Care & MOLST - Katie Orem, MPH

1:15 pm Break until 1:30 pm

1:30 pm Powers of Attorney and Wills - Katherine Adamides, Esq.

2:30 pm Scleroderma & Lung Involvement - R. James White, MD, PhD

3:15 pm Panel Discussion

4:30 pm Closing Remarks / Program Evaluation

Please dress for an air-conditioned venue and bring layers for comfort.

Time: 11:00 AM - 4:00 PM
161 Chestnut St.
Rochester, NY 14604
United States

We're sorry, the deadline for registering for this event has passed.