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SYNC - Scleroderma Youth Needing Connection Meeting

SYNC Meet Up - Scleroderma Young Adults Needing Connection

Invites you to join their Zoom meeting Friday, August 13th at 7:00 pm EST.

Scleroderma Young Adults between ages of 18 to 42

 

Register/ Join meeting via Zoom link below

https://us06web.zoom.us/meeting/register/tZwkd-6przwoGd3ZodwY1_-6wr2refQy1tus

After registering, you will receive a confirmation email containing information about joining the meeting.

Topic: Support Group Yoga Class.

Presentation: Lori Pierce, RYT-200

Lori Pierce has been living with scleroderma since 2002 and reaches fellow scleroderma warriors
who think they can't do yoga. As one participant said after Lori's presentation "You took away all
my excuses."


Pre-COVID, Lori Pierce presented at Scleroderma Foundation conferences and chapter and
support group meetings across the US, as well as being a co-teacher of the Yoga for Scleroderma
Teacher Training. Lori has continued to present online for chapter and support groups, but with
the travel restrictions COVID imposed on high-risk immune compromised individuals, Lori looked
for a way to continue to serve the larger scleroderma community and chose a free weekly guided
relaxation to reduce stress, a trigger for scleroderma symptom flares. As many in the scleroderma
community are already isolated, often without good internet, she chose a zoom presentation with
phone-in, no internet or cellphone needed.
The weekly Wednesday Wind-down program began at 6:30pm EDT in June 2020. In July, another
weekly broadcast was added at 6:30pm India Standard time, which is translated to Hindi on the
third Wednesday of the month. In September the podcast channel started, downloads reached
1,000 on December 31, 2020 and are now at 3,400 downloads from 66 countries over 782 cities.
Lori’s podcasts also appear on the Yoga for Scleroderma YouTube channel. Lori covers all of the
costs of the Zoom broadcasts and the Podcast channel as her service to her Scleroderma
Community.


In June the International Association of Yoga Therapists recognized Lori’s service and announced
her as a 2021 SEVA Award finalist. She will be recognized in the IAYT magazine Yoga Therapy
Today and received a cash award toward her podcast costs and yoga mats for her Scleroderma

Podcast: https://yogaforscleroderma.buzzsprout.com/

 

For Questions contact your SYNC Volunteer Leaders:

Amy Gietzen
agietzen@scleroderma.org

or

Natalie Puccio
nataliepuccio18@gmail.com

Date:
Time: 7:00 PM - 8:30 PM

This event does not require an RSVP. Registered users can request event reminders.
Register