Where to Start
More than 300,000 Americans live with some type of scleroderma. Today, the face of scleroderma includes people of all ages, genders, and backgrounds. Scleroderma can affect young parents, children, grandparents, and teenagers. Thanks to the passion and dedication of countless volunteers, scientists, and supporters, we’re advancing our mission faster than ever.
One of the most challenging things about scleroderma is that it presents differently in each person. Find the right resources for you.
The National Scleroderma Foundation is excited to introduce Dionna Bartos as our new Director of Education. Dionna first joined…
Q: Do you have any advice regarding how people can/should go about getting a proclamation from their local areas…
The National Scleroderma Foundation is very excited to introduce Daniel Martinez to the team. Daniel joined the Foundation in…
Events
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Parent Support Group of Children/Teens with Scleroderma
Zoom Meeting link available after registrationVirtual EventJoin our parent support group and connect with other parents who understand the challenges of scleroderma. Click here to register in advance. A meeting link will be shared after registration. For more information, please email support@scleroderma.org.
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North Shore Support Group
Virtual EventTo register & for more information, please email NEchapter@scleroderma.org
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Yoga for Scleroderma Support Group
Virtual EventKathy Randolph leads a reclining series to release your legs, hips, back, shoulders, and neck, perfect at bedtime. If you have GERD, get your inclined plane ready, that's your wedge pillow or blankets or your already elevated bed. The class ends with the Sleep Breath Relaxation, good for going to sleep and even better for […]
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Newly Diagnosed Scleroderma Support Group
Virtual EventIndividuals newly diagnosed as having scleroderma face an overwhelming number of questions about how it will affect their lives. Participation in a support group is one way to obtain information and receive support from others. This group will help navigate these questions and support newly diagnosed individuals. Click here to register in advance. A meeting […]
