Where to Start
More than 300,000 Americans live with some type of scleroderma. Today, the face of scleroderma includes people of all ages, genders, and backgrounds. Scleroderma can affect young parents, children, grandparents, and teenagers. Thanks to the passion and dedication of countless volunteers, scientists, and supporters, we’re advancing our mission faster than ever.
One of the most challenging things about scleroderma is that it presents differently in each person. Find the right resources for you.
The National Scleroderma Foundation is very excited to introduce Alison Fronning to the team. Alison joined the Foundation in…
The National Scleroderma Foundation is proud to announce the recipients of the 2026 Pre-Doctoral Fellowship awards. The Pre-Doctoral Summer Fellowship…
During the 2026 National Scleroderma Conference in Baltimore, the National Scleroderma Foundation proudly recognized the extraordinary volunteers, advocates, healthcare…
Events
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Parent Support Group of Children/Teens with Scleroderma
ZoomVirtual EventJoin our parent support group and connect with other parents who understand the challenges of scleroderma. Click here to register in advance. A meeting link will be shared after registration. For more information, please email support@scleroderma.org.
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North Shore Support Group
Virtual EventTo register & for more information, please email NEchapter@scleroderma.org
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Yoga for Scleroderma Support Group
Virtual EventCLICK HERE TO REGISTER
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Newly Diagnosed Scleroderma Support Group
Virtual EventIndividuals newly diagnosed as having scleroderma face an overwhelming number of questions about how it will affect their lives. Participation in a support group is one way to obtain information and receive support from others. This group will help navigate these questions and support newly diagnosed individuals. Click here to register in advance. A meeting […]
The Foundation’s peer-reviewed research grant program is a leader in scleroderma research. Learn more about how this program accelerates the search for better treatments, and ultimately, a cure.