Where to Start
More than 300,000 Americans live with some type of scleroderma. Today, the face of scleroderma includes people of all ages, genders, and backgrounds. Scleroderma can affect young parents, children, grandparents, and teenagers. Thanks to the passion and dedication of countless volunteers, scientists, and supporters, we’re advancing our mission faster than ever.
One of the most challenging things about scleroderma is that it presents differently in each person. Find the right resources for you.
Heidi Jacobe, MD, MSCS, will serve as chair of the Department of Dermatology at Duke Health beginning in December….
National Scleroderma Foundation leadership is aware of the pause in two CAR-T clinical development programs and is closely following…
The National Scleroderma Foundation joins the scleroderma community in mourning the passing of Dr. Thomas A. Medsger Jr., a…
Events
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Pulmonary Arterial Hypertension Support Group
ZoomVirtual EventThe Pulmonary Arterial Hypertension Support Group meets on the first Tuesday of each month from 3:00pm to 4:00pm ET. Register here: https://scleroderma.org/PAHsg Questions? Email: pahsg@sclerodermavolunteer.org
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Bereavement Support Group
ZoomVirtual EventThe Bereavement Support Group meets on the first Wednesday of each month at 12:00pm ET. Please register here: https://scleroderma.org/bereavementSG Questions? Email: BereavementSG@sclerodermavolunteer.org
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Raynaud’s/Scleroderma Support Group
This support group is in-person. For more information, please email support@scleroderma.org
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Florida & Puerto Rico Feel Good Wednesday
Virtual Eventhe FL & PR Feel Good Wednesday Support Group meets on the first Wednesday of each month. Register here: https://us02web.zoom.us/meeting/register/rwUdztO-Sbis8AcVQZ4FDQ. Questions? Contact: fl&prsg@sclerodermavolunteer.org.
The Foundation’s peer-reviewed research grant program is a leader in scleroderma research. Learn more about how this program accelerates the search for better treatments, and ultimately, a cure.
