Where to Start
More than 300,000 Americans live with some type of scleroderma. Today, the face of scleroderma includes people of all ages, genders, and backgrounds. Scleroderma can affect young parents, children, grandparents, and teenagers. Thanks to the passion and dedication of countless volunteers, scientists, and supporters, we’re advancing our mission faster than ever.
One of the most challenging things about scleroderma is that it presents differently in each person. Find the right resources for you.
The National Scleroderma Foundation is delighted to be participating in the Rare Disease Week and Rare Disease Day activities…
The National Scleroderma Foundation is very excited to introduce Chrissy Geimann to the team. Chrissy joined the Foundation in…
The EACH/PIC Coalition has released an updated, patient-led analysis that sheds light on how people across the U.S. actually…
Events
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Southwest Support Group
Virtual EventTo register & for more information, please email rmchapter@scleroderma.org
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Rare Disease Week – Washington, DC
Rare Disease Week will take place from February 24 to February 26, 2026, in Washington, DC, focusing on advocacy and awareness for rare diseases!
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Orange County Support Group (Hybrid)
This support group meets at the Josephine-Louise Public Library in Walden, NY and offers a virtual option. The library is inside of Walden's Municipal Building, and the community room is on the second floor. You need to enter the main door of the Municipal Building instead of the library's entrance to access the elevator. Contact […]
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LGBTQ+ Scleroderma Support Group
Zoom Meeting link available after registrationVirtual EventIf you are interested in learning more, please email, LGBTQ@scleroderma.org, with questions. Click here to register in advance. A link to the meeting will be made available after registration.
