Where to Start
More than 300,000 Americans live with some type of scleroderma. Today, the face of scleroderma includes people of all ages, genders, and backgrounds. Scleroderma can affect young parents, children, grandparents, and teenagers. Thanks to the passion and dedication of countless volunteers, scientists, and supporters, we’re advancing our mission faster than ever.
One of the most challenging things about scleroderma is that it presents differently in each person. Find the right resources for you.
More than 1,000 clinicians and researchers joined together for the 9th Systemic Sclerosis World Congress. Organized by the World Scleroderma Foundation, the event runs…
The National Scleroderma Foundation and our network for patient advocates are preparing for our next Virtual Hill Days meetings….
The National Scleroderma Foundation is excited to introduce Dionna Bartos as our new Director of Education. Dionna first joined…
Events
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Atlanta Support Group
Virtual EventTo register & for more information, please email sechapter@scleroderma.org
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BIPOC Support Group
Virtual EventThe facilitators of the BIPOC (Black, Indigenous, and People of Color) Virtual Support Group invite you to join their next meeting. Topic: "How to Manage Worklife While Coping with Scleroderma" Open discussion Facilitator: Erion Moore Register in advance for this meeting: use the link below. https://us02web.zoom.us/meeting/register/Fe7fS1H4QliIazXtoaOyfg After registering, you will receive a confirmation email containing […]
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Bereavement Support Group
Zoom Meeting link available after registrationVirtual EventIf you have lost a loved one to scleroderma, you may find support and solace in speaking with others who are grieving. Our monthly bereavement support group will be on the third Tuesday of every month from 7:00-8:30 p.m. ET. Click here to register in advance for this meeting. After registering, you will receive a […]
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Morphea/Localized Scleroderma Support Group
Zoom Meeting link available after registrationVirtual EventThe Virtual Localized Scleroderma Support Group will meet at 7 p.m., Eastern, 3rd Tuesday of each month. Click here to register in advance. A meeting link will be shared after registration. If you're interested in learning more or joining, please email localizedSG@scleroderma.org.
