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Thomas A. Medsger, Jr., M.D., was awarded the Lifetime Achievement Award at the 2009 National Patient Education Conference

 

Support Group Websites

Spanish contacts

International Contacts

The use of contact information (email addresses and phone numbers) on our website is strictly for persons interested in contacting Chapter and Support Group volunteers and staff for support and informational purposes only. This contact information SHOULD NOT be taken from our website for solicitation or commercial use.

Please click on a state name on the map, or use our drop-down list above, for a Support Group near you. We are working diligently to expand our network of support groups and are always interested in motivated, dedicated volunteers to assist us in that endeavor. To find out how you can help, please contact our Chapter and Support Group Manager, at 800-722-HOPE.

*Phone Contacts are individuals who would like to offer phone & email support but do not run a support group.

Map of the U.S.
Hawaii Michigan Rhode Island Connecticut New Jersey Delaware District of Columbia Oregon Washington Idaho Hawaii Alaska Maine Massachusetts Connecticut New Hampshire Vermont New Jersey New York Delaware Maryland Pennsylvania North Carolina South Carolina Florida Georgia Alabama Virginia West Virginia Kentucky Tennessee Mississippi Louisianna Arkansas Texas Oklahoma Ohio Indiana Missouri Illinois Iowa Kansas New Mexico Arizona Colorado Nebraska Michigan Wisconsin Minnesota South Dakota North Dakota Wyoming Utah Montana Nevada California Puerto Rico

Alabama
Florence: Telephone Support: Sarah Logan, 256-332-0048

Birmingham Area Support Group

Huntsville Support Group

Alaska
Telephone Support: Sherry Furlong, 907-224-2520, sdalefurlong@yahoo.com

Arizona

Lake Havasu City

Tucson

West Phoenix

Arkansas
Benton

California
Camarillo

Fountain Valley

Fresno
*Telephone Support: Marianne P. Rocha, 559-266-8209

Glendale

Los Angeles (English-speaking)

Los Angeles (Spanish-speaking)

Modesto

Palmdale

Sacramento

San Diego

San Francisco

Santa Rosa

Sherman Oaks

South Bay

West Los Angeles

Whittier

Colorado
Colorado Springs

Englewood

Connecticut
Enfield

Stamford

District of Columbia
Fairfax, Virginia (serves the Greater Washington, D.C. metropolitan area.)

Baltimore (serves the Greater Washington, D.C. metropolitan area.)

Delaware
Contact the Delaware Valley Chapter.

Florida
Avon Park

Daytona Beach

Lady Lake

Margate

Miami

Orlando

Palm Beach

Panama City/Pensacola: Telephone Support: Anna Strickland, 850-722-4046, anna.strickland@hotmail.com

Sarasota

Tampa

Georgia
Atlanta

Royston: Telephone Support: Jennifer Gibby, 706-245-7236, jennifergibby@att.net

Hawaii
Hawaii currently does not have any Support Groups. If you would like to help, please contact our Chapter and Support Group Manager at the National Office, 800-722-4673.

Idaho
Boise

Illinois
Chicago

Highwood

Illiopolis

Kankakee

Oak Park

Peru

Indiana
Anderson

Goshen

Iowa
Oskaloosa

Kansas
Wichita

Kentucky
Ashland

Louisiana
Baton Rouge

Shreveport: Telephone Support: Dicy Cary-Cowart, 318-525-1536, dc1966la@att.net

Maine
Lewiston

Maryland

Massachusetts
Topsfield

Worcester

Michigan
If you'd be interested in leading a support group in your area of Michigan, contact Carol Hilf at 248-865-7259; toll free: 800-716-6554 or chilf@scleroderma.org.

Flint

Grand Rapids

Lansing

Livonia

Taylor

Warren

Minnesota
Duluth

Edina

Maple Grove

Rochester

St. Paul

Mississippi
Horn Lake

Missouri
Kansas City

LaPlata

St. Louis

Springfield

Montana
Kalispell: Telephone Support: Charlene Kleinschmidt, 406-257-4668

Nebraska
Grand Island: Telephone Support: Terry Christensen, Home phone: 308-384-4017, Cell phone: 308-227-1738, ligissg@q.com

Lincoln: Lincoln Area Telephone Support: Terry Christensen, 308-384-4017, ligissg@q.com

Omaha

Nevada
Las Vegas

New Hampshire
Hampstead

New Jersey
Burlington/Camden

Flemington

Hackensack

Monmouth County

Warren

Woodbury

New Mexico
Currently, New Mexico does not have any support groups. If you would like to help, please contact our Chapter and Support Group Manager at the National Office, 800-722-4673.

New York
Albany

Binghamton

Buffalo

Cooperstown

Kingston

Long Island

Medusa

New York City

Rochester

Staten Island

Warwick

North Carolina
Durham

Raleigh

North Dakota
Bismarck

Ohio
Canton

Carrollton

Cincinnati

Columbus

Dayton (Huber Heights)

Richfield

Toledo (Maumee)

Youngstown

Oklahoma
Oklahoma City

Tulsa

Oregon
Bend

Portland

Pennsylvania
Connellsville/Uniontown: Telephone Support: Mica VanFossen, 724-565-5198, vanfossen106@comcast.net

Langhorne

Norristown

Pottstown

Reading

Williamsport

York

Puerto Rico
Cabo Rojo
Comuniquese con Edwin Lamoli (speak with Edwin Lamoli).
Teléfono: 787-851-2269, email elamoli@centennialpr.net

Cayey

San Juan

Rhode Island
Providence

South Carolina

Charleston

Greenville

Rock Hill

South Dakota
Sioux Falls: Telephone Support: Shelia Barrington, 605-335-1661, sdsikorski@msn.com

Tennessee
Chattanooga: Telephone Support: Amy Inbody, 706-861-4217, amy152@yahoo.com

Gallatin: Telephone Support: Evette Britton, 615-230-7040, EBrit0164@aol.com

Knoxville

Memphis

Nashville

Texas

Allen/Greater North Dallas

Austin

Conroe

Corpus Christi

El Paso

Longview

Lubbock

Midland/Odessa

Paris

San Antonio

Tarrant County

Waco

West Houston

Utah
Layton

Salt Lake City

Vermont
Wilmington: Telephone Support: Ilene Wax, 802-464-5847, ilenewax@gmail.com

Willston

Virginia
Fairfax

Fredericksburg

Lynchburg: Telephone Support: Marion Weaver, 434-384-3212

Norfolk: Telephone Support: Audrey Gutterman, 757-855-5200, audgut@aol.com.

Richmond

Washington
College Place: Telephone Support: Victoria Gibson, 509-529-8568, annetori@yahoo.com

Seattle

Spokane

West Virginia
Charleston: Telephone Support: Scott Miller, 304-610-2898, samiller5@yahoo.com

Weirton: Telephone Support: Sandra Fennych, 304-723-5177, sfennych@comcast.net

Wisconsin
Green Bay

Lake Geneva

Milwaukee Telephone Support Group

Wyoming
Wyoming currently does not have any Support Groups. If you would like to help, please contact our Chapter and Support Group Manager at the National Office, 800-722-4673.

Spanish-Speaking Contacts
Los Angeles, Calif., Josephine Battyany, 310-477-8225
Bay Shore, N.Y. Area – Beatriz Nunez, 631-667-2655
Cabo Rojo, P.R., Edwin Lamoli, 787-851-2269
Cayey, P.R., Awilda E. Berrios Burgos, 787-219-7049, 787-434-7859 y 787-308-7411, awildae315_@hotmail.com o awilda315pr@yahoo.com
San Juan, P.R., Manny Quevedo, 787-792-4038, lordrealty@lordrealty.com; or Sylvia Quevedo, 787-792-3882

SISTER ORGANIZATIONS

Argentina
Association Argentina De Esclerodermia
Corrientes 1844, PB
Autonoma de Buenos Aires, Argentina
Phone: (54) 11-4371-2574
info@esclerodermia.org.ar
http://www.esclerodermia.org.ar/

Australia
New South Wales
Scleroderma Australia
PO Box 558
Balgowlah NSW 2093
Tel. 02 9990 5159 (message bank, calls usually returned within 24 hours)
Email: info@sclerodermaaustralia.com.au
www.sclerodermaaustralia.com.au/

New South Wales
The Scleroderma Association of New South Wales Inc.
PO Box 227, Ashfield NSW 1800
Tel. 02 9798 7351 Fax. 02 9798 7985
Email. scleronsw@aol.com
www.sclerodermansw.org

Newcastle/Hunter Valley
Scleroderma/Lupus Support Society
PO Box 373, Warner’s Bay NSW 2282
Tel. 02 4921 4095
http://www.sclerodermaaustralia.com.au/

Northern Territory
Scleroderma Queensland
PO Box 154, Mansfield QLD 4122
Tel. 07 3411 3558 Fax. 07 3411 3558
Email: sclero@pacific.net.au
www.scleroderma.org.au

Queensland
Scleroderma Queensland
PO Box 154, Mansfield QLD 4122
Tel. 07 3411 3558 Fax. 07 3411 3558
Email: sclero@pacific.net.au
www.scleroderma.org.au

South Australia
Lupus/Scleroderma/Sjogren’s Support Group
1/202 Glen Osmond Road, Fullarton SA 5063
Tel. 08 8263 0513

Tasmania
Tasmania Scleroderma Friendship Group
Phone: (03) 6229 4478

Victoria
Scleroderma Foundation of Victoria Inc.
St. Vincent Hospital. 41 Victoria Parade, Fitzroy VIC 3065
Tel. 03 9288 3651
Email: enq@sclerodermavic.org
www.sclerodermavic.org

Western Australia
Scleroderma WA
Arthritis Foundation of WA
PO Box 167, Nedlands WA 6909
Tel. 08 9388 2199
Email: general@arthritiswa.org.au

Belgium
Association des Patients Sclerodermiques
de Belgique
33 Rue Marcel Baudry
7503 Froyennes
Phone/Fax: 069/ 35.29.44
Email: APSB-ASBL@win.be
http://users.win.be/W0079627

Belgian CIB-League
CIB-Liga voor Chronische Inflammatoire Bindweefselziekten vzw
Nele Caeyers, CIB-Liga vzw
Bresserdijk 75
2400 Mol
+32 14 322 399
+ 32 498 32 03 05
nelecaeyers@versateladsl.be
www.cibliga.be

Canada
Scleroderma Society of Canada
95 Woodfield Road SW
Calgary, AB
T2W5K5
Bob Buzza - President
http://www.scleroderma.ca/
info@scleroderma.ca
(403) 281-7616

England
Raynaud's & Scleroderma Association
112 Crewe Road, Alsager, Cheshire
ST7 2JA United Kingdom
Phone: 01270 872776
Fax: 01270 883556
http://www.raynauds.org.uk/

The Scleroderma Society
3 Caple Road
London NW10 8AB
Phone: 020 8961 4912
kimflig@sclerodermasociety.co.uk
http://www.sclerodermasociety.co.uk/
Chair: Kim Fligelstone

France
Association des Sclerodermiques de France
Presidente: Madame Wladia Degorre
22 Avenue d'Immersourt
F-66217 Tilloy-les Mofflaines
Phone: (+0033) 03.21.24.18.72
Fax: (+0033) 03.21.22.65.77
www.cyberquest.fr/asf

Germany
Sklerodermie Selbsthilfe e. V. in Deutschland
Friedhofstr. 16
74076 Heilbronn, Germany
Phone: 0049-07131-161656
Fax: 0049-07131-161657
info@selbsthilfe-sklerodermie.de
http://www.sklerodermie-selbsthilfe.de/Veranstaltungen_Frame.htm

Ireland

Irish Raynaud's & Scleroderma Society
PO Box 2958
Foxrock, Dublin 18, Ireland
Phone: 01 20 20 184
www.irishraynauds.com

Italy
Associazione Italiana Lotta alla Sclerodermia (AILS)
Sede Nazionale
Via Scrima, 29 - 60127 Ancona
Phone: 071.2832316
Phone: 335.8318091

Sede Legale
V.le Famagosta, 46 - 20142 Milano
Phone and fax: 02.89120468
Phone: 338.7193491
Email: ails@tiscali.it
http://www.ails.it

Gruppo Italiano Per La Lotta Alla Sclerodermia (GILS)
Via Giambellino, 14 20146 Milano
Phone: 02-47715581 Fax: 02-48958047
Email: gils@sclerodermia.net
http://web.tiscali.it/gils/

Sweden
Sklerodermigruppen
Reumatologishe Uliniken
USIL
221 35 LUND
Rematology Karolinsler Hospital
S-17176 Stockholm
Sweden
Phone: 011-46-46-172153
Fax: 011-46-46-128468

Trinidad and Tobago
Scleroderma Care Foundation
18 Opal Drive, Eldorado Gardens
Tunapuna, Trinidad
Phone: (868) 222 5037
www.sclerodermatt.org

300 Rosewood Drive, Suite 105, Danvers, MA 01923 · Phone 978-463-5843 · 800-722-HOPE (4673)
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