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Thomas A. Medsger, Jr., M.D., was awarded the Lifetime Achievement Award at the 2009 National Patient Education Conference

 

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"Journey to Wholeness–The Stages of Illness," by Cindy Coney"Journey to Wholeness – The Stages of Illness," by Cindy Coney

You will be amazed how similar other people's experiences are to your own when they are diagnosed with a chronic illness. Each of us moves through specific stages at our own rate. In this CD, Cindy Coney shares the stages we move through and interviews her dear friend, Dr. Sally Karioth, on ways to enjoy the exquisite moments in our lives, despite illness.

$10 (plus $2.50 S&H)

Sergio Jimenez, M.D. at 2007 Scleroderma Foundation National Conference2007 Conference Workshops Now on DVD!

The DVD’s contain footage from seven workshops that were filmed at our National Conference, held in July 2007 at Philadelphia. The DVD’s are packaged in a series of two, except for the closing keynote speech by Dr. Sergio Jimenez. They each cost $25. The DVDs are:

  1. “Gastrointestinal Issues” and “Nutrition and Your Immune System”
  2. “Panel Discussion – Stem Cell Transplantations” and “Pain Management”
  3. “Dental Issues” and “Qualifying for Disability Benefits”
  4. “Updates in Scleroderma Research and Treatment”

Learn more at www.sclerodermavideo.com.

Yoga for Scleroderma DVDYoga for Scleroderma

This 52-minute DVD was funded by a grant for $20,000 from the Foundation's Texas Bluebonnet Chapter. The grant was earmarked for Programs & Services. Kathleen Randolph, a Yoga instructor, worked with Marilyn McDonald, a physical therapist, to create a yoga program aimed at alleviating some of the common symptoms of scleroderma. The program consists of a sequence of floor exercises, standing poses, inverted postures, and breathing and relaxation techniques—each selected because it addresses a specific symptom of scleroderma. (2003)
$17.50 (plus $2.50 S&H)

ALSO AVAILABLE IN VHS
$20 (plus $4 S&H)

"Living Well with Scleroderma"

This 12-minute video for newly diagnosed patients and their families presents scleroderma patients (and their spouses) positively reflecting on the challenges they have faced, and how they have learned to live with scleroderma. Scleroderma expert Philip Clements, M.D., of UCLA, is also featured in this upbeat video, which was produced with the help of the Foundation's Southern California Chapter. (2002)
$5 (plus $2.50 S&H)

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