2017 Stepping Out Long Island NY (Tri-State Chapter)

Bina's Scleroderminators

Thank you for visiting my personal fundraising page to support the "Stepping Out to Cure Scleroderma" event!

Donating through this site is simple, fast and totally secure. It is also the most efficient way to make a contribution to support me and help raise funds for scleroderma patients. To make a donation, click the "Donate Now" button that appears under my photo. Then, just follow the instructions.

If you would like to join me at the event, and walk and help raise funds, please click on “Join My Team” and follow the directions.

Please help today! I sincerely appreciate your support, and please share this with anyone who you think might want to help.

Help me bring more awareness to scleroderma so we can find a cure!


Bina's Story:

I started feeling sick around 10 years ago. I was constantly run down
and suffered with flu like symptoms. My body ached, some days I
couldn't get out of bed. I had been to several doctors who couldn't
tell me why I was feeling this way. After years of suffering, I was
diagnosed with Lupus, then rheumatoid arthritis, and finally my
gastroenterologist told me he thought I had scleroderma.
Scleroderma is one of several auto-immune diseases. Each auto-immune
disease is characterized by the organ system(s) your own immune system
attacks. Scleroderma is especially dangerous because it targets the
epithelial cells. These are the cells that make up the skin and lining
of every organ system.
My skin became tough and lost its elasticity. I could not do everyday
tasks like button my shirt and tie my shoes. The skin around my mouth
shrunk making it difficult to eat anything that wasn't liquefied. The
lining of my esophagus became hard and scarred effecting how I was
able to digest food. My lungs were effected too, and a few years after
my diagnosis I only had half lung function. This was a really scary
time, all of the research said that patients with scleroderma as bad
as mine would only live for ten years after being diagnosed.
I have come a really long way. Thanks to my doctors, my family, and
continued research for treatments for scleroderma. Your donation will
help fund the research that will keep me healthy, and help others
struggling with the devastating disease.

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