2017 Stepping Out Rochester NY (Tri-State Chapter)

Team Gabby

Hey Y'all!

For those of you who don't know me, I'm Gabby! 

I am a twenty-two-year-old living an extraordinary life while battling Scleroderma. Scleroderma is an auto-immune disease for which there is currently no cure. The best we can do is to treat the symptoms.
I was seven years old when we knew something was wrong. At that time, my fingers, toes, and lips began to turn purple when I got cold. The doctors diagnosed Raynaud’s Phenomenon. Raynaud’s causes poor circulation that leads to sores on my fingers and toes that don’t heal very easily. I have taken medication, endured treatments, and undergone surgeries to try to improve my circulation without much success. Recently the flesh on the tip of one of my fingers became necrotic, so part of that finger had to be amputated.
While others fighting this disease suffer from even worse symptoms, my biggest struggle is currently the scarring in my lungs. Over the years, it has become more and more difficult for me to breathe deeply due to the buildup of scar tissue. The array of imaging and testing done over the past many years documents this decline to my current lung function of just about 34 percent.

About a year and a half ago I received a stem cell transplant in Chicago in the hope that it will put my Scleroderma into remission. The doctors told me that it may help me to regenerate some lung tissue and, therefore, regain some lung function. I was in beginning stages of heart failure at the time and the transplant helped my heart back to normal! I'm doing significantly better than I was before the transplant and am still seeing improvements today!

Living with disease doesn't bring me down because it has taught me so much. I have a great life. I intend to live it fully and enjoy it every day with a big smile on my face! I have the greatest support system and thank God for surrounding me with such an amazing family and group of friends. They are always there to keep me laughing. They are the reason I wouldn't trade any of this for anything. Thanks for reading about my journey and I hope to see you at the walk! :)

Thank you for visiting my Team Fundraising page to support the "Stepping Out to Cure Scleroderma" event!

Donating through this site is simple, fast and totally secure. It is also the most efficient way to make a contribution to support my team’s effort to raise funds for people living with scleroderma. To make a donation, click on one of the team members to make a gift towards their fundraising effort to help our team.

If you would like to join our team at the event, and walk and help raise funds, please click on “Join My Team” and follow the directions.

Please help today! Our team sincerely appreciates your support, and we ask you to please share this with anyone who you think might want to help.

Help our team bring more awareness to scleroderma so we can find a cure!

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