2017 Stepping Out - Iowa (Heartland Chapter)

SHINE ON!
SHINE ON!

Team Dani

Hi! Dani here!

For starters-Thank you for visiting our team's Fundraising page to support the "Stepping Out to Cure Scleroderma" event! This will be Team Dani's 4th year participating in this walk, and I always look forward to it.

As most of you already know, I was diagnosed with Linear Scleroderma when I was 10 and it affects my right lower leg and ankle. The brace I wear is because scleroderma attacks my joints and makes it difficult for me to walk. Scleroderma is a hard word to say.  Its even a harder disease. In the beginning, I was afraid to talk about it.  Today, I try and find any opportunity to educate others and advocate for the cause!

Last fall, I was given the opportunity to fly out to Washington DC and go on Capitol Hill so my mom and I could share my Scleroderma journey while educating and advocating to lawmakers about this disease. I also spoke to Congress, on behalf of the Scleroderma Foundation, about funding for continued research.  I participated in an education conference in Kansas City and met my idol, Chanel White. Earlier this year, I took my story and made it to the State speech competition. 

There is also a darker side to living with a chronic disease like Scleroderma that isn't always talked about. Like many of my scleroderma sisters and brothers, I battle depression on a daily basis. There are days I have to fight to get out of bed because of the chronic pain and stiffness. However, I have hope that one day I can say that I used to have Scleroderma. This is why this fundraising event is so important. 

So-Here's how it works:

Donating through this site is simple, fast and totally secure. It is also the most efficient way to make a contribution to support my team’s effort to raise funds for people living with scleroderma. To make a donation, click on one of the team members to make a gift towards their fundraising effort to help our team.

If you would like to join our team at the event, and walk and help raise funds, please click on “Join My Team” and follow the directions. You already know how much fun we are. Its just silly if you don't come along with us. You even get a tshirt!

Please help today! Our team sincerely appreciates your support, and we ask you to please share this with anyone who you think might want to help.

Help TEAM DANI  bring more awareness to scleroderma so we can find a cure!

 

Let your heart light shine for all to see!

 

 

SHINE ON!

Dani

 

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