2017 Stepping Out - Baltimore (Greater Washington DC Chapter)

Deb's Angels Of Hope
Deb's Angels Of Hope

Deb's Angels Of Hope

Thank you for visiting be fundraising page, I will be participating in the "Stepping Out to Cure Scleroderma" walk-a-thon again this year! My team, Deb's Angels Of Hope need your support! Please help by joining my team on Saturday May 20, 2017 on behalf of this important cause & In Memory of Ms Deb. If you don't think you are able to participate but would still like to support the organization and my efforts, please click on the "Donate Now". Donating through this website is simple, fast and totally secure. It is also the most efficient way to support my fundraising efforts.

Most of you know I am very passionate about raising money to help fund research to find a cure for Scleroderma! When Ms Deb was diagnosed in November 2006 with Scleroderma, We had never heard of this disease nor knew how serious it was. Within the first two years of being diagnosed with Scleroderma, she had to have two different pacemaker put in. Just as the first one was starting to heal they had to remove it because of other complications & replace it with a pacemaker that also had a defibrillator. Up until she was diagnosed she had never had any heart problems so this was very shocking to us that the Scleroderma was affecting her heart so soon after diagnosis. Ms Deb also had several other complications along her battle, besides her heart issues she also had severe muscle pain, major headaches, lung and breathing problems and stage 3 kidney failure. In 2008 she went into severe kidney failure and had to be put on dialysis, thank God she only had to go through one day and her kidneys started functioning again! Her doctors said her kidneys were functioning good but would never be completely normal! In January of 2011 Ms Deb was in and out of the hospital a few times because her heart kept going into fibrillation, thankfully her defibrillator worked properly and got her heart back to pumping correctly! 2012 was a pretty good year for Ms Deb, had gotten some pretty awesome news from the DR, he said she was in remission! Now we knew it didn't mean the same thing as it does when you're fighting cancer the Scleroderma was not gone! BUT what it did mean was that Scleroderma had not affected any of her organs such as her heart, lungs & kidneys in a year! 2013 & 2014 had a lot of ups & downs with Ms Deb's health, in & out of the hospital, a few procedures & a lot of prayers! Unfortunately in January 2015, Ms Deb no longer had the energy or ability to fight this debilitating disease! Surrounded by all of her family the last two days of her life she was able to feel the love of everyone & was peacefully greeted by the Angels on January 23! I don't think people realize how important it is to raise awareness for different diseases, especially rare diseases! Awareness is Key to finding a Cure!

Ms Deb was one of the strongest & most courageous women I have ever met! In her memory this year we are asking as many people as possible to walk with us!! We want people to know about this debilitating disease and help us find a cure! In the past few years we have found out that three of our friends families have also been touched by this disease! So it becomes even more important that we find a cure!

Below is some information on the disease. Please read and visit one of the websites listed below for more information. Again, Thank you for taking the time to read this information and we hope your family NEVER has to go through this!! Please keep Everyone with this disease in your prayers! And always remember those we have lost to this nasty disease!

What is Scleroderma?

Scleroderma (sklare-oh-derma) means "hard skin." This complex disease involves tightening and thickening of the skin, blood vessel damage, inflammation and immune system changes. Around 100,000 people in the United States, mainly women ages 20-50, develop the systemic form of the illness which also involves the lungs, heart, kidney and intestinal tract. Around 200,000 people in the United States, half of whom are children, develop localized scleroderma. The cause of scleroderma is unknown and effective treatments are lacking. For systemic sclerosis, survival is related to how much organ damage each individual patient has. Modern medicine has made great strides in treating individual complications, however there is still NO CURE!!

PLEASE HELP US FIND A CURE!

For more information Please
Visit www.sclero.org or www.scleroderma.org
If you are able make a donation:
THANK YOU AGAIN!!!

Tammy

All contributions are for the Scleroderma Foundation to use to help find a cure for those whose lives have been affected by scleroderma. If you would like to find out more about scleroderma and the Foundation, please visit www.scleroderma.org


On behalf of myself & the rest of Ms Deb's family, many thanks for your support -- and don't forget to forward this to anyone who you think might want to donate too!

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