About

About Scleroderma

Scleroderma is a chronic, often progressive, autoimmune disease in which the immune system attacks its own body.

Scleroderma means “hard skin.” It can cause a thickening and tightening of the skin. In some cases, it causes serious damage to internal organs including the lungs, heart, kidneys, esophagus and gastrointestinal tract. As scarring, or sclerosis, of these organs and organ systems progress, they work less effectively, and can lead to organ failure and death. Some medications and treatments can help with certain symptoms, but there is no cure for scleroderma. The disease affects about 300,000 people across the U.S. In comparison, approximately the same number of people are affected by multiple sclerosis.

About the Scleroderma Foundation

The Scleroderma Foundation is the national organization for people with scleroderma, their families and friends. It was formed Jan. 1, 1998, by a merger between the United Scleroderma Foundation and the Scleroderma Federation.

The Scleroderma Foundation is headquartered in the metro Boston area in Danvers, Mass. It is a 501(c)(3) non-profit organization dedicated to serving the interests of people living with scleroderma. The Foundation has a network of 22 chapters and more than 150 support groups committed to carrying out the three-fold mission of support, education and research. The Scleroderma Foundation funds an average of $1 million in new grants each year to find the cause and cure for scleroderma.