2017 Stepping Out Philadelphia PA (Delaware Valley Chapter)

Join Team Joey
Join Team Joey

Team Joey

Dear Team Joey,

Once again this year, We will be participating in the "Stepping Out to Cure Scleroderma" walk-a-thon and need your support! My journey and my fight continues. But, sadly, so does my extreme pain and fatigue. Since the last walk, I have had a pretty quiet year ( Thank God!). I continue to do my chemo infusions and they are helping me so much. I struggle with extreme fatigue daily and can't seem to be able to get enough rest. Therefore, I don't make a lot of plans because my energy level does not support an active lifestyle.

This year, my kidneys have come into play for the first time. I am seeing a nephrologist now to deal with those issues. Just another specialist added to Team Joey. 

I have learned that my lung function and capacity is still decreasing considerably. My lungs are now restricted and obstructed. The cause is still to be determined. I have more testing next month.

Quitting is not an option. Therefore, I fight! Please fight along side of me and help me raise funds to find a cure for this awful disease.

Please help by joining my team on behalf of this important cause! If you don't think you are able to participate but would still like to support the organization and my efforts, please click on the "Donate Now".

Donating through this website is simple, fast and totally secure. It is also the most efficient way to support my fundraising efforts. All contributions are for the Scleroderma Foundation to use to help find a cure for those whose lives have been affected by scleroderma.

Scleroderma – misunderstood, misdiagnosed, underfunded – is a chronic connective tissue disease, classified as one of the autoimmune rheumatic diseases.The disease affects 300,000 people, 80% of which are women. The disease is complex and painful, and it has the potential to affect every organ in a person's body. The disease can be localized or systemic. If it is localized it affects mainly the skin by hardening the skin. If it is systemic it can affect organs by hardening the organs. The cause is unknown, and there is no cure. The SFDV chapter supports patients in 3 states, Eastern Pennsylvania, portions of New Jersey and Delaware, partnering with 3 centers, the Scleroderma Centers at University of Pennsylvania Hospital, Jefferson Health System and Robert Wood Johnson University Hospital, and promoting 3 goals, educating the community, advocating for research and patients, and fighting for a cure. The funds that SFDV raises go to these missions. We rely on the support and generosity of donors to support our community as well as the mission of the National Foundation which is also 3 fold - support, education and research. The National Foundation and its chapters are the leading source of scleroderma related research and allocates $1 million annually through the Foundation's research program.

If you would like to find out more about scleroderma and the Foundation, please visit www.scleroderma.org.

Many thanks for your support -- and don't forget to forward this to anyone who you think might want to donate too!

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