2017 Stepping Out Philadelphia PA (Delaware Valley Chapter)

Team Jaffari

Welcome to Team Jaffari.  Please walk with on October 5th or if you cannot walk with us, please consider donating to our cause.  We walk for those suffering from this debilitating disease.

Donating through this website is simple, fast and totally secure. It is also the most efficient way to support my fundraising efforts. All contributions are for the Scleroderma Foundation to use to help find a cure for those whose lives have been affected by scleroderma.

Scleroderma – misunderstood, misdiagnosed, underfunded – is a chronic connective tissue disease, classified as one of the autoimmune rheumatic diseases.The disease affects 300,000 people, 80% of which are women. The disease is complex and painful, and it has the potential to affect every organ in a person’s body. The disease can be localized or systemic. If it is localized it affects mainly the skin by hardening the skin. If it is systemic it can affect organs by hardening the organs. The cause is unknown, and there is no cure. The SFDV chapter supports patients in 3 states, Eastern Pennsylvania, portions of New Jersey and Delaware, partnering with 3 centers, the Scleroderma Centers at University of Pennsylvania Hospital, Jefferson Health System and Robert Wood Johnson University Hospital, and promoting 3 goals, educating the community, advocating for research and patients, and fighting for a cure. The funds that SFDV raises go to these missions. We rely on the support and generosity of donors to support our community as well as the mission of the National Foundation which is also 3 fold - support, education and research. The National Foundation and its chapters are the leading source of scleroderma related research and allocates $1 million annually through the Foundation’s research program.

If you would like to find out more about scleroderma and the Foundation, please visit www.scleroderma.org.

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