2017 Stepping Out - Denver (Colorado Chapter)

Team Seaman

 

Hello friends and family!

The Scleroderma Walk is coming up on Saturday, June 17th. This will be my 4th year at the walk. Last year we had another incredible showing, coming in 3rd place for the most walkers. THANK YOU!!!! Please come and join me again this year for the Stepping Out Walk to Cure Scleroderma!!!

This year my flexibility and breathing has even gotten better. My skin scores have gone from a 25 to a 7 (that is really good). I am doing more and more that felt impossible to do just 3 years ago. Like touching the floor, or walking long distances. I even walked a 25-mile pilgrimage on Good Friday--mind you I almost didn’t finish, but I was able to push ahead and do it!

Because of my transplant my quality of life has gotten much better. There are still many people with Scleroderma that don’t have the option of this clinical trial because it doesn’t work for their Scleroderma symptoms. There is still no medicine that is designated for this disease and because it is so rare there are no protocols in place as with other diseases. This is why I want for us all to band together to raise money for the Scleroderma Walk on June 17th so we can keep researching for a cure for Scleroderma. I pray that one day there will be a cure and no one will have to go through the aches and pains of this debilitating disease.

I want to thank each and every one of you for your support!!! You ALL have meant so much to me! You have given me so much strength through your prayers and continued support. I truly believe that is one of the reasons I am doing so well!!! Thank you, Thank you, Thank you from the bottom of my heart!!!

God's blessings to you all!

Jill

 

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