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2018 National Conference Slide Registration Open

Interested in joining us at this year's National Conference?

With the Scleroderma Foundation's National Patient Education Conference only a few short months away, don't forget to register!  If you have never been to one of these conferences, you would be amazed at the lengths the SF has gone to provide a weekend full of education, support, and fellowship.

For more information and to register for this year's conference, click here. 

 


 

"STOMP OUT SCLERODERMA" Art Contest:

Submit your original art for our NEW 2018 Slogan Contest for the Texas Bluebonnet Chapter and have your work featured in future sponsorship packages!

RULES TO APPLY:

1.  Anyone can enter his/her drawing or art:  Children, adults, patients, caregivers, family, and friends are all encouraged to submit.

2.  All art work/drawing submission MUST CONTAIN the words "Stomp Out Scleroderma".  

3.  You may use any Texas related images in your submission:  Boots, Texas state shape, bluebonnets, cowboys/girls, etc. 

4.  Must be your ORIGINAL ART:  drawings, illustrations, paintings.  Images from outside sources will not be accepted. 

5.  You accept that by submitting an art piece, you are giving the Scleroderma Foundation permission to post your piece on social media (with attribution), and/or to be used in any future promotion(s).  

6.  Submit a picture of your art, including a good contact name, phone number, and email address, to txchapter@scleroderma.org.

For questions, please email us at txchapter@scleroderma.org OR contact our office at (281) 880-4992.

 


 

2018 Walk Season Scheduled Events:

Saturday, October 6th, 2018:  Dallas/Fort Worth's "Stomp Out Scleroderma" 5K Fun Run

  • Location:  Music City Mall
    2401 S. Stemmons Fwy
    Lewisville, TX  75067
  • Event time:  TBA
  • Registration: TBA
  • Stay tuned for more details on this event, as well as instructions for registration, by following us on FACEBOOK.

 


 

Patient Education Events:

Saturday, June 23rd, 2018:  

  • Location:    University Hospital's University Transplant Center
    in the UHS Cypress Conference Room (Rio Tower, First Floor)
    4502 Medical Drive
    San Antonio, TX  78229
  • Event time: 10:00 a.m - 2:00 p.m. 
  • Registration: There is no cost to attend this event, but if you plan to attend, please RSVP no later than June 14th. To RSVP, contact Jovana at 210-909-9375 or email sascleroderma@gmail.com.

 


 

Advocacy:

Have you flexed your ADVOCACY muscles lately?

Join us in congratulating Jacob Davila, TBC Board Member and scleroderma brother, in being chosen by our National Foundation to attend 2018's Capitol Hill Day on April 17th. 

Here, Jacob was able to speak face to face with our nation's legislators, and it is with great excitement we announce that after meeting with the office aid of Rep. Sheila Jackson Lees, we learned that only days later Lees not only backed HR4638 bill, but she cosigned for it as well!  [...read full article here]

Let your voice be heard, and JOIN US!  You can help today by writing a letter that will allow us to continue to spread the message of URGENCY for Scleroderma research.  YOU ARE NOT ALONE!

CLICK HERE to get started writing your letter!

 


 

Chapter Support Group Meetings: 

>>>HOUSTON UPDATE<<<

There are some IMPORTANT changes in the works for our Greater Houston Support Group (currently meeting in Humble, Tx).  If you live in the Houston area and currently attend, or plan to attend, meeting, this message is for YOU!

CLICK HERE to read more about the upcoming changes, when they are scheduled to take place, and how they will effect you. 

Want to learn how you can get started hosting support group meetings in your area?
Check out our brochure below and contact Kathy (below) for any questions you might have, OR visit our Texas Support Group page to find a group meeting near you.

NEW SUPPORT GROUP BROCHURE (ENGLISH) DOWNLOAD
NEW SUPPORT GROUP BROCHURE (ESPANOL) DOWNLOAD

Thank you, 
Kathy Baker, 
Support Group Services & Programs
email:  KBaker@scleroderma.org

 


 

 

Check Out These Patient Stories:

Reader's Digest Article – Emily Woods>>
Scleroderma Voice Article Amber Paris>>

Scleroderma Voice Article Caroline Clemens>>

Dallas Morning News Article – Larry Tucker>>

Scleroderma Registry and the DNA Repository Needs You!

More information on the DNA Family Registry >>

 

About Membership:

Stay connected with the Scleroderma Foundation all year. Join the foundation today, and you will receive the quarterly national magazine, Scleroderma Voice, plus other news about special events, the latest research updates and more! Become a member today >>

About Us

Board of Directors
Audrey Brouwer, President
Jacob Davila, Vice President
Jan Wilkerson, Vice President
Peggy Brown, Treasurer

Contact Information

Audrey Brouwer, President 
Scleroderma Foundation,
Texas Bluebonnet Chapter
110 Cypress Station Drive, Suite 117
Houston, TX 77090

Phone: (281) 880-4992
Fax: (281) 880-4996
TXchapter@scleroderma.org

Board Members
Jamie Adams
Kathy Baker
Emily Woods
Diane Lee

Medical Advisory Board
Shervin Assassi, M.D.
Gowri Balachandar, M.D.
Melissa Costner, M.D.
Alexander Duarte, M.D.
Hernando Garcia M.D.
Heidi Jacobe, M.D.
Mark D. Khorsandi, M.D.
Maureen D. Mayes, M.D.
Dr. Richard W. McCallum, M.D.
Philip L. Nauert, D.D.S.
Dipan J. Shah, M.D.
Matthew Q. Pompeo, M.D.


 

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Photo Gallery

Look through photo galleries from previous events held by our chapter.

 

 

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Watch videos pertaining to events held by our chapter and a few fun extras.

 

Check Us Out On The Web!

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Actelion 2018

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