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Tri-State Support Groups

Each support group provides a setting which is conducive to sharing concerns, information and feelings, in a confidential environment, where members provide encouragement, coping strategies and mutual support.  Meetings have both a social and an educational component which may include a guest speaker or DVD presentation.

We encourage patients to attend with their caregivers and family members allowing all to come to a better understanding of a patient’s journey with scleroderma, how this journey affects their relationships with others and to voice their own concerns when needed.

For additional information, to verify meeting dates/times (which may change due to inclement weather) contact the support group leader.  There is no charge to attend meetings and all are welcome.  However, solicitations or the conducting of research during meetings is prohibited.

Connecticut

Eastern CT
Leader: Rachel Barta
Tel: (860) 262-4578
Email: EasternCT@sclerodermatristate.org
Meeting Place: Day Kimball Hospital, Conference Room 
320 Pomfret St, Putnam, CT 06260
Time: 7:00 pm
2018 Dates: 1/16, 2/20, 3/20, 4/17, 5/15, 6/19 7/17, 8/21, 9/18, 10/16, 11/20, 12/18
Support Group Flyer

Greater Enfield
Co-Leader: Teri Beebe
Tel: (860) 741-5028
Email: EnfieldCT@sclerodermatristate.org
Meeting Place: Enfield Public Library 
104 Middle Rd, Enfield, CT 06082
Time: 6:00 pm
Dates:  2/8, 3/8
Support Group Flyer

Yale/New Haven
Leader: Kristin Curran, PA
Tel: (203) 785-4163
Email: NewHavenCT@sclerodermatristate.org
Meeting Place: Yale West Campus – Conf Center #800
100 West Campus Drive, Orange, CT 06477
Time: 1:30 pm
Dates: 4/10, 5/8
Support Group Flyer

New Jersey

Bergen County
Leader: Natalie Puccio-Murdolo
Tel: (201) 838-4408
Email: BergenCountyNJ@sclerodermatristate.org
Meeting Place: Whole Foods at The Outlets at Bergen Town Center
Seating Area - 300 Bergen Town Center, Paramus, NJ 07652
Time: 1:00 pm
Dates: 2/21, 3/14, 4/11, 5/9, 6/6, 9/19 (phone call), 10/17, 11/14, 12/12
Support Group Flyer

Northern NJ
Leader: Anita Ryan
Tel: (973) 726-0677
Email: NorthernNJ@sclerodermatristate.org
Meeting Place A: Saint Clare’s Dover Hospital 
400 W Blackwell St, Dover, NJ 07801
Meeting Place B: Dover Free Public Library
32 East Clinton St, Dover, NJ  07801
Time: 1:00 pm
Dates:
 2/8 (Newton Medical Center), 3/13, 4/10, 5/8, 9/11, 10/9, 11/13
Support Group Flyer

New York 

Albany
Co-Leader: Carla Gage
Tel: (518) 573-0259
Co-Leader: Raymond Littlejohn, Jr.
Tel: (518) 271-7025
Email: AlbanyNY@sclerodermatristate.org
Meeting Place: Sunnyview Hospital
1270 Belmont Ave, Schenectady, NY 12308
Time: 2:00 pm
Dates: 3/10, 4/14, 5/12, 6/9, 10/13, 11/10, 12/8
Support Group Flyer

Binghamton
Leader: This volunteer position is open.
Tel: (607) 723-2239
Email: BinghamtonNY@sclerodermatristate.org
Meeting Place: Scleroderma Foundation Tri-State Chapter - conference room
(note: no handicapped entrance) 59 Front Street, Binghamton, NY  13905 
Time: 6:30 pm
Dates: 

Buffalo
Co-Leader: Amanda Hebert
Tel: (716) 997-6551
Co-Leader: Deborah Golinski
Tel: (716) 563-4790 | godebbie.dg@gmail.com
Email: BuffaloNY@sclerodermatristate.org
Meeting Place: Our Lady of Peace Church - Community Center
10950 Main Street, Clarence, NY 14031
Time: 11:00 am
Dates: 1/20, 3/17, 5/19, 7/21, 9/15, 11/17
Support Group Flyer

Cooperstown
Co-Leader: Rebecca Davidson
Tel: (607) 644-4203
Email: CooperstownNY@sclerodermatristate.org
Co-Leader: Marilyn Waterhouse
Tel: (607) 432-7115
Meeting Place: Jackie's Restaurant 
3688 Main Street, Milford, NY 13807
Time: 9:00 am
Dates: 1/13, 2/10, 3/10, 4/14, 5/12, 6/9, 7/14, 8/11, 9/8, 10/13, 11/10, 12/8
Support Group Flyer

Greater Rochester
Leader: Marilyn Sibley
Tel: (585) 723-1026 or (585) 234-0398
Email: RochesterNY@sclerodermatristate.org 
Meeting Place: University of Rochester Medical Center - Conference Room ACF-A/B
601 Elmwood Ave, Rochester, NY 14642
Time:1:00 pm
2018 Dates: 3/10, 5/12, 6/2 - Stepping Out to Cure Scleroderma, 9/8, 11/10
Support Group Flyer

Long Island
(Spanish Speaking Leaders)
Leader: Beatriz Nunez
Tel: (631) 949-8265
Email: LongIslandNY@sclerodermatristate.org
Assistant Leader: Myrna Carrasquillo 
Tel: (631) 398-3024
Meeting Place: Northwell Health Southside Hospital - Board Room
301 East Main St, Bay Shore, NY 11706
Time: 10:00 am
Dates: 3/17, 5/19, 7/21, 9/15, 10/20
Support Group Flyer

Nassau/Queens
Leader: Heidy Dornau
Tel: (917) 572-8154
Email: NassauQueensNY@sclerodermatristate.org
Meeting Place: St. Philip & St. James Church - Parish Hall, back door
432 Lakeville Rd, Lake Success, NY  11040
Time: 1:00 pm
Dates: 4/7, 5/5, 6/2, 9/1, 10/6, 11/3, 12/1
Support Group Flyer

New York City
Co-Leader: Tiese Mahabir
Tel: (917) 821-4831
Co-Leader: Zeba Hyder
Tel: (212) 777-2832
Email: NYNY@sclerodermatristate.org
Meeting Place: Hospital for Special Surgery - 2nd floor
535 East 70th St, New York, NY 10021
Time: 6:00 pm
Dates: 3/7, 4/4, 5/2, 6/6, 8/1, 9/5, 10/3, 11/7, 12/5
Support Group Flyer

Orange County, NY
Co-Leader: Jodi Lynn
Tel: (845) 778-7442
Co-Leader: Barbara Celnick
Tel: (845) 987-7737
Email: OrangeCountyNY@sclerodermatristate.org
Meeting Place: Jacobowitz and Gubits, LLP | 2nd Floor - Conference Room A
158 Orange Avenue, Walden, NY 12586
Time: 1:00 pm
Dates:  1/31, 2/28, 3/28, 4/25, 5/30, 6/27, 7/25, 8/29, 9/26, 10/31, 11/28
Support Group Flyer

Support Volunteers
These volunteers help provide support to those in areas where currently there is no local support group.

Adirondack Region (NY)
Support Contact: Wendy Faubert
Tel: (518) 566-1280
Email: AdirondackNY@sclerodermatristate.org

Central NY Region
Support Contact: Suzanne Craft
Tel: (315) 953-4011
Email: CentralNY@sclerodermatristate.org

Staten Island NY Region
Support Contact: Jeanne Ryan
Tel: (917) 531-6564
Email: StatenIslandNY@sclerodermatristate.org

Rochester, NY
Support Contact: Diane Reynolds
E-mail: ladydi2u1956@yahoo.com

Support Contact: Shaleeya McFadden
Email: shaleeyamcfadden@yahoo.com

Support Contact: Tracy Mieszczak
Email: TracyLynn407@yahoo.com

Support Contact: Mona Isler
Email: ramona918@gmail.com

2017 ScleroMen logo


ScleroMen Facebook Group

Because scleroderma manifests itself in a unique way in men, their issues and concerns are unique as well. This support system provides a means for men with scleroderma to connect with each other - share stories, seek advice and ask questions - in a caring and supportive environment. Join ScleroMen and become part of an understanding and educated group of men finding ways to deal with scleroderma and its complications. The ScleroMen Facebook page is closed, only men with scleroderma may join by request.

Co-Leaders: Andrew Botieri (508) 982-7523 and Lee Korotzer | ScleroMen@Sclerodermatristate.org

2017 Scleroderma Super Starz
Scleroderma Super Starz Facebook Group

Scleroderma Super Starz provides emotional and educational support to teens and young adults (13-40 years old) as well as their families & caregivers. The Super Starz will focus on sharing experiences and providing an opportunity to network, to post disease-related information, and share common concerns. This group will be a safe, non-judgmental forum for members to speak openly and share ideas for coping with the struggles faced by those with scleroderma in an environment of mutual support.

Leader: Amy Gietzen (716) 479-0756 | SuperStarz@Sclerodermatristate.org

Scleroderma Prime fb Group

Scleroderma Prime Facebook Group provides emotional and educational support to patients 50 years and up. Facebook groups will be safe, non-judgmental forums for members to speak openly and share ideas for coping with the struggles faced by those with scleroderma in an environment of mutual support.

Leader: Paulette Reed (716) 400-2197 | Prime@Sclerodermatristate.org

inspire logo

Inspire.com On-Line

Convenient for anyone that does not live near one of our group meeting places or cannot attend meetings. Here you can post general questions and share advice with others. Make a friend request to MBCady for personal replies.

Support Groups are so important because they keep us connected with those we serve. If you are interested in starting a new group in an area that is currently underserved, please call the Tri-State Chapter (800) 867-0885 or email mbbkadylak@sclerodermatristate.org. Thank you!