Ridgefield Park Walk 2016

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Join us October 28th and 29th for an educational and social event for patients and family.

Scleroderma doesn't limit itself to adults, many children also contract the autoimmune disease.

 kids

Friday night will feature a Halloween Costume Party, complete with prizes and fun for the whole family!

Saturday is a full day of workshops and activities for adults, young patients and even siblings! Juvenile scleroderma experts will lead educational sessions and group discussions.

Register now to reserve your spot, free-of-charge.

Visit the accommodations page to book your stay in the area.
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Why Not Plan to Stay the Weekend?

From Central Park to the top of the 911 Memorial & Museum there is something for everyone in NYC and fall is a great time to visit!

Click on this link https://www.newyorkpass.com/En/new-york-attractions/ for one of the helpful websites that will help you plan your trip while in the NYC area!

Click here to access the full brochure!

Call the TriState office to register for this event (800) 867-0885

 

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Schedule of Events

Friday, October 28th

Halloween Girl

Halloween Costume Party!

6:00 PM - 10:00 PM

Sky Ballroom at Hilton Hasbrouck Heights/Meadowlands

Event includes dinner buffet, DJ, photobooth, Halloween decorations and more!

Join us for a fun event which will encourage socialiation with other families affected by scleroderma.

Free for all family members and speakers attending the KGS2 event!


Saturday, October 29th

9:00am - Breakfast and Registration 

10:00am - Keynote Speaker: Chanel White, Patient and Blooger @ The Tube-Fed Wife

 

Break-Out - Adults Break-Out Teens 13-17 Break-Out Kids 5-12 Break Out - Siblings
10:30am

How We Treat Common Problems in Scleroderma

Speakers: Anne Stevens, MD, PhD & Suzanne Li, MD, PhD

Dealing with Scleroderma

Speaker: Kathryn Torok, MD

Let's Get Moving!

Facilitator: Kula for Karma

10:00am – 1:20pm

Facilitators: Norie Hubner, MSW, LCSW Marissa Veilleux, MA, CCLS

Open to siblings of children with special healthcare needs.

11:15am

What Do We Think Causes Scleroderma?

Speakers: Kathryn Torok, MD & Anne Stevens, MD, PhD

Yoga for Teen Warriors

Facilitator: Kula for Karma

How I Feel (Expressing Feelings)

Speakers: Erika Belli, BA, CCLS & Alissa Sandler, MSW, LCSW

12:00pm

Lunch is served!

12:50pm

What’s Happening in Juvenile Scleroderma Research

Speakers: Suzanne Li, MD, PhD & Theresa Lu, MD, PhD

Let’s Talk Food Choices / Open Discussion

Speakers: Lynda Rosini, MA, RDN, CNSC, CDE

 School and Friends

Speaker: Doreen Tabussi, MSN, APN, CPN

 Sibshops is a nationally-based program. Children have the opportunity to make new friends, play games, make crafts and share about themselves and their families in a safe and supportive environment.
1:20pm

Is There A “Best” Diet for Scleroderma?

Speaker: Lynda Rosini, MA, RDN, CNSC, CDE 

Managing Your Image and Coping with Scleroderma

Speakers: Alissa Sandler, MSW, LCSW & Chanel White

Arts and Crafts

Facilitators: HackensackUMC Child Care Center Staff
 

 
2:00pm

Break Time - Make Your Own Sundaes!

2:30pm

School Days - Managing Scleroderma

Speakers: Doreen Tabussi, MSN, APN, CPN & Chanel White

Taking Charge of Scleroderma - It's Empowering!

Speakers: Annamaria Pallante, MSW, LCSW & Chanel White

Movie Time and / or Arts & Crafts

Facilitators: HackensackUMC Child Care Center Staff

 
3:00pm

Meeting Round-Up and Establishing Support Systems

Speaker – Alissa Sandler, MSW, LCSW

Meeting Round-Up and Making Connections

Speakers: Annamaria Pallente, MSW, LCSW and Chanel White

Movie Time (cont.) and / or Arts and Crafts

Facilitators: HackensackUMC Child Care Center Staff

 
3:30pm

 Auditorium - Closing Remarks, Research Study Information and Evaluations

Click here to access the full brochure!

 
   

 

 

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Speakers

dr li
Suzanne C. Li, MD, PhD
Hackensack University Medical Center
Board Certifications: Pediatric Rheumatology, Pediatrics

dr stevens

Anne M. Stevens, MD, PhD

Seattle Children's Hospital - Rheumatoloy
Interim Chief, Rheumatology
Board Certifications: Pediatrics, Pediatric Rheumatology

dr torok  

Kathryn Seraphin Torok, MD

University of Pittsburgh School of Medicine
Board Certifications: Pediatrics, Pediatric Rheumatology 

dr lu

Theresa T. Lu, MD, PhD

Hospital for Special Surgery
Specialties: Pediatrics and Pediatric Rheumatology 


Doreen Tabussi, MSN, RN, CPN

Nurse Coordinator
Hackensack University Medical Center 

 

Lynda Rosini, MA, RD, CNSC, CDE

Therapeutic Dietician
Department of Nutrition and Food Management
Hackensack University Medical Center 

 

Annamaria Pallente, MSW, LCSW

Hackensack University Medical Center 
Joseph M. Sanzari Children's Hospital 

 

Alissa Sandler, MSW, LCSW

Hackensack University Medical Center 
Joseph M. Sanzari Children's Hospital 

 

Norie Hubner, LCSW

Hackensack University Medical Center  

 

Erika Belli, BA, CCLS

Child Life Specialist
Joseph M. Sanzari Children’s Hospital

 

Marissa Veilleux, BA, CCLS

Child Life Specialist 
Joseph M. Sanzari Children’s Hospital

chanel white 2

Chanel White

Keynote Speaker

Illness Blogger, Public Speaker, Support Group Leader,
Wife and Scleroderma Patient

Click here to access the full brochure!

 

KGS2 HeaderAccommodations 

A block of rooms has been reserved for the Kids Get Scleroderma Too! Conference at Hilton Hasbrouck Heights/Meadowlands!

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Hilton Hasbrouck Heights/Meadowlands
650 Terrace Avenue, Hasbrouck Heights, New Jersey, 07604

Room Rate is $119/night – this rate is good for Friday – Saturday and/or Saturday – Sunday

Shuttle Service provided from hotel to the conference and back.

Mention KGS2! Conference when you register over the phone at (201) 288-6100 or register online here: https://resweb.passkey.com/gokgst

Room Block Closes October 22, 2016