EOY 2018 Awareness items

Awareness Items are great gifts!
(800) 867-0885

Call the Tri-State office to order awareness items for your friends and family. Start the new year out spreading awareness of scleroderma!

2019 Walk season teaser slider

Walks are now LIVE!

2019 Stepping Out to Cure Scleroderma websites are now live! Set your goals and start building your teams today!

 

DSC_0322.JPG

Find support that fits your lifestyle

Visit our support group web-page here  If you don’t find a support group to fit your lifestyle, consider starting one yourself!  We will help you all the way!

imageJQR-1.jpg

SclerodermaVideo.com

Whether you are a patient, caregiver, family member, or medical professional, SclerodermaVideo.com is an invaluable resource! 

Sign-up for Updates

Please leave this field empty

 2017 UnTeal There's A Cure _ square_button

2017 UnTeal There's A Cure _ ITEMS

Tri-State EDU LOGO

Missed an Educational Forum? You can still hear from the scleroderma experts.
The Tri-State Chapter offers an extensive resource library at www.SclerodermaVideo.com

Scleroderma: The Truth

This short film will help people better understand Scleroderma. Share it with friends and family.

Scleroderma: The Truth

 

About Us

Board of Directors 
Officers
Marc Krieger, President 
Rosemary Markoff, Treasurer 
Marilyn Sibley, Secretary

Members 
Suzy Ballantyne

Mary Contadino 
Carla Gage 
Estelle Randolph
Jonathan Schorr
Frederick Shaw 
Jeffery Toromoreno 

Founders 
Mark and Helene Flapan

Medical Advisory Board Chair
Robert Spiera, M.D. 

Members
Elana Bernstein, M.D.
Howard Blumstein, M.D. 

Avram Goldberg, M.D. 
Jessica Gordon, M.D. 
Barry L. Gruber, M.D. 
Charles P. Melone, Jr., M.D. 
Maria Luisa Padilla, M.D.  
Lee Shapiro, M.D.

Honorary Member
Harry Spiera, M.D.

 

Contact Information

Bruce R. Cowan, Executive Director
bcowan@sclerodermatristate.org


Scleroderma Foundation Tri-State, Inc. Chapter
59 Front Street
Binghamton, NY 13905
Phone: 607-723-2239
Toll-free: 800-867-0885
Fax: 607-723-2039

Staff 

Candice Snider, Operations Specialist
csnider@sclerodermatristate.org

 

 

Tri-State Chapter

Welcome to the Scleroderma Foundation Tri-State Chapter website. We serve the states of New York, New Jersey, and Connecticut.

"Life is a journey, not a destination."  Ralph Waldo Emerson

Why Are We Here?

Ignorance is not bliss when dealing with scleroderma! For most of us when we became ill, there was little or no real information that we could explore to ease our anxiety or educate ourselves. We had never heard of scleroderma and there were few in the medical community who knew much about it or how to treat us. Most of us felt scared, isolated, and totally in the dark.

Who Are We?

We are men and women who happen to have scleroderma and live in New York, New Jersey, or Connecticut. Thousands of people live with scleroderma. Most of us, perhaps just like you, have found the world of scleroderma to be strange, and at times, scary. We have a vast array of medical problems due to scleroderma, and varying degrees of life experience dealing with those problems. Some of us are new to this world; others have been living with scleroderma in one form or another for 5, 10, 20, 30, 40, and yes, even 50 years or more. We are here for each other and for you.

Our Mission

The mission of the Scleroderma Foundation Tri-State Chapter is threefold:

  • To provide educational and emotional support to people with scleroderma and their families;
  • To stimulate and support research designed to identify the cause and cure of scleroderma as well as improve methods of treatment and;
  • To enhance the public’s awareness of this disease.

 

 

 

Events

2019 Walk season teaser header

Web pages are now live!

2019 Stepping Out to Cure Scleroderma events are just around the corner. Set your goals and start forming your teams today.

Find out how to stay involved by emailing us now.

Walk Location Date Registration Walk
Albany  Crossgates Mall June 2 6:30 p.m. 7:30 p.m.
Binghamton Otsiningo Park June 2 9:00 a.m. 10:00 a.m.
Hartford Enfield Town Green June 29 9:00 a.m. 10:30 a.m.
Long Island Wantagh Park June 23 9:00 a.m. 10:30 a.m.
Manhattan Riverside Park at 96th St. June 9 9:00 a.m. 10:15 a.m.
Poughkeepsie Tenative TBD 9:00 a.m. 10:15 a.m.
Ridgefield Park Overpeck Park June 8 9:00 a.m. 10:30 a.m.
Rochester Seneca Park June 1 9:00 a.m. 10:00 a.m.
Westchester Waterfront Park June 23 9:00 a.m. 10:30 a.m.

 

 

National Sponsors

Actelion, a Janssen Pharmaceutical company of Johnson & Johnson          Boehringer Ingelheim          Bayer          Reata Pharmaceuticals

Chapter Sponsors
     
Bethpage_logo
arizona tea crane foundation

Fenti_logo