Support Group 7-22-15

Find Support in Your Area

Is there a group in your community?  Visit our support group web-page here  If you don’t find one close to you, consider starting one yourself!  We will help you all the way!

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Stepping Out to Cure Scleroderma 2016!

Thank you for your support this season! We had another great year!. Click here for a list of walks and more information.

 

Educate Yourself

Find streaming videos of our educational programs all in one place. Sclerodermavideo.com

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Would you like to hear from scleroderma experts?

We have several educational forums planned for the upcoming year. 

Check out our Upcoming Events tab for more information.

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Stepping Out to Cure Scleroderma 

Thank you for a great walk season! We couldn't have done it without your support. For updated walk totals, click here.

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Chapter Support Group Meetings
Click here for more information

 News

 News

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What is scleroderma?
View videos at sclerodermavideo.com
Latest Scleroderma Exchange Newsletter

 

About Us

Board of Directors 

Officers

Bruce Cowan, President
Marc Krieger, Vice President 
Rosemary Markoff, Treasurer 
Marilyn Sibley, Secretary

Members 
Suzy Ballantyne
Mary Contadino 
Carla Gage 
Estelle Randolph
Frederick Shaw 
Debra Signorelli 
Jeffery Toromoreno 

Founders 
Mark and Helene Flapan

Board Emeritus
Gerold Kirschner 

Medical Advisory Board 
Co-Chairs

Harry Spiera, M.D. 
Robert Spiera, M.D. 

Members
Howard Blumstein, M.D. 
Avram Goldberg, M.D. 
Jessica Gordon, M.D. 
Barry L. Gruber, M.D. 
Charles P. Melone, Jr., M.D. 
Maria Luisa Padilla, M.D.  
Lee Shapiro, M.D.

 

Contact Information

Chapter Contacts
Jay Peak, Executive Director -jpeak@sclerodermatristate.org

SF Tri-State, Inc. Chapter
59 Front Street
Binghamton, NY 13905
Phone: 607-723-2239
Toll-free Phone: 800-867-0885
Fax: 607-723-2039

Staff 
Jay Peak, Executive Director 
jpeak@sclerodermatristate.org
Alex Matich, Director of Development 
amatich@sclerodermatristate.org
Mary Beth Bobik Kadylak, Director of Patient Education & Support 
mbbkadylak@sclerodermatristate.org
Cassaundra Conant, Communications Manager
cconant@sclerodermatristate.org
Mallory Evans, Fundraising Manager
mevans@sclerodermatristate.org
Candice Snider, Operations Specialist
csnider@sclerodermatristate.org 
Marissa Derrick, Program Coordinator
mderrick@sclerodermatristate.org  


2015 Financial Information

2015 Scleroderma Foundation, Tri-State Chapter Audited Financials

2015 IRS Form 990

2014 Financial Information

2014 Scleroderma Foundation, Tri-State Chapter Audited Financials

2014 IRS Form 990

 

 

Tri-State Chapter

Welcome to the Scleroderma Foundation Tri-State Chapter website. We serve the states of New York, New Jersey and Connecticut.

"Life is a journey, not a destination."  Ralph Waldo Emerson

Why Are We Here?

Ignorance is not bliss when dealing with scleroderma! For most of us when we became ill, there was little or no real information that we could explore to ease our anxiety or educate ourselves. We had never heard of scleroderma and there were few in the medical community who knew much about it or how to treat us. Most of us felt scared, isolated, and totally in the dark.

Who Are We?

We are men and women who happen to have scleroderma and live in New York, New Jersey, or Connecticut. Thousands of people live with scleroderma. Most of us, perhaps just like you, have found the world of scleroderma to be strange, and at times, scary. We have a vast array of medical problems due to scleroderma, and varying degrees of life experience dealing with those problems. Some of us are new to this world; others have been living with scleroderma in one form or another for 5, 10, 20, 30, 40, and yes, even 50 years or more. We are here for each other and for you.

Our Mission

The mission of the Scleroderma Foundation/Tri-State, Inc. Chapter is three fold:

  • To provide educational and emotional support to people with scleroderma and their families;
  • To stimulate and support research designed to identify the cause and cure of scleroderma as well as improve methods of treatment and;
  • To enhance the public’s awareness of this disease.

 

 

 

Events

Educational and Research Forums 2016

Date                        

Location

April 24, 2016
 Hospital for Special Surgery
 535 East 70th Street
 New York, NY 10021
 Richard L. Menschel Education Center
 Second Floor 
 May 15, 2016    Stony Brook University Hospital
 101 Nicols Rd
 Stony Brook, NY 11794
 Lobby Conference Room 
September 10, 2016          The Bone & Joint Center
 1367 Washington Ave
 Albany, NY 12206
October 8, 2016  Location To be Determined
 Rochester, NY 
October 16, 2016  Rutgers University Student Center
 126 College Avenue
 New Brunswick, NJ 08901
 Graduate Student Lounge 
October 29, 2016  Juvenile Scleroderma Forum
 Hackensack University Medical Center
 30 Prospect Ave
 Hackensack, NJ 07601 
November 20, 2016
 Research Forum
 Hospital for Special Surgery
 535 East 70th Street
 New York, NY 10021
 Richard L. Menschel Education Center
 Second Floor 

 

stationery graphic 3 2016

2016 Stepping Out to Cure Scleroderma

Walk Location Date  Registration Walk
Albany Crossgates Mall June 5   6:30 pm 7:30 pm 
Binghamton Otsiningo Park June 5    9:00 am 10:00 am
Buffalo Eastern Hills Mall June 4   10:00 am 11:00 am 
Hartford West Hartford Town Hall June 11   9:00 am 10:30 am 
Long Island Wantagh Park June 5   9:00 am 10:30 am 
Manhattan Riverside Park at 96th St June 12   9:00 am 10:15 am
Poughkeepsie Vassar College June 25   9:00 am 10:15 am
Ridgefield Park   Overpeck Park  June 19   9:00 am 10:30 am 
Rochester Seneca Park June 4   9:00 am 10:00 am
Stamford Westhill High School June 19   9:00 am 10:00 am 
Staten Island Franklin D. Roosevelt Boardwalk & Beach June 26   9:00 am 10:30 am
Syracuse Onondaga Lake Park June 12   9:00 am 10:00 am 
Westchester Irvington Union Free High School   June 12   9:00 am 10:30 am 

 

 

 



  

 

 




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