About Us

Board of Directors 

Officers
Marc Krieger, President 
Rosemary Markoff, Treasurer 
Marilyn Sibley, Secretary

Members 
Suzy Ballantyne
Mary Contadino 
Carla Gage 
Estelle Randolph
Frederick Shaw 
Jeffery Toromoreno 

Founders 
Mark and Helene Flapan

Medical Advisory Board 

Co-Chairs
Harry Spiera, M.D. 
Robert Spiera, M.D. 

Members
Howard Blumstein, M.D. 
Avram Goldberg, M.D. 
Jessica Gordon, M.D. 
Barry L. Gruber, M.D. 
Charles P. Melone, Jr., M.D. 
Maria Luisa Padilla, M.D.  
Lee Shapiro, M.D.

Contact Information

Bruce R. Cowan, Executive Director -bcowan@sclerodermatristate.org

Scleroderma Foundation Tri-State, Inc. Chapter
59 Front Street
Binghamton, NY 13905
Phone: 607-723-2239
Toll-free Phone: 800-867-0885
Fax: 607-723-2039

Staff 

Mary Beth Bobik Kadylak, Director of Patient Education & Support 
mbbkadylak@sclerodermatristate.org

Marylouise Doyle, Communications Manager
mdoyle@sclerodermatristate.org

Fundraising Managers:
Mallory Evans, mevans@sclerodermatristate.org 
Kyle Mills, kmills@sclerodermatristate.org

Candice Snider, Operations Specialist
csnider@sclerodermatristate.org 

2015 Financial Information

2015 Scleroderma Foundation, Tri-State Chapter Audited Financials

2015 IRS Form 990

Tri-State Chapter

Welcome to the Scleroderma Foundation Tri-State Chapter website. We serve the states of New York, New Jersey, and Connecticut.

"Life is a journey, not a destination."  Ralph Waldo Emerson

Why Are We Here?

Ignorance is not bliss when dealing with scleroderma! For most of us when we became ill, there was little or no real information that we could explore to ease our anxiety or educate ourselves. We had never heard of scleroderma and there were few in the medical community who knew much about it or how to treat us. Most of us felt scared, isolated, and totally in the dark.

Who Are We?

We are men and women who happen to have scleroderma and live in New York, New Jersey, or Connecticut. Thousands of people live with scleroderma. Most of us, perhaps just like you, have found the world of scleroderma to be strange, and at times, scary. We have a vast array of medical problems due to scleroderma, and varying degrees of life experience dealing with those problems. Some of us are new to this world; others have been living with scleroderma in one form or another for 5, 10, 20, 30, 40, and yes, even 50 years or more. We are here for each other and for you.

Our Mission

The mission of the Scleroderma Foundation/Tri-State, Inc. Chapter is threefold:

• To provide educational and emotional support to people with scleroderma and their families;

• To stimulate and support research designed to identify the cause and cure of scleroderma as well as improve methods of treatment and;

• To enhance the public’s awareness of this disease.

2017 Stepping Out to Cure Scleroderma

Businesses and corporations that are interested in becoming sponsors for this event, please
contact our Fundraising Manager, Kyle Mills at KMills@SclerodermaTriState.org
or 800-867-0885 

2017 Educational and Research Forums

National Gold Sponsor

National Bronze Sponsor / Conference Platinum Sponsor

National Silver Sponsor

National Bronze Sponsor