Educate yourself

Find streaming videos of our educational programs all in one place. Sclerodermavideo.com

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Scleroderma Exchange

Find the latest version of Tri-State's quarterly newsletter here

Hard Word. Harder Disease

Hard word. Harder disease.

Learn more at hardword.org

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Chapter Support Group Meetings

Click here for more information

 

 

 

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Advocacy

Research and Awareness Bills have been introduced in both the House (HR 1429) and Senate (S 1239) 

We need your voice contact your Congressional leaders today.
Find out what you can do now
See photos of Capital Hill Day 2013


Stepping Out 2014

Stepping Out to Cure Scleroderma 2014

Thank You for your Support! 
Find your walk photos here

Have walk photos? 
Send them to us here  

 


News

 News

What is scleroderma?
View videos at sclerodermavideo.com
Newsletter Vol. 2 2014

About Us

Contact Information

Chapter Contacts
Jay Peak, Executive Director -jpeak@sclerodermatristate.org

SF Tri-State, Inc. Chapter
59 Front Street
Binghamton, NY 13905
Phone: 607-723-2239
Toll-free Phone: 800-867-0885
Fax: 607-723-2039

Staff 
Jay Peak, Executive Director 
jpeak@sclerodermatristate.org
Alex Matich, Director of Development 
amatich@sclerodermatristate.org
Mary Beth Bobik Kadylak, Director of Patient Education & Support 
mbbkadylak@sclerodermatristate.org
Jocelyn Bailey
Communications Manager
jbailey@sclerodermatristate.org


2013 Financial Information

2013 Scleroderma Foundation, Tri-State Chapter Audited Financials

2013 IRS Form 990

2012 Financial Information

2012 Annual Report

2012 Scleroderma Foundation, Tri-State Chapter Audited Financials

2012 IRS Form 990

Board of Directors

Officers

Jeff Mace, Co-President
Bruce Cowan, Co-President
Marc Krieger, Vice President 
Rosemary Markoff, Treasurer 
June Bender, Secretary


Members
Suzy Ballantyne
Maryann Caliri
Emily Chillino
Gerry Kirschner
Estelle Randolph
Fred Shaw 
Marilyn Sibley
Debra Signorelli 

Founders
Mark and Helene Flapan

 

Medical Advisory Board
Co-Chairs

Harry Spiera, M.D.
Robert Spiera, M.D.
Members
Howard Blumstein, M.D.
Avram Goldberg, M.D.
Jessica Gordon, M.D.
Barry L. Gruber, M.D.
Charles P. Melone, Jr., M.D.
Maria Luisa Padilla, M.D.
Naomi F. Rothfield, M.D.
Lee Shapiro, M.D.

Tri-State Chapter

Welcome to the Scleroderma Foundation Tri-State Chapter website. We serve the states of New York, New Jersey and Connecticut.

"Life is a journey, not a destination."  Ralph Waldo Emerson

Why Are We Here?

Ignorance is not bliss when dealing with scleroderma! For most of us when we became ill, there was little or no real information that we could explore to ease our anxiety or educate ourselves. We had never heard of scleroderma and there were few in the medical community who knew much about it or how to treat us. Most of us felt scared, isolated, and totally in the dark.

Who Are We?

We are men and women who happen to have scleroderma and live in New York, New Jersey, or Connecticut. Thousands of people live with scleroderma. Most of us, perhaps just like you, have found the world of scleroderma to be strange, and at times, scary. We have a vast array of medical problems due to scleroderma, and varying degrees of life experience dealing with those problems. Some of us are new to this world; others have been living with scleroderma in one form or another for 5, 10, 20, 30, 40, and yes, even 50 years or more. We are here for each other and for you.

Our Mission

The mission of the Scleroderma Foundation/Tri-State, Inc. Chapter is three fold:

  • To provide educational and emotional support to people with scleroderma and their families;
  • To stimulate and support research designed to identify the cause and cure of scleroderma as well as improve methods of treatment and;
  • To enhance the public’s awareness of this disease.

 

 

 

Events

 

Educational and Research Forums 2014

Date

Location

April 12, 2014 Hospital for Special Surgery
535 E 70th St. New York, NY 10021
Register Here 
May 4, 2014

Stony Brook University Charles B. Wang Center
100 Nicolls Rd, Suite 302 Stony Brook, NY 11794
Register Here

June 6, 2014  Yale University
141 Frontage Rd., Bldg. B25 Orange, CT 06477
Register Here 
August 9, 2014

Niagara Falls Memorial Hospital 
621 10th St, Niagara Falls, NY 14301
Register Here 

September 13, 2014
The Bone & Joint Center  
1367 Washington Avenue, Albany, NY 12206 
Register Here
September 27, 2014 Norwich, CT
Location TBD
Register Here

October 11, 2014 African American Health Awareness Day
Rochester Airport Marriott
1890 Ridge Rd. W Rochester, NY 14615
Register Here
October 25, 2014 Rutger’s University
56 College Ave New Brunswick, New Jersey
Register Here 
November 23, 2014 HSS Research Forum
Hospital for Special Surgery
535 E 70th St. New York, NY 10021
Register Here 

 

Stepping Out 2014

2013 Stepping Out to Cure Scleroderma

Walk Location Date  
Albany  Crossgates Mall  June 1 Thank you for your support!  
Binghamton  Otsiningo Park June 1  Thank you for your support!
Buffalo  Eastern Hills Mall  June 21 Thank you for your support!  
Hartford  Blue Back Square  June 14 Thank you for your support!  
Long Island  Wantagh Park  June 1 Thank you for your support!  
Manhattan  Riverside Park at 96th St  June 15 Thank you for your support!
Plattsburgh  Beekmantown Town Hall Park  June 8 Thank you for your support!  
Poughkeepsie  Vassar College  June 21 Thank you for your support!
Ridgefield Park  Overpeck Park   June 8 Thank you for your support!  
Rochester  Seneca Park  June 7 Thank you for your support!
Stamford  Westhill High School  June 22 Thank you for your support!  
Syracuse  Onondaga Lake Park  June 8 Thank you for your support!  

 

 

 



  

 

 




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