About Us

Contact Information

Chapter Contacts
Jay Peak, Executive Director -jpeak@sclerodermatristate.org

SF Tri-State, Inc. Chapter
59 Front Street
Binghamton, NY 13905
Phone: 607-723-2239
Toll-free Phone: 800-867-0885
Fax: 607-723-2039

Staff 
Jay Peak, Executive Director 
jpeak@sclerodermatristate.org
Alex Matich, Director of Development 
amatich@sclerodermatristate.org
Mary Beth Bobik Kadylak, Director of Patient Education & Support 
mbbkadylak@sclerodermatristate.org
Jocelyn Bailey
Communications Manager
jbailey@sclerodermatristate.org

2013 Financial Information

2013 Scleroderma Foundation, Tri-State Chapter Audited Financials

2013 IRS Form 990

2012 Financial Information

2012 Annual Report

2012 Scleroderma Foundation, Tri-State Chapter Audited Financials

2012 IRS Form 990

Board of Directors

Officers
Jeff Mace, Co-President
Bruce Cowan, Co-President
Marc Krieger, Vice President 
Rosemary Markoff, Treasurer 
June Bender, Secretary

Members
Suzy Ballantyne
Maryann Caliri
Emily Chillino
Gerry Kirschner
Estelle Randolph
Fred Shaw 
Marilyn Sibley
Debra Signorelli 

Founders
Mark and Helene Flapan

Medical Advisory Board
Co-Chairs
Harry Spiera, M.D.
Robert Spiera, M.D.
Members
Howard Blumstein, M.D.
Avram Goldberg, M.D.
Jessica Gordon, M.D.
Barry L. Gruber, M.D.
Charles P. Melone, Jr., M.D.
Maria Luisa Padilla, M.D.
Naomi F. Rothfield, M.D.
Lee Shapiro, M.D.

Tri-State Chapter

Welcome to the Scleroderma Foundation Tri-State Chapter website. We serve the states of New York, New Jersey and Connecticut.

"Life is a journey, not a destination."  Ralph Waldo Emerson

Why Are We Here?

Ignorance is not bliss when dealing with scleroderma! For most of us when we became ill, there was little or no real information that we could explore to ease our anxiety or educate ourselves. We had never heard of scleroderma and there were few in the medical community who knew much about it or how to treat us. Most of us felt scared, isolated, and totally in the dark.

Who Are We?

We are men and women who happen to have scleroderma and live in New York, New Jersey, or Connecticut. Thousands of people live with scleroderma. Most of us, perhaps just like you, have found the world of scleroderma to be strange, and at times, scary. We have a vast array of medical problems due to scleroderma, and varying degrees of life experience dealing with those problems. Some of us are new to this world; others have been living with scleroderma in one form or another for 5, 10, 20, 30, 40, and yes, even 50 years or more. We are here for each other and for you.

Our Mission

The mission of the Scleroderma Foundation/Tri-State, Inc. Chapter is three fold:

• To provide educational and emotional support to people with scleroderma and their families;

• To stimulate and support research designed to identify the cause and cure of scleroderma as well as improve methods of treatment and;

• To enhance the public’s awareness of this disease.

Educational and Research Forums 2014

2013 Stepping Out to Cure Scleroderma