Stepping Out 2014

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News

What is Scleroderma?

Get more information on Scleroderma and what the Tri-State Chapter along with the  National Foundation are doing to get closer to a cure. 

Advocacy

To get the House of Representatives and Senate versions of the Scleroderma Research and Awareness Act passed, more co-sponsors are needed! Every voice from congress is a voice for change. 

Who do you know that can call or write their Representative or Senator?
Brother, Friend, Mother, Boss, Golf Buddy?
Find contact information here for your elected officials and information on the Scleroderma Research and Awareness Act.

2014 Scleroderma Educational Forums

Tri-State Scleroderma Educational Forums (see Calendar listings) are designed to provide updates on scleroderma related research and educational support for the treatment and management of scleroderma to people with scleroderma, family members and caregivers.  The educational component is also of value to medical professionals toward their understanding of the disease and best practices.

All forums are free to the public. Call (800) 867-0885 or email mbbkadylak@scleroderma.org to register for a forum.

Watch our 10 minute video "Living with Scleroderma

What is it like living with scleroderma? This video takes a look at some of the struggles that patients face when dealing with this life altering autoimmune disease. The video features actor, Jason Alexander; Football Hall of Famer, Barry Sanders; Actor and Comedian, Mark Teich; Author and Personality, Mitch Albom, and scleroderma patients... sharing their stories on how scleroderma has deeply affected their lives. For more information or to order a copy of this video (or PSA), contact the Scleroderma Foundation Tri-State Chapter at sdtristate@scleroderma.org.

 

See Our 2013 Stepping Out To Cure Scleroderma Pictures

Now on Flickr

2013 Stepping Out To Cure Scleroderma walk video slideshows

Check out our 12 walk videos featuring the volunteers, sponsors and walkers that made this year's Stepping Out to Cure Scleroderma effort a resounding success!

Scleroderma Exchange Newsletter

Scleroderma Exchange Volume 4 (PDF)

Scleroderma Exchange Volume 3 (PDF)

Scleroderma Exchange Volume 2  (PDF)

Scleroderma Exchange Volume 1  (PDF)

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