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SAVE THE DATE

SATURDAY, FEBRUARY 16, 2019
Stepping out to Cure Scleroderma is the Scleroderma Foundations's signature fundraising event.

Each year, this event helps raise important funds to find the cause and cure for scleroderma, and provide the necessary support resources and free educational forums for patients and families.

Join us and help support the cause! Create your own fundraising page and encourage your family, friends and coworkers to support your goal.

 
Tradewinds Park, Coconut Creek, FL. Stay Tuned

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HNHR

How I Learned to Love the Tough Skin I'm In
By Jessica Massengale

It’s amazing to watch yourself change, as the years go on. The outcome of change can be immensely rewarding when you’re forced to change. Sometimes in life we’re catapulted into situations that break us down, literally, and while picking up the pieces to put ourselves back together, we discover this streaming river of strength that runs within us. I was catapulted into a raging bullpen of an incurable disease called scleroderma at the young age of 22. The past 8 years haven't been easy, but sometimes life breaks us open to the raw bitter core of our soul, to help us realize the real purpose of living.

Read Complete Article HERE

Sclero Strong

 


 

2017 Voice Fall Cover

PAH in Systemic Sclerosis

Learn More in a Special Section in the Upcoming Issue of the Scleroderma Voice

Pulmonary arterial hypertension (PAH) is a serious but rare condition that develops in approximately 8% to 12% of patients with systemic sclerosis. Learn more about risk factors, screening tests, and treatment options for PAH in a special section of the Scleroderma Voicemagazine, the member magazine of the Scleroderma Foundation. The special section also includes a tear-out questionnaire to share with your physician. The next issue of the Voice is coming to your mail box in early October. If you don’t receive the Voice, click HERE to become a Scleroderma Foundation member or renew your annual membership. 


Social media outlets such as the immensely poplar Facebook can often serve as an important communications tool for Scleroderma sufferers and supporters alike. We'll continue to update our website with timely information, but Facebook allows for a more interactive experience while you keep in touch with family, friends and other Scleroderma Chapters across the country.
www.facebook.com/SclerodermaSEFla

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