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HNHR

How I Learned to Love the Tough Skin I'm In
By Jessica Massengale

It’s amazing to watch yourself change, as the years go on. The outcome of change can be immensely rewarding when you’re forced to change. Sometimes in life we’re catapulted into situations that break us down, literally, and while picking up the pieces to put ourselves back together, we discover this streaming river of strength that runs within us. I was catapulted into a raging bullpen of an incurable disease called scleroderma at the young age of 22. The past 8 years haven't been easy, but sometimes life breaks us open to the raw bitter core of our soul, to help us realize the real purpose of living.

Read Complete Article HERE

Sclero Strong

 

walk_2018sm.jpg

Click image above to attend & donate.

STEPPING OUT TO CURE SCLERODERMA
Jan. 27, 2018, Tradewinds Park

Stepping Out to Cure Scleroderma is a great way to raise funds for research while enjoying an event with new friends and old for a GREAT cause! 

Join us and please help us seek the cure! Create your own fundraising page and encourage your network to help you. It is very easy to share on Facebook and Twitter, too!

Be a part of the Foundation’s success in funding the cure. Generous donors and participants like you are moving us forward to the CURE for scleroderma.


 


 

2017 Voice Fall Cover

PAH in Systemic Sclerosis

Learn More in a Special Section in the Upcoming Issue of the Scleroderma Voice

Pulmonary arterial hypertension (PAH) is a serious but rare condition that develops in approximately 8% to 12% of patients with systemic sclerosis. Learn more about risk factors, screening tests, and treatment options for PAH in a special section of the Scleroderma Voicemagazine, the member magazine of the Scleroderma Foundation. The special section also includes a tear-out questionnaire to share with your physician. The next issue of the Voice is coming to your mail box in early October. If you don’t receive the Voice, click HERE to become a Scleroderma Foundation member or renew your annual membership. 

GREAT WEEKEND ~ GREAT WEATHER ~ GREAT WALK
Hundreds of people gathered, thousands were raised and it all starts with one. Me, you.....

"I would like to emphasize the importance of supporting research, the lack of funding hinders research progress and delays the identification of the cause and cure for scleroderma. 
Thus, it is critical to support research via organizations that promote peer-reviewed research, such as the Scleroderma Foundation, to increase awareness about the importance of research and advocate for increased National Institutes of Health funding." Dr. Carol Feghali-Bostwick  

Read more about Dr. Feghali-Bostwick's work HERE

See Photos Here

Stepping Out To Cure Scleroderma
Another Picture Perfect Saturday in Coconut Creek 

Saturday, January 30, 2016: This annual opportunity to get much needed funds for research to find the cause and cure of Scleroderma raised over $38,000. It helps our chapter provide the necessary support resources and free educational forums for patients and families. Click the image at Left to view photos from the Walk and see if you can spot your team.

 


Laugh Out Loud

Laughing Out Loud  For Scleroderma
A Smashing Success 

A private comedy performance with cocktails and hors d'oeuvres featuring nationally acclaimed comedian, Dom Irrera along with
Special Guest Jason Alexander. Click image at Left to view photos
from the event and view the sponsors who generously helped in
setting up the unforgettable evening. 

Social media outlets such as the immensely poplar Facebook can often serve as an important communications tool for Scleroderma sufferers and supporters alike. We'll continue to update our website with timely information, but Facebook allows for a more interactive experience while you keep in touch with family, friends and other Scleroderma Chapters across the country.
www.facebook.com/SclerodermaSEFla

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