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Patient Education Day

21st Scleroderma PED is scheduled for
Saturday, June 2, 2018 from 10:30AM - 2PM

Our presenters are Dr. Virginia Steen, Melanie McMillion and Jessica Massengale.
Dr. Steen is a rheumatologist who has made numerous contributions to understanding 
the epidemiology and natural history of Systemic Scleroderma.
Melanie McMillion and Jessica Massengale will be discussing psychological aspects and helpful strategies of living and caring for someone with a chronic illness and their cargivers.
 

Marriott Pompano Beach
Resort & Spa
1200 Ocean Boulevard
Pompano Beach FL 33062

REGISTER HERE

For further information please contact Ferne Robin: 954-798-1854 or email sclerowhat@gmail.com

Saturday, January 27, 2018
$36,000 Raised

Thanks to all of our teams, large and small, new and old, and our amazing volunteers, sponsors and board members for supporting our incredible scleroderma community.
It was a great day!


Stepping Out To Cure Scleroderma


2017 Fundraising Walk

PHOTOS FROM THE WALK POSTED HERE

GREAT WEEKEND ~ GREAT WEATHER ~ GREAT WALK
Hundreds of people gathered, thousands were raised and it all starts with one. Me, You.....

 "I would like to emphasize the importance of supporting research, the lack of funding hinders research progress and delays the identification of the cause and cure for scleroderma. 
Thus, it is critical to support research via organizations that promote peer-reviewed research, such as the Scleroderma Foundation, to increase awareness about the importance of research and advocate for increased National Institutes of Health funding." Dr. Carol Feghali-Bostwick  

Read more about Dr. Feghali-Bostwick's work HERE


See Photos Here

Stepping Out To Cure Scleroderma
Another Picture Perfect Saturday in Coconut Creek 

Saturday, January 30, 2016: This annual opportunity to get much needed funds for research to find the cause and cure of Scleroderma raised over $38,000. It helps our chapter provide the necessary support resources and free educational forums for patients and families. Click the image at Left to view photos from the Walk and see if you can spot your team.

 


Laugh Out Loud

Laughing Out Loud  For Scleroderma
A Smashing Success 

A private comedy performance with cocktails and hors d'oeuvres featuring nationally acclaimed comedian, Dom Irrera along with
Special Guest Jason Alexander. Click image at Left to view photos
from the event and view the sponsors who generously helped in
setting up the unforgettable evening. 

Social media outlets such as the immensely poplar Facebook can often serve as an important communications tool for Scleroderma sufferers and supporters alike. We'll continue to update our website with timely information, but Facebook allows for a more interactive experience while you keep in touch with family, friends and other Scleroderma Chapters across the country.
www.facebook.com/SclerodermaSEFla

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