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Southern California Support Groups

 

Support Groups provide a forum to share feelings, concerns, information, as well as a place to offer peer support and encouragement. Solicitations or research projects are not conducted at support group meetings.

Support groups often feature speakers specializing in scleroderma or related topics. To find out information about upcoming speakers or meeting topics, please contact the support group leader or chapter office.

These schedules are subject to change. Before attending a group for the first time, please call to verify date and time. Groups are free of charge and open to everyone, including patients, caregivers, family and friends.

Click a link to jump below to view more information about one or our support groups:

Bakersfield/Kern County | Camarillo/Ventura County | Central Coast | Crescenta Valley/Pasadena
Imperial County/El Centro | Inland Empire/San Bernardino | Los Angeles | Orange County
Palm Desert | San Diego/Encinitas | San Diego/Mission Valley | San Fernando Valley/Sherman Oaks
Santa Barbara | Whittier/San Gabriel | San Gabriel Valley

Support Group Announcements and Updates

Please visit our Facebook page for announcements, changes, alerts, etc. www.facebook.com/sclerodermasocal


Bakersfield
Kern County Support Group

Meetings are on Saturdays, 10:00am to 12:00pm, Every other Month (no meeting in July)

Location: The Office of Timothy M. Osborn at: 2200 Truxtun Ave, Bakersfield, CA 93301

Contact: Stephen Elrod
Phone: 661-201-1759
Email: stephenelrod168@yahoo.com

 

2019 Schedule:
Jan12
Mar 23 -Speaker - Andrew Emmett, Executive Director of the Southern California Scleroderma Foundation, and Tina Burger, our Patient Services Director, return to share the results of their 2018 support group visits and the ideas that grew from it. Come hear their vision and goals and give them our ideas about how THEY can help YOU! 

May 18
Jul 27
Sep 7
Nov 9

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Camarillo/Ventura County
Ventura County Support Group
Saturday, 10:00am to 12:00pm. 
Location: ACE Charter High School (at Camarillo Airport)
570 Airport Way
Camarillo, CA 93010

Contact: Robin D'Angelo
Phone: 805-701-9467
Email: robind318@gmail.com

or

Contact: Arline Wetter
Phone: 805-987-8236
Email: ajwetter@msn.com 

 

2019 Schedule:
Jan 12 - Speaker- Andrew Emmett, Executive Director of the Southern California Scleroderma Foundation, and Tina Burger, our Patient Services Director, return to share the results of their 2018 support group visits and the ideas that grew from it. Come hear their vision and goals and give them our ideas about how THEY can help YOU!

Mar 9 - Santa Barbara Stepping Out To Cure Scleroderma
May 11
Sep 14
Nov 9

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Central Coast 
Central Coast Support Group (Servicing Northern Santa Barbara and San Luis Obispo County) 
Saturday, 11 am to 1 pm -Every other Month-
Location: Saint John's Lutheran Church
959 Valley Rd, Arroyo Grande, CA                                                                                                                    

Contact: Jennifer Wood     
Phone: 805-878-6261
Email: sclerodermawarrior2021@yahoo.com                                                                                                                                              
or
Contact: Pat Muran  ( Habla Español)     
Phone: 805-459-2362
Email: pat.ccssg@gmail.com 

2019 Schedule:
Mar 16 - Terri Bledsoe, MSCC will be discussing "How to Cope With Living With a Chronic Disease". 

May 18 - Keith Harband from NewEnamel will educate us on "Your Teeth and and Auto-immune Disease: Where dry mouth results in significant, on-going decay issues and what you can do to treat these symptoms effectively".

Sep 21
Nov 16 


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Crescenta Valley/Pasadena
Crescenta Valley Support Group                                                           
Saturday, 10 am to 12pm  (see schedule below)                                                                   
Location: USC Verdugo Hills Hospital, 1812 Verdugo Blvd, Glendale, CA, 91208         
Council Room C/D, 4th floor, behind the gift shop  

The hospital is on a hill. Drive up hill from traffic light entrance, past the Emergency, go up hill a small way and turn
right into public parking lot. Enter from parking level. You will be on the 4 th floor. Go past reception. Room in corridor
on the right.

Contact: Alejandra Serrano
Phone: 213-245-7439
Email: sclerowarrior18@gmail.com

2019 Schedule:

Mar 16 - Speaker- Andrew Emmett, Executive Director of the Southern California Scleroderma Foundation, and Tina Burger, our Patient Services Director, return to share the results of their 2018 support group visits and the ideas that grew from it. Come hear their vision and goals and give them our ideas about how THEY can help YOU!
 
May 11 - Keith Harband from NewEnamel will educate us on "Your Teeth and and Auto-immune Disease: Where dry mouth results in significant, on-going decay issues and what you can do to treat these symptoms effectively". 

July 13 - Speaker- Lisa Carver from Healthy Hemp will educate us on the medical benefits and use of Hemp/CBD oil in people living with autoimmune diseases.  

Sep 14
Nov 9

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Imperial County/El Centro
Imperial County Support Group
Call for next meeting date and location

Contact: Debi Gray
Phone: 760-554-4942
Email: ivsclerogroup2017@yahoo.com.

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Inland Empire/San Bernardino
Riverside Support Group
10am to 12pm 
Location: Arthritis Center of Riverside, 11725 Slate Ave. #100, Riverside, CA 92505

Contact: Lisa Parks
Phone: 951-288-0728

Contact: Christine Haddad
Phone: 909-754-5934

Email: iesclerogroup@gmail.com

2019 Schedule:
Jan 19
Mar 16
May18 - Andrew Emmett, Executive Director of the Southern California Scleroderma Foundation, and Tina Burger, our Patient Services Director, return to share the results of their 2018 support group visits and the ideas that grew from it. Come hear their vision and goals and give them our ideas about how THEY can help YOU!

Summer Break
(August Scleroderma Patient Education Day at Arrowhead Regional Medical Center in San Bernardino)
Sep 21
Nov 16

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Los Angeles 
Los Angeles Support Group
10am – 12pm
Location: Scleroderma Foundation SoCal Office
8929 S Sepulveda Blvd Suite 412, Los Angeles, CA, 90045

Contact: Valerie Goodman  
Phone: 310-890-2616 
Email: daleval@aol.com

Contact: Tina Burger
Phone: 310-699-7290
Email: tburger@scleroderma.org

2019 Schedule: 
Apr 13 - Speaker - Andrew Emmett, Executive Director of the Southern California Scleroderma Foundation, and Tina Burger, our Patient Services Director, return to share the results of their 2018 support group visits and the ideas that grew from it. Come hear their vision and goals and give them our ideas about how THEY can help YOU! 

June 8 - Speaker- Lisa Carver from Healthy Hemp will educate us on the medical benefits and use of Hemp/CBD oil in people living with autoimmune diseases.  

Summer Break (August Scleroderma Patient Education Day at Arrowhead Regional Medical Center) 
Oct 19
Dec 14

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Orange County
The Orange County Scleroderma Support Group 
Meetings are held on the SECOND Saturday of alternate months, 11:30am to 2pm, 
Location: Fountain Valley Regional Hospital, 17100 Euclid Ave, Fountain Valley. 
We're meeting in the Saltzer Room.

Park on the Euclid Avenue side and enter under the big canopy marked “Emergency.” Ask the guard or receptionist for directions to the Saltzer Room.

Contact: Bonnie Copeland
Phone: 714-606- 6059
Email: bonmail@pacbell.net

Contact: Roberta Hines
Phone: 562-745-8075
Email: hines.roberta50@gmail.com

2019 Schedule: 
Jan 12 - Nourishment in Scleroderma. Janelle Smith, R.N., R.D., of the UCLA Scleroderma Center discuss how to eat, but with special understanding and emphasis on the unique needs of Scleroderma patients. 

Mar 9 - Meditation, Stress Relief and Chronic Conditions. Learn how mediation can help improve your outlook and your health! Join Vince McCullough, longtime Mediation, Yoga and Tai Chi instructor for a participative workshop.

May 11 - Andrew Emmett, Executive Director of the Southern California Scleroderma Foundation, and Tina Burger, our Patient Services Manager, return to share the results of their 2018 support group visits and the ideas that grew from it. Come hear their vision and goals and give them our ideas about how THEY can help YOU!

Jul 13 - Elizabeth Volkmann, M.D. of the UCLA Scleroderma Clinic will tell us about her research on gut bacteria and diet...and play “Ask the Doctor” with us. Bring your questions!
 
Sep 14 - What’s New in Scleroderma? Report on the National Patient Education Conference in Chicago. Bonnie, Roberta and other members who attend will bring back news and information for the group to discuss.

Nov 9
Holiday Celebration TBA

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Palm Desert
Desert Area Support Group
We are looking for a new support group leader. If you are interested in leading a support group in this area, please contact Tina Burger tburger@scleroderma.org. No experience needed; we will help train and get things started. 

Contact: Tina Burger
Phone: 424-227-6475
Email: tburger@scleroderma.org 

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San Diego/Encinitas
Encinitas Support Group
Saturday, 10:00am to 12:00pm, Every other month
Location: Encinitas Community Center, 1140 Oakcrest Park Drive, Encinitas, 92024

Contact: Kelly Clemeshaw
Phone: 760-855-3449
Email: kclemeshaw@gmail.com

2019 Schedule:
Feb 2
Apr 6
Jun 1 - Speaker- Andrew Emmett, Executive Director of the Southern California Scleroderma Foundation, and Tina Burger, our Patient Services Director, return to share the results of their 2018 support group visits and the ideas that grew from it. Come hear their vision and goals and give them our ideas about how THEY can help YOU!

Aug 3
Oct 5
Dec 7 - Joint Party with Mission Valley

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San Diego/Mission Valley
Mission Valley Support Group
Saturday, 10:00am to 12:00pm, Every other month
Location: Mission Valley Library, 2123 Fenton Parkway, San Diego, 92108

Contact: Susan Okuno
Phone: 619-246-9393
Email: sokuno1@yahoo.com

2019 Schedule: 
Jan 5
Mar 2
May 4 - Speaker- Andrew Emmett, Executive Director of the Southern California Scleroderma Foundation, and Tina Burger, our Patient Services Director, return to share the results of their 2018 support group visits and the ideas that grew from it. Come hear their vision and goals and give them our ideas about how THEY can help YOU!

July 6 - Picnic
Sep 7
Nov 2
Dec 7 - Party

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San Fernando Valley/Sherman Oaks
San Fernando Valley Support Group
Sunday, 11:00am to 1pm, Every other Month (2nd Sunday)
Location: Sherman Oaks Hospital, Doctors Conference Room
4929 Van Nuys Blvd, Sherman Oaks 91403

Map and directions
Contact: Kelly Ryan
Phone: 818-974-2428
Email: Kelly@kellycryan.com

2019 Schedule:
Jan 13 - Video Screening: Dr. Maureen Mayes Responds to Your Frequently Asked Questions - Maureen D. Mates, M.D., M.P.H./ Followed By Open Discussion 

Mar 10 - Speaker- Andrew Emmett, Executive Director of the Southern California Scleroderma Foundation, and Tina Burger, our Patient Services Director, return to share the results of their 2018 support group visits and the ideas that grew from it. Come hear their vision and goals and give them our ideas about how THEY can help YOU!

May 12 - Mother's Day Celebration- Pot Luck/ Open Talk - Topic or Theme / Finger & Hand Mobility Crafts 

Jul 14

Sep 8 - Video Screening: Dry Eyes, Dry Mouth: Sicca Syndrome versus Sjogren's Syndrome- Dr. Philip Clements, M.D., M.P.H. 

Nov 10 - Thanksgiving Celebration- Pot Luck/ Guest Speaker

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Santa Barbara
Santa Barbara Support Group

Meetings are on Saturdays, 10:00am to 12pm
Location: Beneflex Insurance Office, 101 W. Anapamu St, Santa Barbara, 93101 (corner of Anapamu and Chapala)

Contact: Elizabeth Duprey
Phone: 408-829-2718
Email:dupreyeliz@yahoo.com

Contact: Cindy Cattaneo                              
Phone:  (805)895-7384 
Email:  ccattaneo123@gmail.com   

 

2019 Schedule: 
Apr 6 - The Scleroderma Foundation will be visiting our support groups to discuss the outcome of our 2018 member survey and update us on what's new for 2019! 
Jun 1
Aug 3
Oct 5
Dec 7 

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Whittier/San Gabriel
Whittier/San Gabriel Support Group
10:00am to 12pm
Location: Presbyterian Intercommunity Hospital
12401 Washington Blvd.
Whittier, CA 90602

Contact: Penni LaVoot
Phone: 714-871-8580
Email:plavoot@gmail.com

2019 Schedule:
Jan 12 - Medical Marijuana.  Kandice Hawes of NORML, the National Organization to Reform Marijuana Laws, and Kent Crowley, a Doctor of Pharmacy with postgraduate credentials in metabolism and functional medicine, will talk about marijuana’s  medical uses, delivery methods, and legal environment, with special emphasis on patients with Scleroderma and other autoimmune diseases. 

Apr 13 - How to use the computer when your hands don't work! speaker: Kevin Daughery, Rehabilitation Engineer

Aug 10 - Speaker- Andrew Emmett, Executive Director of the Southern California Scleroderma Foundation, and Tina Burger, our Patient Services Director, return to share the results of their 2018 support group visits and the ideas that grew from it. Come hear their vision and goals and give them our ideas about how THEY can help YOU!

Oct 12 - TBD 

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San Gabriel Valley
San Gabriel Valley Peer Support Group
10:00am to 12pm
Location: Please call for meeting dates and location.

Contact: Catherine Baca
Phone: 626-232-8449
Email: MyLivingSpecialist@gmail.com

2019 Schedule: 
TBA

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