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Memorial Fund Raiser Benefits South Carolina Chapter

On April 14th, 2012, South Carolina high school senior Sarah Frazier (photo, right) organized a music benefit at her church St. Mary Magdalene Catholic Church, Simpsonville, SC, in memory of a family friend with scleroderma who recently died. Sarah’s initiative to transform her senior project into a community event to serve others is a testament to what can be accomplished when one person steps forward to lead and others join in to make an idea a reality.

Shannon Runyan passed away in November, 2011 from complications caused by scleroderma. He was only 47 and had been diagnosed with scleroderma for about 14 months. His wife and children (photo, from left, Nicholas, Julie, and Carly) joined Sarah and her family and friends for day of remembrance and fund raising to support scleroderma research. Sarah made her high school senior class project a musical celebration of Shannon’s life. She brought together four groups of performers to share their talents and faith with the crowd. And Sarah was one of the most talented of the performers, singing with her group, “Fish on Fridays”. It was a wonderful event and there were many volunteers, family, and friends there to support Sarah's efforts.

Sarah is an inspiration and a remarkable young woman. She shows the way with grace.

Holiday Greeting Cards

Send winter tidings to your friends  and family with this special folded card. The artwork was created by 10-year-old Ansley Lesley of South Carolina. Ansley is a scleroderma patient and Foundation member. Inside message reads "Seasons Greetings."

Cost: $16 for 10 cards and blank white envelopes (includes S&H)

Order Today

Great News for Scleroderma Patients and the Medical University of South Carolina!

Dr. Richard Silver, Director of the Division of Immunology and Rheumatology at Medical University of South Carolina, has let the SC Chapter know that Dr. Galina Bogatkevich has been awarded a 2-year grant totaling $150,000 for her project entitled, Role of IQ Motif Containing GTPase Activating Protein 1 in Scleroderma Interstitial Lung Disease by The Scleroderma Foundation and its Board of Directors.  
 
Dr. Silver states, "Galina is an outstanding scientist and her work on lung fibrosis in scleroderma is cutting edge. I am glad that the Scleroderma Foundation has awarded her this 2-year research grant. We are proud of Galina and very grateful for the Foundation' support of our research."

Patient Education Conference in Charleston, Jan. 29, 2011

"Stepping Out to Cure Scleroderma" Walk

Please join us for the 7th Annual "Stepping Out to Cure Scleroderma" Event!

The event will be held on Saturday, June 9, 2012 from 10:00 a.m. until 2:00 p.m. at the Furman University Amphitheater, Greenville, SC. Registration will open at 9:30 a.m.  Golf cart shuttle available to and from parking lot and also for a spin around the beautiful lake. Free lunch for all registered participants. Keynote Speaker will be Richard M. Silver, M.D., Director of Rheumatology and Immunology, Medical University of South Carolina. Returning this year will be Chris Brown of Dharma Yoga. Bake Sale featuring our "almost famous" pound cakes and cobblers. Door Prizes! Register online at www.firstgiving.com/sc2012 or print and mail Registration Form by May 25 for free t-shirt.  

Host Hotel is Hampton Inn, Travelers Rest, SC (864) 834-5550. Mention Scleroderma Walk at Furman for special rate. Alternate hotel is Sleep Inn, Travelers Rest, SC (864) 834-7040.

Memorial Fund Raiser Benefits South Carolina Chapter

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About Us

Welcome to the Scleroderma Foundation, South Carolina Chapter website, based in the Greenville area. We are here to serve you, so please feel free to contact us.

The South Carolina Chapter provides an answer to one of the problems of scleroderma—those with scleroderma need not feel alone any longer! Our mission is to provide a safe place for patients to share and also to increase public awareness. What most people don't know is that scleroderma is not really rare. In fact, it afflicts more people than Muscular Dystrophy, Cystic Fibrosis, or Multiple Sclerosis. Hundreds of thousands are afflicted in the United States alone. Yet, it still is a disease with no known cause or cure. We must, however, keep HOPE in our hearts...HOPE for a cure, HOPE for each other, and HOPE for the future. Together we can make a difference. Join us today!

Our Purpose

The PURPOSE of the Chapter is to help patients make contact with each other through Chapters, Newsletters, and Workshops;

To EDUCATE and INFORM the public about scleroderma, its meaning, and its consequences through a central base; to ENCOURAGE more awareness within the medical profession;

To PROMOTE medical research toward finding a cause and cure;

To ACCEPT donations, bequests, memorials, and grants from our generous supporters.

 


 

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