Support Groups
The use of contact information (email addresses and phone numbers) on our website is strictly for persons interested in contacting chapter and support group volunteers and staff for support and informational purposes only. This contact information SHOULD NOT be taken from our website for solicitation or commercial use.
Please click on a state to find a support group near you. We are working diligently to expand our network of support groups and are always interested in motivated, dedicated volunteers to assist us in that endeavor. To find out how you can help, please contact our the national office at (800) 722-4673.
*Phone contacts are individuals who offer phone and email support, but do not run a support group.
Alabama | Arizona | Arkansas | California | Colorado | Connecticut | District of Columbia | Delaware | Florida | Georgia | Idaho | Illinois | Indiana | Iowa | Kansas | Louisiana | Maine | Massachusetts | Michigan | Minnesota | Missouri | Nebraska | Nevada | New Hampshire | New Jersey | New Mexico | New York | North Carolina | Ohio | Oklahoma | Oregon | Pennsylvania | Puerto Rico | Rhode Island | South Carolina |
South Dakota | Tennessee | Texas | Utah | Vermont | Virginia | Washington | West Virginia | Wisconsin
Calera Area Support Group
Calera Public Library
9700 Hwy. 25
Calera, AL 35040
For more information, please contact Support Group Leader Jo Ann Bokenkamp
Email: JoAnnBokenkamp@yahoo.com
Phone: (334) 730-1363
Assistant Support Group Leader: Clarissa Hallowell
Email: bhmsclerofriends@yahoo.com
Phone: (205) 492-7482
Florence (Telephone Support)
Contact: Sarah Logan, 256-332-0048
Huntsville
Meetings are held at 4900 Meridian Street, Morrison Building, Room 101-A, Huntsville, AL 35762
Meetings go from 1 p.m. - 3 p.m. For information and direction, please call (256) 323-0715.
Mohave Valley (Bullhead City) Support Group
Support Group Leader: Carol Hayward, 928-768-9323
Southern Arizona (Tucson) Support Group
Casas Adobes Congregational Church
6801 N. Oracle Rd.
Tucson, AZ 85704
Park in the East lot, off of Oracle Road
Support Group Leader: Pat Gould, (after 1 p.m.) 520-742-0199, pag90az@comcast.net
Support Group Leader: Matty Heenan 520-749-4709 or mattyheenan1@gmail.com
Please join us on the second Tuesday of the month from 1-3 p.m. Check below for 2018 dates:
- January 9
- February 13
- March 13
- April 10
- May 8
- No meetings in June, July and August
- September 11
- October 9
- No meetings in November and December
For more information please contact Pat Gould at: (520) 742-0199
Phoenix Support Group
Support Group Co-Leaders:
Holly Roberts, 602-697-7727, hollyroberts@q.com
Diane Wilson, 615-293-2709, dwsclero@gmail.com
2019 Meetings:
- January 26 - Abrazo Arrowhead Hospital (see below for new location)
-
February 23 - Arrowhead
-
March 23 - Natural Grocers 7th Ave. & Indian School
-
April 27 - Location to be Determined
-
May 18 - Arrowhead
-
June 22 - Location to be Determined
-
July - No Meeting
-
August - No Meeting
-
September 28 - Location to be Determined
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October 26 - Potluck
-
November - No Meeting
-
December - No Meeting
Please email Holly or Diane to be included in monthly email list.
Benton Support Group
Support Group Leader: Pam Ray, 501-778-8737, pamray@aol.com
Fresno Support Group
Call for next meeting
Fig Garden Library, Fig Garden Meeting Room
3071 West Bullard Ave, Fresno, CA 93711
Contact: Mary Huckabee
Phone: (209) 852-2870
Email: maryhuckabee_sd@yahoo.com
Palo Alto Support Group
10:30 a.m. - 12:30 p.m., 2nd Saturday of each month
The Palo Alto Medical Foundation, 2nd Floor, Room N2 Conference Room
795 El Camino Real, Palo Alto, CA 94301
Contact: Rachel Ho
Phone: (415) 680-4389
Email: rachelhosf@gmail.com
Santa Rosa Support Group
10 a.m. - 12 p.m., 4th Saturday of the month
Sutter Medical Center Warrack Campus, 2449 Summerfield Rd, 2nd Floor, Santa Rosa, CA 95405
Contact: Jenene Robinson, jenjonrob@att.net, (707) 894-3605
**Schedule, location, topics or speakers subject to change. Please contact to confirm.
Turlock Support Group
10 a.m. – 12 p.m. Call for next meeting date.
Raley’s Store, 2900 Geer Road, Turlock, CA
Contact: Mary Huckabee
Phone: (209) 852-2870
Email: maryhuckabee_sd@yahoo.com
- Southern California (Note: The Greater San Diego Chapter is now a part of the Southern California Chapter)
Learn more about support groups in Colorado from our chapter.
Learn more about support groups in Connecticut from our Tri-State Chapter.
Learn more about support groups in Washington D.C. from our chapter.
Learn more about support groups in Delaware from our Delaware Valley Chapter.
If you live in Southeast Florida, learn more about support groups from the Southeast Florida Chapter. For other areas of Florida, look below:
Scleroderma Support Group of Volusia County (Florida)
Coronado Community United Methodist Church, New Smyrna Beach, FL, Room 109
Second Sunday every other month
Time: 2 p.m.
Contact for directions/info: Eileen Savell, (386) 689-4431, email: eileensavell.sclero@gmail.com
Jacksonville, Florida Support Group
Meetings take place at The Salem Centre, 7235 Bonneval Road, Room 234, Jacksonville, FL 32256
Meetings will be held from 12 Noon to 2 p.m. on the following 2019 dates:
- January 12
- February 9
- March 9
- April 13
- May 11
- June - No Meeting
- July - No Meeting
- August 10
- September 14
- October 12
- November 9
- December - No Meeting
For more information please contact: Co-Leader Sharon Thomdszski: netm0m@aol.com, or Co-Leader Lorraine Meide: lbmeide@yahoo.com.
Lady Lake Scleroderma Support Group
Support Group Leader: Jean Clark (352) 409-0429
Central Florida Support Group (Orlando Area)
Meetings take place at Exit Realty Office
401 S. Rosalind Ave., Orlando, Florida 32801
Upcoming 2019 Meetings:
- January 12
- March 9
For more information please contact:
Jan Gura: (407) 376-3076, JRGura@earthlink.net
Jennifer Scheinberg: (407) 257-5908, JPScheinberg@gmail.com
Sarasota Area Support Group
Waldemere Medical Plaza, 1921 Waldemere St., Sarasota, Florida
2nd Floor, Mimosa Room (located directly across from Sarasota Memorial Hospital on Waldemere Street).
Support Group Leader: Cindy Grantham-Spears (941) 539-4479, cindygrantham941@gmail.com
Please contact the Support Group Leader to confirm future meetings.
Susan Marie Foundation, Scleroderma Support Group Meeting
Location: Lakes Regional Library, Room B, 152900 Bass Rd, Ft. Myers
RSVP to Sandie Sneed at sandie@smsclerodermafoundation.com
2019 Meetings:
- January 12, 2019: Conference Room B, 10 a.m. to 12 Noon
- March 2, 2019: Conference Room B, 10 a.m. to 12 Noon
Learn more about support groups from our Georgia Chapter.
Southern Idaho Scleroderma Support Group
For Patients, Family Members, and Friends
Location: St. Luke's Meridian Medical Center, 520 S. Eagle Rd., Meridian, ID 83642
Directions & Parking: Enter from Eagle Road and go to the main entrance. Parking is located at the front of the building.
Meeting Schedule:
- Saturday, February 16, 2019
- Saturday, March 16, 2019
- Saturday, April 20, 2019
- Saturday, May 18, 2019
- Saturday, August 17, 2019
- Saturday, September 21, 2019
- Saturday, October 19, 2019
Event Schedule:
- June 22, 2019
Scleroderma Foundation Day
Seattle, Washington
Mariners Game
https://www.mlb.com/mariners/tickets/specials/scleroderma-foundation
Enter Promo Code: SCLERODERMA
- July 19-21, 2019
National Patient Education Conference
Chicago, Illinois
- August 24, 2019
Idaho Arthritis Walk
8-11 p.m.
Kleiner Park, Meridian, Idaho
- November 9, 2019
Idaho Patient Education Conference
St. Luke’s Regional Medical Center (Boise, Idaho)
For More Information:
Dee Burlile, M.E.d., Katy Koval, M.A.T., Selina Paul, and Sean Burlile, Ph.D.
scleroderma.idaho@gmail.com or (800) 722-4673
Illinois
Learn more about support groups from our Greater Chicago Chapter.
Central Indiana Scleroderma Self Help Group (TWO LOCATIONS)
North Location - 7250 Clearvista Drive, Indianapolis, IN 46256
#CHN 7250,
Visionary
Ballpark Conference
This is on the Community Hospital North campus in the 7250 building, second floor
South Location - Community Hospital South, 1402 East County Line Rd., Indianapolis, IN 46227
Conference Rooms
5 & 6
Meetings include time to meet and greet and share stories and information. Some of the meetings will have guest presenters. The atmosphere is informal and later arrivals are welcome.
Contact: Maureen Hays at mhays85@att.net, (317) 781-9726
For more information about support groups in Iowa, contact the Heartland Chapter.
Topeka Area Support Group
Topeka Shawnee County Library
1515 SW 10th Ave, Topeka, KS 66605
Hughes Room #205
First Meeting will be September 14 from 6 p.m. - 8 p.m.
For more information please contact Support Group Leader Emily Morris at (785) 215-1236 or emilymorris0417@hotmail.com
Wichita Support Group
Support Group Leader: Sharon Leiker at (316) 683-8335, leikers@cox.net
Baton Rouge Support Group
Contacts:
Del Anselmo, 225-756-2452 (home) or 225-324-3666 (cell) delzorah@gmail.com
Rebecca Nugent 225-270-5590
The Settlement Shopping Center, Suite C-1
7809 Jefferson Highway
Baton Rouge, LA 70810
Many, Louisiana Area Support Group
Beulah Baptist Church
31665 Hwy 191
Many, LA 71449
Please contact Support Group Leader Tina Dowden for more info at 936-332-3296 or sclerodermamany@gmail.com
New Orleans Area Support Group
University Medical Office Bldg. (UMOB)
2025 Gravier Street New Orleans, LA 70112
Meeting time is 6 p.m. to 8 p.m.
For more information, please contact the Support Group Leader Joy Mitchell - nolascleroderma@gmail.com or 504-301-7737.
Maine
For more information about support groups in Maine, contact the New England Chapter.
For more information about support groups in Massachusetts, contact the New England Chapter.
For more information about support groups in Michigan, contact the chapter.
For more information about support groups in Minnesota, contact the chapter.
For more information about support groups in Missouri, contact the chapter.
For more information about support groups in Nebraska, contact the Heartland Chapter.
Las Vegas Area Support Group
Check back soon for more information on upcoming meetings.
For more information about support groups in New Hampshire, contact the New England Chapter.
For support groups in Burlington/Camden, Warren and Woodbury, contact the Delaware Valley Chapter.
For support groups in Northern New Jersey, contact the Tri-State Chapter.
To inquire about creating a support group, please contact SFinfo@scleroderma.org, or call 800-722-4673.
For information about support groups in New York, contact the Tri-State Chapter.
Durham
Triangle Area Support Group
Support Group Leaders: Teresa Stone, (919) 596-0560, m. (919) 323-9598, stone35@frontier.com
or Jane Pahner, 919-969-7676, japahner@yahoo.com
Bethesda Baptist Church, 1914 South Miami Boulevard, Durham, N.C.
2 p.m. - 4 p.m.
2019 Meeting Dates
- January 13
- February 10
- March 10
- April 14
- May 19
- June 9
- July 14
- August 11
- September 8
- October 13
- November 10
- December - no meeting
Fayetteville Scleroderma Support Group
The Fayetteville Scleroderma Support Group meets in the Medical Arts Center at 101 Robeson St., Room 106; 10 a.m. to 12 p.m. on the third Saturday of every month except for July and December.
Scleroderma patients and their loved ones are invited for support and information about the disease.
For more information, please contact Support Group Leaders:
Donna Thomas 910-308-9792 and Kim Sublett 910-237-2390 or via email at donnat55@embarqmail.com
Ohio
For more information about support groups in Ohio, contact the chapter.
For more information about support groups in Oklahoma, contact the chapter.
For more information about support groups in Oregon, contact the chapter.
For more information about additional support groups in Pennsylvania, contact the Delaware Valley Chapter.
WESTERN PENNSYLVANIA
Pittsburgh Area
Last Saturday of every month except where noted; 3 p.m. - 4:30 p.m.
Panera Bread (meeting room) - please note the new location.
5430 Centre Avenue, Pittsburgh, PA 15232.
CONTACT: Caroline & Tim Graettinger SFgroupPITT@gmail.com; (724) 743-3642.
2019 Dates
- January 26
- February 23
- March 30
- April 27
- May 25
- June 29
- July 27
- August 31
- September 28
- October 26
- November 30
- December 28
Contact: Manny & Sylvia Quevedo, 787-792-4038, or 787-792-3882, email lordrealty@lordrealty.com.
For more information about support groups in Rhode Island, contact the New England Chapter.
For more information about support groups in South Carolina, contact the chapter.
Black Hills Support Group
Rapid City Public Library
610 Quincy Street, Rapid City, SD 57701
Meetings are the first Wednesday of every month from 5 p.m. to 7 p.m. at the Rapid City Public Library with the exception of July 11* (second Wednesday of the month):
- April 4
- May 2
- June 6
- July 11* (2nd Wednesday)
- August 1
- September 5
- October 3
- November 7
- December 5
For more information, please contact Support Group Leader Ron Sasso
Email: BHScleroderma@gmail.com, Phone: 605-593-3759
Sioux Falls Support Group
For information about the Sioux Falls Support Group, contact the Heartland Chapter.
For more information about support groups in Tennessee, contact the chapter.
For more information about support groups in Texas, contact the chapter.
Utah Regional Support Group
Support Group Leader: Rachel Lando: (305) 761-4186, ScleroSLC.Rachel@gmail.com
Info on meeting dates to come.
Vermont
For more information about support groups in Vermont, contact the New England Chapter.
Fredricksburg, Virginia Support Group
Support Group Leader: Christine Hamblin, 540-720 -2079, hamblinc@aol.com
Mary Washington Hospital-Cafeteria
1001 Sam Perry Blvd.
Fredericksburg, VA 22401
2018: 9/27, 10/25
2019: 2/28, 3/28, 4/25 and 5/23
All meetings start at 7 p.m.
Norfolk (Phone Support)
Contact: Audrey Gutterman, 757-855-5200, audgut@aol.com.
Richmond Area Support Group
Support Group Leaders: Christine Hamblin, 540-720 -2079, hamblinc@aol.com; Teresa Crumpler, 804-233-5809, cteresa@comcast.net; or Shirley Hill-Rasberry, 804-329-5223, tacnn@comcast.net
For more information about support groups in Washington, contact the chapter.
Huntington Area Support Group
River Cities Community Church
4385 Route 60 East
Huntington, WV 25705
Thursday, March 7 at 6:30 p.m. in Room 301
Please park in the RED lot
You will see two doors with canopies, use the second door.
For more info contact Karen Baker
karen_baker69@yahoo.com
1-304-736-9882
Weirton (Telephone Support)
Contact: Sandra Fennych, 304-723-5177, sfennych@comcast.net
Green Bay/Northeast Wisconsin
Dates/Times: Second Wednesday of every month, 1-3 p.m.
Location: Bellin Health Family Medical & Wellness Center Bellevue
3263 Eaton Road
Green Bay, WI 54311
Support Group Leader: Valarie Hutchison
920-544-9676
sclerodermawi@gmail.com
Milwaukee Area
Dates/Times: Third Saturday of every month, 10 a.m. - 12 p.m.
Location: Froedtert Hospital (Community
Conference Room 2)
8700 W. Watertown Plank Rd.
Milwaukee, WI 53226
Community Conference Room 2
located in the Wisconsin Athletic Club building.
Enter building on the 87th
Street side and look for Community Conference Room entrance.
Support Group Leader:
Kelly Kohls, sclerodermamilw@gmail.com
For more information about support groups in Wisconsin, please contact the Greater Chicago Chapter.
- In Los Angeles: Josephine Battyany, (310) 287-0793
- In NY: Beatriz Nunez, 631-667-2655
- In Puerto Rico: Manny Quevedo, 787-399-4038 (Monday – Friday 8:30 a.m. – 5 p.m. only), lordrealty@lordrealty.com
Wilmington area Support Group
Support Group Leader- Betty Hughes- 1-910-231-7925
This group meets at the Pender County Public Library
103 S Cowan St, Burgaw, NC 28425
For upcoming meeting, please contact the Support Group Leader to confirm times and dates
