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Support Groups

The use of contact information (email addresses and phone numbers) on our website is strictly for persons interested in contacting chapter and support group volunteers and staff for support and informational purposes only. This contact information SHOULD NOT be taken from our website for solicitation or commercial use.

Please click on a state to find a support group near you. We are working diligently to expand our network of support groups and are always interested in motivated, dedicated volunteers to assist us in that endeavor. To find out how you can help, please contact our the National Office at (800) 722-4673.

*Phone Contacts are individuals who would like to offer phone and email support but do not run a support group.


Alabama | Alaska | Arizona | Arkansas | California | Colorado | Connecticut | District of Columbia | Delaware | Florida | Georgia | Hawaii | Illinois | Indiana | Iowa | Kansas | Louisiana | Maine | Massachusetts | Michigan | Minnesota | Missouri | Nebraska | Nevada | New Hampshire | New Jersey | New York | North Carolina | Ohio | Oklahoma | Oregon | Pennsylvania | Puerto Rico | Rhode Island | South Carolina | Tennessee | Texas | Utah | Vermont | Virginia | Washington | West Virginia | Wisconsin

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Alabama  

Calera Area Support Group
Calera Public Library
9700 Hwy. 25
Calera, AL 35040
November 7, 2015
10:00 AM  - 12:00 Noon
For more information, please contact Support Group Leader Jo Ann Bokenkamp
Email: JoAnnBokenkamp@yahoo.com
Phone: (334) 730-1363
Assistant Support Group Leader: Clarissa Hallowell
Email: bhmsclerofriends@yahoo.com
Phone: 205-492-7482

Florence  (Telephone Support)
Contact: Sarah Logan, 256-332-0048

Huntsville
Support Group Leader: Marcella Scruggs, 256-323-0715, sclerosupport@hotmail.com 
Meetings are held at 4900 Meridian Street, Morrison Building, Room 101-A, Huntsville, AL 35762
Meetings go from 1:00 p.m. - 3:00 p.m. For information and direction, please call 256-323-0715.

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Alaska

Alaska (Telephone Support)
Contact: Sherry Furlong, 907-224-2520, sdalefurlong@yahoo.com

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Arizona

Mohave Valley (Bullhead City) Support Group
Support Group Leader: Carol Hayward, 928-768-9323, sclerodermamohavevalley@hotmail.com

Southern Arizona (Tucson) Support Group
Casas Adobes Congregational Church
6801 N. Oracle Rd.
Tucson, AZ 85704
Park in the East lot, off of Oracle Road
Support Group Leader: Pat Gould, (after 1:00 p.m.) 520-742-0199, pag90az@comcast.net
Support Group Leader: Matty Heenan 520-749-4709 or mattyh42@q.com

Please join us on the 2nd Tuesday of the Month from 1:00 - 3:00pm. Check below for the dates.
January 13
Feb. 10
March 10
April 14
May 12
No Meeting in June
No Meeting in July
No Meeting in August
Sept. 8
Oct. 13
November Holiday Party, date and time to be determined.  

For more information please contact Pat Gould at: (520) 742-0199

West Phoenix Support Group
Support Group Co-Leaders:
Holly Roberts, 602-697-7727, hollyroberts@q.com  
Jeannette Winters, 602-809-0699, Jeanettewinters@yahoo.com

 

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Arkansas

 Benton Support Group
Support Group Leader:
Pam Ray, 501-778-8737, pamray@aol.com

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California

Learn more about support groups in California from our chapters:

Fresno Support Group
Call for next meeting

Fig Garden Library, Fig Garden Meeting Room
3071 West Bullard Ave, Fresno, CA 93711
Contact: Mary Huckabee
Phone: (209) 852-2870
Email: maryhuckabee_sd@yahoo.com 

Palo Alto Support Group
10:30 a.m. - 12:30 p.m., 2nd Saturday of each month
We will be meeting Saturday October 24 instead of Oct 10. Oct 10 is Columbus Day weekend.
The Palo Alto Medical Foundation, 2nd Floor, Room N2 Conference Room,
795 El Camino Real, Palo Alto Ca 94301
Contact: Rachel Ho
Phone: (415) 606-5213
Email: rachelhosf@gmail.com

Santa Rosa Support Group
10:00 a.m. – 12:00 p.m., fourth Saturday of every month. There are no meetings in July, November or December.
Vintage Brush Creek (Vintage Senior Living),
4225B Wayvern Dr., Santa Rosa, Calif. (Note: Building B is on the right when you pull into the parking lot. Take the stairs or elevator to the second floor and follow the signs.)
Contact: Cathy Eddy
Phone: (707) 538-9193
Email: eddyc@sbcglobal.net
View the Meeting schedule >>  

Turlock Support Group
10:00 a.m. – 12:00 p.m. Call for next meeting date
Raley’s Store, 2900 Geer Road, Turlock, CA
Contact: Mary Huckabee
Phone: (209) 852-2870
Email: maryhuckabee_sd@yahoo.com

 

  • Southern California (Note: The Greater San Diego Chapter is now a part of the Southern California Chapter)

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Colorado

Learn more about support groups in Colorado from our chapter. 

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Connecticut

Learn more about support groups in Connecticut from our Tri-State Chapter.

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District of Columbia

Learn more about support groups in Washington D.C. from our chapter.

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Delaware

Learn more about support groups in Delaware from our Delaware Valley Chapter. 

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Florida

If you live in southeast Florida, learn more about support groups from the Southeast Florida Chapter. For other areas of Florida, look below:

Avon Park
Support Group Leader: Jeffrey Severino, 863-452-2968, jeffseverino@tnni.net

Scleroderma Support Group of Volusia County (Florida)
Meeting location: Coronado Community United Methodist Church, New Smyrna Beach, FL, Room 109
Meeting Dates: 2nd Sunday every other month:  April, June, August, October, December, February
Time: 2 p.m.
Contact for directions, info: Eileen Savell, 386-689-4431, email: eileensavell.sclero@gmail.com

Jacksonville Florida Support Group
Meetings take place at The Salem Centre, 7235 Bonneval Road, Jacksonville, FL 32256
Meeting Dates: Meetings will be held from 12:00 p.m. to 3 p.m. on the following dates in 2016: Jan. 9, Feb. 13, March 12, April 9, May 14, June 11, July 9, Aug. 13, Sept. 10, Oct. 8, Nov. 12, and Dec. 10.

Support Group Meeting: 5/14/16 (added guest speaker)

Lead Speaker: Diane Fisher
Topic:  Nutrition
Guest Speaker:  Dr. Bruce Glickman, D.C.
Topic:  Natural Solutions - Ease The Stress of Daily Living On The Body

Support Group Meeting: 6/11/16 (celebration/ room change)

Theme:  Celebration of LIFE!
Official Color:  Teal
Topic:  Scleroderma Awareness Month
Location:  Liberty Room, Salem Centre

For more information please contact:
Margherita Palmisano, 904-300-4400 or sclerodermanefl@gmail.com

Lady Lake Scleroderma Support Group
Support Group Leader: Jean Clark, 352-753-9500

Central Florida Support Group (Orlando Area)
Meetings take place at Exit Realty Office
401 S. Rosalind Ave.
Orlando, Florida 32801
Our next meeting will be Saturday October 3rd at 10:30 a.m. to 11:30 a.m.
For more information please contact:
Jan Gura - 1-407-376-3076, JRGura@earthlink.net
Jennifer Scheinberg - 1-407-257-5908, JPScheinberg@gmail.com

Sarasota Area Support Group
Waldemere Medical Plaza, 1921 Waldemere St. Sarasota, Florida, 2nd Floor, Mimosa Room.
Waldemere Medical Plaza is located directly across from Sarasota Memorial Hospital on Waldemere Street.
Support Group Leader: Cindy Grantham-Spears, 941-539-4479, cindygrantham941@gmail.com
Please contact the Support Group Leader to confirm future meetings.
Meets four times annually, upcoming meeting dates: Sept. 19, 2015, Nov. 21, 2015, Jan. 16, 2016, March 19, 2016
10 a.m. to 12:00 noon the 3rd Saturday of every other month

Tampa Support Group
Support Group Leader: Lynn Goff, 813-995-2700, jlynnk1@verizon.net
Our 2016 schedule is as follows, the third Saturday in January, March, May, July and September at 12 noon. The meetings are held at The Shriner's Hospital for Children (on USF campus) 12501 Pine St, Tampa, Florida

Susan Marie Foundation - Scleroderma Support Group Meeting
Time: Last Saturday of every month at 10am
Location: Lakes Regional Library, Rm B, 152900 Bass Rd, Ft Myers
RSVP please, to Sandie at sandie@smsclerodermafoundation.com.

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Georgia
 

Learn more about support groups from our Georgia Chapter.

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Hawaii

Waipahu Support Group
Support Group Leader: Ken Athans, 904-891-3085, hawaiisclerodermanetwork@gmail.com
Kaiser Permanente Clinic, 94-1480 Moaniani Street, Waipahu, Hawaii 96797
Conference room B 6:00-8:00pm
Call or email for upcoming dates

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Illinois
 Learn more about support groups from our Greater Chicago Chapter.

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Indiana

Central Indiana Scleroderma Self Help Group (TWO LOCATIONS)
North Location - 7250 Clearvista Drive, Indianapolis, IN 46256
#CHN 7250,
Visionary Ballpark Conference 
This is on the Community Hospital North campus in the 7250 building, second floor

South Location - Community Hospital South, 1402 East County Line Rd., Indianapolis, IN 46227
Conference Rooms 5 & 6

Download a 2016 Support Group Flier >>

2016 Schedule

NORTH Location
Saturday, March 12, North – 1:00 to 4:00 p.m.
Saturday, May 14 - North – 1:00 to 4:00 p.m.
Saturday, July 9 - North – 1:00 to 4:00 p.m.
Saturday, September 10 - North – 1:00 to 4:00 p.m.
Saturday, November 12 - To Be Determined

SOUTH Location
Saturday, April 9 – South – 1:00 to 4:00 p.m.
Saturday, June 11 – South – 1:00 to 4:00 p.m.
Saturday, August 13 – South – 1:00 to 4:00 p.m.
Saturday, October 8 – South – 1:00 to 4:00 p.m.
Saturday, November 12 - To Be Determined

Meetings will include time to meet and greet and share stories and information. Some of the meetings will have guest presenters. The atmosphere is informal and later arrivals are welcome.

Contact: Maureen Hays at mhays85@att.net, 317-781-9726 

 

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Iowa

For more information about support groups in Iowa, contact the Heartland chapter.

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Kansas   

Manhattan, Kansas Area Support Group
This group meets on the third Wednesday in January, March, May, July, September and November.

For more information, including the current meeting location, please contact support group leader Jamie Lienemann-Stockman, (785) 799-4261 or manhattanksscleroderma@gmail.com.

Topeka Area Support Group
Topeka Shawnee County Library
1515 SW 10th Ave, Topeka, KS 66605
Hughes Room #205
First Meeting will be September 14th from 6-8pm
For more information please contact Support Group Leader Emily Morris at 785-215-1236 or emilymorris0417@hotmail.com

Wichita Support Group
Support Group Leader: Sharon Leiker at 316-683-8335, leikers@cox.net

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Louisiana
 

Baton Rouge Support Group
Support Group Leader: Del Anselmo, 225-756-2452 (home) or 225-324-3666 (cell) delzorah@gmail.com or Rebecca Nugent at 225-270-5590
“The Settlement” Shopping Center
Suite C-1
7809 Jefferson Highway
Baton Rouge, LA 70810
Starting at 5:00 p.m.
Tuesday, January 13th, 2015
Tuesday, April 14th, 2015
Tuesday, July 14th, 2015
Tuesday, August 11th, 2015
Tuesday, October 13th, 2015

Many, Louisiana area Support Group
Beulah Baptist Church
31665 Hwy 191
Many, LA 71449

2016 Dates:

  • March 19----Time and location TBD
  • April 2----Time and location TBD
  • May 7---- Time and location TBD
  • June 11----Time and location TBD
  • July 9----Time and location TBD
  • August 13----Time and location TBD
  • September 10---Time and location TBD
  • October 8----Time and location TBD
  • November 5---Time and location TBD
  • December 3---Time and location TBD

Please contact Support Group Leader Tina Dowden for more info at 936-332-3296 or sclerodermamany@gmail.com

New Orleans Area Support Group
University Medical Office Bldg. (UMOB)
2025 Gravier Street New Orleans, LA 70112
The meeting dates:
Saturday June 6, 2015
Saturday July 25, 2015 and
Saturday August 22, 2015
For more information, please contact the Support Group Leader Joy Mitchell - nolascleroderma@gmail.com or 504-301-7737.

Shreveport (Telephone Support)
Contact: Dicy Cary-Cowart, 318-525-1536, dc1966la@att.net

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Maine
 For more information about support groups in Maine, contact the New England Chapter.

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Massachusetts

 For more information about support groups in Massachusetts, contact the New England Chapter.

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Michigan

For more information about support groups in Michigan, contact the chapter.

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Minnesota

For more information about support groups in Minnesota, contact the chapter.

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Missouri

For more information about support groups in Missouri, contact the chapter.

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Nebraska

For more information about support groups in Nebraska, contact the Heartland chapter.

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Nevada

Meeting location change for Saturday, January 30th

The meeting will be held at:

Billy’s BBQ located at 4115 S. Grand Canyon Dr., Las Vegas, NV 89147. 

The time remains 12:00Noon.


Upcoming Meeting Dates:

 

  • January 30, 2016
  • April 30, 2016
  • Sept. 8, 2016
  • Dec. 3, 2016

For more information about this group, and to confirm meeting dates, please contact Support Group leader John Holod at 1-702-233-0783 or holod@cox.net or Pam O’Meara at 1-702-606-9496, PAMOMEARA@msn.com

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New Hampshire

For more information about support groups in New Hampshire, contact the New England Chapter.

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New Jersey

For support groups in Burlington/Camden, Warren and Woodbury, contact the Delaware Valley Chapter.

For support groups in Northern New Jersey, contact the Tri-State Chapter.

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New York

For information about support groups in New York, contact the Tri-State Chapter.

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North Carolina

Durham
Triangle Area Support Group
 Support Group Leaders: Teresa Stone, 919-596-0560, m. 919.323.9598, stone35@frontier.com or Jane Pahner, 919-969-7676, japahner@yahoo.com
Bethesda Baptist Church, 1914 South Miami Boulevard, Durham, NC
2:00-4:00 PM

2016 Meeting Dates:

  • January 10
  • February 21
  • March 13
  • April 10
  • May 15
  • June 12
  • July 10
  • August 14
  • September 11
  • October 9
  • November 13
  • No Meeting in December

Fayetteville Scleroderma Support Group
The Fayetteville Scleroderma Support Group meets monthly in the Medical Arts Center at 101 Robeson Street. Scleroderma patients and their loved ones are invited for support and information about the disease. For more information, please contact Support Group Leaders: Donna Thomas (910) 308-9792 and Kim Sublett (910) 237-2390 or via email fayettevillescleroderma@gmail.com.

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Ohio
 

For more information about support groups in Ohio, contact the chapter.

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Oklahoma

For more information about support groups in Oklahoma, contact the chapter.

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Oregon
 

For more information about support groups in Oregon, contact the chapter.

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Pennsylvania

For more information about support groups in Pennsylvania, contact the Delaware Valley Chapter.

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Puerto Rico
 

San Juan
Contact: Manny & Sylvia Quevedo, 787-792-4038, or 787-792-3882, email lordrealty@lordrealty.com.

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Rhode Island

For more information about support groups in Rhode Island, contact the New England Chapter.

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South Carolina

For more information about support groups in South Carolina, contact the chapter.

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Tennessee
 

For more information about support groups in Tennessee, contact the chapter.

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Texas

For more information about support groups in Texas, contact the chapter.

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Utah

Northern Utah (Layton) Support Group
Support Group Leader: Sherry Blosch, 801-943-2468, dimples4me@msn.com Co-Leader: Judy Bradshaw, j.l.bradshaw@att.net

Park City Utah Support Group
Support Group Leader- April Torres, 435-881-3016, ScleroPC@gmail.com

Upcoming Meeting Dates
For more information, contact April

March 5, 2016 - 2:00-4:00 - Anderson-Foothill Branch Library- 1135 S. 2100 E. Salt Lake City, Utah  (Open Table Discussion)

April 4, 2016 - 5:30-7:30 - Glendale Branch Library-1375 S. Concord (1240 W), Salt Lake City, Utah  (Guest Speaker)

May 14, 2016 - 3:00-5:00 - This meeting has been cancelled.  We apologize for any inconvenience.

*Note - No food or drinks in libraries. Bottled water is ok.

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Vermont
 

For more information about support groups in Vermont, contact the New England Chapter.

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Virginia

Fredricksburg Area Support Group
Support Group Leader: Christine Hamblin, 540-720 -2079, hamblinc@aol.com

Norfolk (Phone Support)
Contact: Audrey Gutterman, 757-855-5200, audgut@aol.com.

Richmond Area Support Group
Support Group Leaders: Christine Hamblin, 540-720 -2079, hamblinc@aol.com; Teresa Crumpler, 804-233-5809, cteresa@comcast.net; or Shirley Hill-Rasberry, 804-329-5223, tacnn@comcast.net

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Washington
 

For more information about support groups in Washington, contact the chapter.

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West Virginia
 

Charleston (Telephone Support)
Contact: Scott Miller, 304-610-2898, samiller5@yahoo.com

Huntington Area Support Group
River Cities Community Church
4385 Route 60 East
Huntington, WV 25705
Thursday, March 7th at 6:30PM in Room 301
Please park in the RED lot
You will see two doors with canopies, use the second door.
For more info contact Karen Baker
karen_baker69@yahoo.com
1-304-736-9882

Weirton (Telephone Support)
Contact: Sandra Fennych, 304-723-5177, sfennych@comcast.net

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Wisconsin

Green Bay/Northeast Wisconsin
Dates/Times: Second Wednesday of every month, 1-3 p.m. 
Location: Bellin Health Family Medical & Wellness Center Bellevue
3263 Eaton Road
Green Bay, WI 54311
Support Group Leader: Valarie Hutchison
920-544-9676
hutchresource@gmail.com

Milwaukee Area
Dates/Times: Third Saturday of every month, 10am - 12pm
Location: Froedtert Hospital, 8700 W. Watertown Plank RoadMilwaukee, WI 53226, Community Conference Room 2 located in the Wisconsin Athletic Club building. Enter building on the 87th Street side and look for Community Conference Room entrance.
Support Group Leader: Britney Helm, Scleromke@gmail.com

For more information about support groups in Wisconsin, contact the Greater Chicago Chapter.

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Spanish-Speaking Contacts

  • In Los Angeles: Josephine Battyany, (310) 287-0793
  • In NY: Beatriz Nunez, 631-667-2655
  • In Puerto Rico: Manny Quevedo, 787-399-4038 (Monday – Friday 8:30am – 5:00pm only), lordrealty@lordrealty.com

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Wilmington area Support Group

Support Group Leader- Betty Hughes- 1-910-231-7925

 

This group meets at the Pender County Public Library

103 S Cowan St, Burgaw, NC  28425

 

For upcoming meeting, please contact the Support Group Leader to confirm times and dates