Support Groups

The use of contact information (email addresses and phone numbers) on our website is strictly for persons interested in contacting chapter and support group volunteers and staff for support and informational purposes only. This contact information SHOULD NOT be taken from our website for solicitation or commercial use.

Please click on a state to find a support group near you. We are working diligently to expand our network of support groups and are always interested in motivated, dedicated volunteers to assist us in that endeavor. To find out how you can help, please contact our the National Office at (800) 722-4673.

*Phone Contacts are individuals who would like to offer phone and email support but do not run a support group.


Alabama | Alaska | Arizona | Arkansas | California | Colorado | Connecticut | District of Columbia | Delaware | Florida | Georgia | Hawaii | Idaho | Illinois | Indiana | Iowa | Kansas | Louisiana | Maine | Maryland | Massachusetts | Michigan | Minnesota | Missouri | Nebraska | Nevada | New Hampshire | New Jersey | New Mexico | New York | North Carolina | Ohio | Oklahoma | Oregon | Pennsylvania | Puerto Rico | Rhode Island | South Carolina | Tennessee | Texas | Utah | Vermont | Virginia | Washington | West Virginia

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Alabama  

Calera Area Support Group
Calera Public Library
9700 Hwy. 25
Calera, AL 35040
May 17 2014
July 12 2014
September 13 2014
November 8 2014
10:00 AM  - 12:00 Noon
For more information please contact Support Group Leader Clarissa Hallowell
Email: bhmsclerofriends@yahoo.com
Phone: 205-492-7482
Assistant Support Group Leader: Jo Ann Bokenkamp
Email: JoAnnBokenkamp@yahoo.com
Phone: (334) 730-1363

Florence  (Telephone Support)
Contact: Sarah Logan, 256-332-0048

Huntsville
Support Group Leader: Marcella Scruggs, 256-323-0715, sclerosupport@hotmail.com 
Meetings are held at 4900 Meridian Street, Morrison Building, Room 101-A, Huntsville, AL 35762
Next meeting dates are:
April 19, 2014, meet and greet,
May 17, 2014
June 21, 2014
July 19, 2014
August 16, 2014
Sept 20, 2014
Oct 20, 2014,last meeting
Meetings go from 1:00 p.m. - 3:00 p.m. For information and direction, please call 256-323-0715.

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Alaska

Alaska (Telephone Support)
Contact: Sherry Furlong, 907-224-2520, sdalefurlong@yahoo.com

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Arizona

Mohave Valley (Bullhead City) Support Group
Support Group Leader: Carol Hayward, 928-768-9323, sclerodermamohavevalley@hotmail.com

Southern Arizona (Tucson) Support Group
Casas Adobes Congregational Church
6801 N. Oracle Rd.
Tucson, AZ 85704
Park in the East lot, off of Oracle Road
Support Group Leader: Pat Gould, (after 1:00 p.m.) 520-742-0199, pag90az@comcast.net
Time:  1:00 pm - 3:00 pm
Meeting Dates for 2013: 
January 8
February 12
March 12
April 9
May 14
No Meetings June, July, & August
September 10
October 8
No Meetings November & December.
November Holiday Party, date & time to be determined.

West Phoenix Support Group
Support Group Leader: Janice McBreen, 623-203-6758, janice@janicemcbreen.com

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Arkansas

 Benton Support Group
Support Group Leader:
Pam Ray, 501-778-8737, pamray@aol.com

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California

Learn more about support groups in California from our chapters:

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Colorado

Learn more about support groups in Colorado from our chapter. 

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Connecticut

Learn more about support groups in Connecticut from our Tri-State Chapter.

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District of Columbia

Learn more about support groups in Washington D.C. from our chapter.

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Delaware

Learn more about support groups in Delaware from our Delaware Valley Chapter. 

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Florida

If you live in southeast Florida, learn more about support groups from the Southeast Florida Chapter. For other areas of Florida, look below:

Avon Park
Support Group Leader: Jeffrey Severino, 863-452-2968, jeffseverino@tnni.net

Scleroderma Support Group of Volusia County (Florida)
Meeting location: Coronado Community United Methodist Church, New Smyrna Beach, FL, Room 109
Meeting Dates: 2nd Sunday every other month:  April, June, August, October, December, February
Time: 2:00 pm
Contact for directions, info: Eileen Savell, 386-689-4431, email: eileensavell.sclero@gmail.com

Lady Lake Scleroderma Support Group
Support Group Leader: Jean Clark, 352-753-9500

 Central Florida Support Group (Orlando Area)
Florida Hospital Family Resource Center (white building next to Dunkin Donuts on SR 436)
651 E Altamonte Drive
Altamonte Springs, FL 32701
January 11th and March 8th at 10:30AM
For more information please contact:
Jan Gura- 1-407-376-3076, JRGura@earthlink.net
Jennifer Scheinberg- 1-407-257-5908, JPScheinberg@gmail.com

Sarasota Area Support Group
Waldemere Medical Plaza, 1921 Waldemere St. Sarasota, Florida, 2nd Floor, Mimosa Room.
Waldemere Medical Plaza is located directly across from Sarasota Memorial Hospital on Waldemere Street.
Support Group Leader: Cindy Grantham, 941-539-4479 cindygrantham941@gmail.com
Meeting on 3/15/14 has been cancelled
Please contact the Support Group Leader to confirm future meetings.
10 a.m. to 12:00 noon the 3rd Saturday of every other month

Tampa Support Group
Support Group Leaders: Lynn Goff, 813-995-2700, jlynnk1@verizon.net

Susan Marie Foundation - Scleroderma Support Group Meeting
Date: March 23, Sunday
Time: 2PM
Location: Cypress Keep Clubhouse at 13671 Abbey Dr., Fort Myers, Fl. 33919
The Susan Marie Foundation will host its first meeting, on March 23rd.  
RSVP please, to Sandie at sandiecypress@aol.com.

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Georgia
 

Learn more about support groups from our Georgia Chapter.

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Hawaii

Waipahu Support Group
Support Group Leader: Ken Athans, 904-891-3085, hawaiisclerodermanetwork@gmail.com
Kaiser Permanente Clinic, 94-1480 Moaniani Street, Waipahu, Hawaii 96797
Conference room B 6:00-8:00pm
January 14, 2013
March 11, 2013
May 13, 2013
July 8, 2013
September 9, 2013
November 11, 2013

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Idaho

Boise Area Support Group
 Support Group Leader: Linda Seeley, 208 922 2852, ls4kuna@aol.com

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Illinois
 Learn more about support groups from our Greater Chicago Chapter.

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Indiana

Anderson Support Group
Support Group Leader: Ellen Kay,
 (765) 506-4315 or email kay2867@yahoo.com. Note: We do not meet during the winter months

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Iowa

For more information about support groups in Iowa, contact the Heartland chapter.

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Kansas
 

Wichita Support Group
Support Group Leader: Sharon Leiker at 316-683-8335, leikers@cox.net

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Louisiana
 

Baton Rouge Support Group
Support Group Leader: Del Anselmo, 225-756-2452 (home) or 225-324-3666 (cell) delzorah@gmail.com or Rebecca Nugent at 225-270-5590
Latte E Miele Gelateria and Coffeehouse
7809 Jefferson Highway
Baton Rouge, LA 70810
Starting at 5:00 p.m.
Tuesday, January 14th, 2014
Tuesday, April 8th, 2014
Tuesday, July 8th, 2014
Tuesday, October 14th, 2014

Shreveport (Telephone Support)
Contact: Dicy Cary-Cowart, 318-525-1536, dc1966la@att.net

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Maine
 For more information about support groups in Maine, contact the New England Chapter.

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Maryland

Columbia Support Group
Support Group Leader: Sharon Howard, 443-310-1286, sharonhoward386@gmail.com

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Massachusetts

 For more information about support groups in Massachusetts, contact the New England Chapter.

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Michigan

For more information about support groups in Michigan, contact the chapter.

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Minnesota

For more information about support groups in Minnesota, contact the chapter.

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Missouri

For more information about support groups in Missouri, contact the chapter.

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Nebraska

For more information about support groups in Nebraska, contact the Heartland chapter.

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Nevada

For more information about support groups in Nevada, please contact the National Office at (800) 722-4673.

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New Hampshire

For more information about support groups in New Hampshire, contact the New England Chapter.

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New Jersey

For support groups in Burlington/Camden, Warren and Woodbury, contact the Delaware Valley Chapter.

For support groups in Northern New Jersey, contact the Tri-State Chapter.

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New Mexico

Albuquerque Area Support Group
Saturday January 18th, 10:00am-12:00pm
Saturday February 15th, 10:00am-12:00pm
Saturday March 15th, 10:00am-12:00pm
Saturday April 19th, 10:00am-12:00pm
Saturday May 17th, 10:00am-12:00pm
Saturday June 21st, 10:00am-12:00pm

NEW LOCATION!

Le Chantilly (Bakery & Café)
8216 Menaul NE
Hoffmantown Shopping Center
Albuquerque, NM 87110
(Just W. of Wyoming on the S. side)

Please R.S.V.P. if you can!

Each meeting will include time for introductions and open discussion on topics and issues related to scleroderma.

For more information, please contact Shelly Hart (505) 553-4607 shellyofharts@gmail.com or Rebecca Otero (505) 839-0340 Stylinmsrebecca@comcast.net

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New York

For information about support groups in New  York, contact the Tri-State Chapter.

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North Carolina

Durham
Triangle Area Support Group
 Support Group Leaders: Teresa Stone, 919-596-0560, m. 919.323.9598, stone35@frontier.com or Jane Pahner, 919-969-7676, japahner@yahoo.com
Bethesda Baptist Church, 1914 South Miami Boulevard, Durham, NC
2:00-4:00 PM
2013 Meeting Dates:
July 14 - Dr. Ankoor Shah, of the Rheumatology Department at Duke University Hospital, will be speaking. He will be the director of the new Scleroderma Clinic in the department.
Oct 13
Nov 10 - Dr. Paul Aaran D.C. will be speaking on nutrition and the digestive system.
No Meeting in December
2014 Meeting Dates:
January 12
February 9
March  9
April  13
May 18
June 8
July  13
August  10
September 12
November 9

Fayetteville Scleroderma Support Group
The Fayetteville Scleroderma Support Group meets monthly in the Medical Arts Center at 101 Robeson Street. Scleroderma patients and their loved ones are invited for support and information about the disease. For more information, please contact Support Group Leaders: Donna Thomas (910) 308-9792 and Kim Sublett (910) 237-2390 or via email fayettevillescleroderma@gmail.com.

Wilmington area Support Group
Support Group Leader: Betty Hughes
Phone: 1-910-231-7925
This group meets at the Pender County Public Library
103 S Cowan St, Burgaw, NC  28425
For upcoming meeting, please contact the Support Group Leader via email Wilmingtonscleroderma@gmail.com to confirm times and dates

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Ohio
 

For more information about support groups in Ohio, contact the chapter.

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Oklahoma

For more information about support groups in Oklahoma, contact the chapter.

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Oregon
 

For more information about support groups in Oregon, contact the chapter.

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Pennsylvania

For more information about support groups in Pennsylvania, contact the Delaware Valley Chapter.

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Puerto Rico
 

San Juan
Contact: Manny & Sylvia Quevedo, 787-792-4038, or 787-792-3882, email lordrealty@lordrealty.com.

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Rhode Island

For more information about support groups in Rhode Island, contact the New England Chapter.

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South Carolina

For more information about support groups in South Carolina, contact the chapter.

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Tennessee
 

For more information about support groups in Tennessee, contact the chapter.

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Texas

For more information about support groups in Texas, contact the chapter.

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Utah

Northern Utah (Layton) Support Group
Support Group Leader: Sherry Blosch, 801-943-2468, dimples4me@msn.com Co-Leader: Judy Bradshaw, j.l.bradshaw@att.net

Park City Utah Support Group
Support Group Leader- Rachel Lando, 305-761-4186, ScleroPC@gmail.com
March 26th @ 6 PM at the University of Utah
May 3rd at Noon at University of Utah
Please contact the support group leader to confirm future Meetings.

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Vermont
 

For more information about support groups in Vermont, contact the New England Chapter.

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Virginia

Fredricksburg Area Support Group
Support Group Leader: Christine Hamblin, 540-720 -2079, hamblinc@aol.com

Norfolk (Phone Support)
Contact: Audrey Gutterman, 757-855-5200, audgut@aol.com.

Richmond Area Support Group
Support Group Leaders: Christine Hamblin, 540-720 -2079, hamblinc@aol.com; Teresa Crumpler, 804-233-5809, cteresa@comcast.net; or Shirley Hill-Rasberry, 804-329-5223, tacnn@comcast.net

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Washington
 

For more information about support groups in Washington, contact the chapter.

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West Virginia
 

Charleston (Telephone Support)
Contact: Scott Miller, 304-610-2898, samiller5@yahoo.com

Huntington Area Support Group
River Cities Community Church
4385 Route 60 East
Huntington, WV 25705
Thursday, March 7th at 6:30PM in Room 301
Please park in the RED lot
You will see two doors with canopies, use the second door.
For more info contact Karen Baker
karen_baker69@yahoo.com
1-304-736-9882

Weirton (Telephone Support)
Contact: Sandra Fennych, 304-723-5177, sfennych@comcast.net

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Spanish-Speaking Contacts

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Wilmington area Support Group

Support Group Leader- Betty Hughes- 1-910-231-7925

 

This group meets at the Pender County Public Library

103 S Cowan St, Burgaw, NC  28425

 

For upcoming meeting, please contact the Support Group Leader to confirm times and dates