The use of contact information (email addresses and phone numbers) on our website is strictly for persons interested in contacting chapter and support group volunteers and staff for support and informational purposes only. This contact information SHOULD NOT be taken from our website for solicitation or commercial use.
Please click on a state to find a support group near you. We are working diligently to expand our network of support groups and are always interested in motivated, dedicated volunteers to assist us in that endeavor. To find out how you can help, please contact our the National Office at (800) 722-4673.
*Phone Contacts are individuals who would like to offer phone and email support but do not run a support group.
Alabama | Alaska | Arizona | Arkansas | California | Colorado | Connecticut | District of Columbia | Delaware | Florida | Georgia | Hawaii | Idaho | Illinois | Indiana | Iowa | Kansas | Louisiana | Maine | Maryland | Massachusetts | Michigan | Minnesota | Missouri | Nebraska | Nevada | New Hampshire | New Jersey | New Mexico | New York | North Carolina | Ohio | Oklahoma | Oregon | Pennsylvania | Puerto Rico | Rhode Island | South Carolina | Tennessee | Texas | Utah | Vermont | Virginia | Washington | West Virginia
Calera Area Support Group
Calera Public Library
9700 Hwy. 25
Calera, AL 35040
May 17 2014
July 12 2014
September 13 2014
November 8 2014
10:00 AM - 12:00 Noon
For more information please contact Support Group Leader Clarissa Hallowell
Assistant Support Group Leader: Jo Ann Bokenkamp
Phone: (334) 730-1363
Florence (Telephone Support)
Contact: Sarah Logan, 256-332-0048
Support Group Leader: Marcella Scruggs, 256-323-0715, email@example.com
Meetings are held at 4900 Meridian Street, Morrison Building, Room 101-A, Huntsville, AL 35762
Next meeting dates are:
April 19, 2014, meet and greet,
May 17, 2014
June 21, 2014
July 19, 2014
August 16, 2014
Sept 20, 2014
Oct 20, 2014,last meeting
Meetings go from 1:00 p.m. - 3:00 p.m. For information and direction, please call 256-323-0715.
Alaska (Telephone Support)
Contact: Sherry Furlong, 907-224-2520, firstname.lastname@example.org
Mohave Valley (Bullhead City) Support Group
Support Group Leader: Carol Hayward, 928-768-9323, email@example.com
Southern Arizona (Tucson) Support Group
Casas Adobes Congregational Church
6801 N. Oracle Rd.
Tucson, AZ 85704
Park in the East lot, off of Oracle Road
Support Group Leader: Pat Gould, (after 1:00 p.m.) 520-742-0199, firstname.lastname@example.org
Time: 1:00 pm - 3:00 pm
Meeting Dates for 2013:
No Meetings June, July, & August
No Meetings November & December.
November Holiday Party, date & time to be determined.
West Phoenix Support Group
Support Group Leader: Janice McBreen, 623-203-6758, email@example.com
Benton Support Group
Support Group Leader: Pam Ray, 501-778-8737, firstname.lastname@example.org
Manhattan, Kansas Area Support Group
Manhattan Public Library
Groesbeck Meeting Room
629 Poyntz Ave
Manhattan, KS 66502
First Meeting is scheduled for Wednesday, September 17th 2014
For more information please contact support group leader Jaime Lienemann-Stockman, (785) 799-4261 or email@example.com.
Northwest Arkansas Area Support Group
Meetings will be held at:
Rogers Public Library
Glotzbecker Conference Room
711 South Dixieland Road
Rogers, Arkansas 72758
The first scheduled meetings:
Monday, July 14th from 7:00pm-8:00pm
Monday, August 11th from 7:00pm-8:00pm
For more information please contact Support Group Leaders:
Elizabeth and Jack Hammons
Learn more about support groups in California from our chapters:
Learn more about support groups in Colorado from our chapter.
Learn more about support groups in Connecticut from our Tri-State Chapter.
Learn more about support groups in Washington D.C. from our chapter.
Learn more about support groups in Delaware from our Delaware Valley Chapter.
If you live in southeast Florida, learn more about support groups from the Southeast Florida Chapter. For other areas of Florida, look below:
Support Group Leader: Jeffrey Severino, 863-452-2968, firstname.lastname@example.org
Scleroderma Support Group of Volusia County (Florida)
Meeting location: Coronado Community United Methodist Church, New Smyrna Beach, FL, Room 109
Meeting Dates: 2nd Sunday every other month: April, June, August, October, December, February
Time: 2:00 pm
Contact for directions, info: Eileen Savell, 386-689-4431, email: email@example.com
Lady Lake Scleroderma Support Group
Support Group Leader: Jean Clark, 352-753-9500
Central Florida Support Group (Orlando Area)
Florida Hospital Family Resource Center (white building next to Dunkin Donuts on SR 436)
651 E Altamonte Drive
Altamonte Springs, FL 32701
January 11th and March 8th at 10:30AM
For more information please contact:
Jan Gura- 1-407-376-3076, JRGura@earthlink.net
Jennifer Scheinberg- 1-407-257-5908, JPScheinberg@gmail.com
Sarasota Area Support Group
Waldemere Medical Plaza, 1921 Waldemere St. Sarasota, Florida, 2nd Floor, Mimosa Room.
Waldemere Medical Plaza is located directly across from Sarasota Memorial Hospital on Waldemere Street.
Support Group Leader: Cindy Grantham-Spears, 941-539-4479 firstname.lastname@example.org
Please contact the Support Group Leader to confirm future meetings.
Upcoming Meeting Dates: Sept. 20, 2014; Nov. 15, 2014; Jan. 17, 2015; March 21, 2015
10 a.m. to 12:00 noon the 3rd Saturday of every other month
Tampa Support Group
Support Group Leaders: Lynn Goff, 813-995-2700, email@example.com
Susan Marie Foundation - Scleroderma Support Group Meeting
Date: March 23, Sunday
Location: Cypress Keep Clubhouse at 13671 Abbey Dr., Fort Myers, Fl. 33919
The Susan Marie Foundation will host its first meeting, on March 23rd.
RSVP please, to Sandie at firstname.lastname@example.org.
Learn more about support groups from our Georgia Chapter.
Waipahu Support Group
Support Group Leader: Ken Athans, 904-891-3085, email@example.com
Kaiser Permanente Clinic, 94-1480 Moaniani Street, Waipahu, Hawaii 96797
Conference room B 6:00-8:00pm
January 14, 2013
March 11, 2013
May 13, 2013
July 8, 2013
September 9, 2013
November 11, 2013
Boise Area Support Group
Support Group Leader: Linda Seeley, (208) 922-2852, Scleroermagrp@aol.com (Please note, no 'd' in scleroderma in the email address)
- 1 p.m. Saturday, Sept. 27 at Golden Star Restaurant, Boise, Idaho
- 6 p.m. Tuesday, Oct. 7 in Meridian, Idaho. The speaker will be podiatrist Dr. Randy Lowe.
Please call or email to reserve your spot at one of our upcoming meetings and for detailed location information.
Learn more about support groups from our Greater Chicago Chapter.
Anderson Support Group
Support Group Leader: Ellen Kay, (765) 506-4315 or email firstname.lastname@example.org. Note: We do not meet during the winter months
For more information about support groups in Iowa, contact the Heartland chapter.
Wichita Support Group
Support Group Leader: Sharon Leiker at 316-683-8335, email@example.com
Baton Rouge Support Group
Support Group Leader: Del Anselmo, 225-756-2452 (home) or 225-324-3666 (cell) firstname.lastname@example.org or Rebecca Nugent at 225-270-5590
Latte E Miele Gelateria and Coffeehouse
7809 Jefferson Highway
Baton Rouge, LA 70810
Starting at 5:00 p.m.
Tuesday, January 14th, 2014
Tuesday, April 8th, 2014
Tuesday, July 8th, 2014
Tuesday, October 14th, 2014
Shreveport (Telephone Support)
Contact: Dicy Cary-Cowart, 318-525-1536, email@example.com
For more information about support groups in Maine, contact the New England Chapter.
Columbia Support Group
Support Group Leader: Sharon Howard, 443-310-1286, firstname.lastname@example.org
For more information about support groups in Massachusetts, contact the New England Chapter.
For more information about support groups in Michigan, contact the chapter.
For more information about support groups in Minnesota, contact the chapter.
For more information about support groups in Missouri, contact the chapter.
For more information about support groups in Nebraska, contact the Heartland chapter.
For more information about support groups in Nevada, please contact the National Office at (800) 722-4673.
For more information about support groups in New Hampshire, contact the New England Chapter.
For support groups in Burlington/Camden, Warren and Woodbury, contact the Delaware Valley Chapter.
For support groups in Northern New Jersey, contact the Tri-State Chapter.
Albuquerque Area Support Group
Saturday January 18th, 10:00am-12:00pm
Saturday February 15th, 10:00am-12:00pm
Saturday March 15th, 10:00am-12:00pm
Saturday April 19th, 10:00am-12:00pm
Saturday May 17th, 10:00am-12:00pm
Saturday June 21st, 10:00am-12:00pm
Saturday July 19th, 10:00am-12:00pm
Saturday August 23rd, 10:00am-12:00pm
Le Chantilly (Bakery & Café)
8216 Menaul NE
Hoffmantown Shopping Center
Albuquerque, NM 87110
(Just W. of Wyoming on the S. side)
Please R.S.V.P. if you can!
Each meeting will include time for introductions and open discussion on topics and issues related to scleroderma.
For more information, please contact Shelly Hart (505) 553-4607 email@example.com or Rebecca Otero (505) 839-0340 Stylinmsrebecca@comcast.net
For information about support groups in New York, contact the Tri-State Chapter.
Triangle Area Support Group
Support Group Leaders: Teresa Stone, 919-596-0560, m. 919.323.9598, firstname.lastname@example.org or Jane Pahner, 919-969-7676, email@example.com
Bethesda Baptist Church, 1914 South Miami Boulevard, Durham, NC
2013 Meeting Dates:
July 14 - Dr. Ankoor Shah, of the Rheumatology Department at Duke University Hospital, will be speaking. He will be the director of the new Scleroderma Clinic in the department.
Nov 10 - Dr. Paul Aaran D.C. will be speaking on nutrition and the digestive system.
No Meeting in December
2014 Meeting Dates:
August 10 - Crystal Weber R.N. of Duke University Hospital and Anthony Lombardo, executive institutional specialist-PAH from Gilead will be speaking at the office meeting on scleroderma and pulmonary hypertension.
November 9 - Valerie Scott of United Therapeutics Living With PAH Patients Programs will be speaking at the office meeting about patients with PAH.
No Meeting in December
Fayetteville Scleroderma Support Group
The Fayetteville Scleroderma Support Group meets monthly in the Medical Arts Center at 101 Robeson Street. Scleroderma patients and their loved ones are invited for support and information about the disease. For more information, please contact Support Group Leaders: Donna Thomas (910) 308-9792 and Kim Sublett (910) 237-2390 or via email firstname.lastname@example.org.
Wilmington area Support Group
Support Group Leader: Betty Hughes
This group meets at the Pender County Public Library
103 S Cowan St, Burgaw, NC 28425
For upcoming meeting, please contact the Support Group Leader via email Wilmingtonscleroderma@gmail.com to confirm times and dates
For more information about support groups in Ohio, contact the chapter.
For more information about support groups in Oklahoma, contact the chapter.
For more information about support groups in Oregon, contact the chapter.
For more information about support groups in Pennsylvania, contact the Delaware Valley Chapter.
Contact: Manny & Sylvia Quevedo, 787-792-4038, or 787-792-3882, email email@example.com.
For more information about support groups in Rhode Island, contact the New England Chapter.
For more information about support groups in South Carolina, contact the chapter.
For more information about support groups in Tennessee, contact the chapter.
For more information about support groups in Texas, contact the chapter.
Park City Utah Support Group
Support Group Leader- Rachel Lando, 305-761-4186, ScleroPC@gmail.com
March 26th @ 6 PM at the University of Utah
May 3rd at Noon at University of Utah
Saturday, June 14th @ Noon – Walk Discussion
Saturday, August 9th @ Noon
Wednesday, September 17 @ 6 PM
Saturday, November 1st @ Noon
Saturday, December 13th @ Noon
Please contact the support group leader to confirm future Meetings.
For more information about support groups in Vermont, contact the New England Chapter.
Fredricksburg Area Support Group
Support Group Leader: Christine Hamblin, 540-720 -2079, firstname.lastname@example.org
Norfolk (Phone Support)
Contact: Audrey Gutterman, 757-855-5200, email@example.com.
Richmond Area Support Group
Support Group Leaders: Christine Hamblin, 540-720 -2079, firstname.lastname@example.org; Teresa Crumpler, 804-233-5809, email@example.com; or Shirley Hill-Rasberry, 804-329-5223, firstname.lastname@example.org
For more information about support groups in Washington, contact the chapter.
Charleston (Telephone Support)
Contact: Scott Miller, 304-610-2898, email@example.com
Huntington Area Support Group
River Cities Community Church
4385 Route 60 East
Huntington, WV 25705
Thursday, March 7th at 6:30PM in Room 301
Please park in the RED lot
You will see two doors with canopies, use the second door.
For more info contact Karen Baker
Weirton (Telephone Support)
Contact: Sandra Fennych, 304-723-5177, firstname.lastname@example.org
- In Los Angeles: Josephine Battyany, (310) 287-0793
- In NY: Beatriz Nunez, 631-667-2655
- In Puerto Rico: Edwin Lamoli, 787-851-2269; Awilda E. Berrios Burgos, 787-219-7049, 787-434-7859 y 787-308-7411, email@example.com o firstname.lastname@example.org; Manny Quevedo, 787-792-4038, email@example.com; o Sylvia Quevedo, 787-792-3882