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Support Groups

The use of contact information (email addresses and phone numbers) on our website is strictly for persons interested in contacting chapter and support group volunteers and staff for support and informational purposes only. This contact information SHOULD NOT be taken from our website for solicitation or commercial use.

Please click on a state to find a support group near you. We are working diligently to expand our network of support groups and are always interested in motivated, dedicated volunteers to assist us in that endeavor. To find out how you can help, please contact our the national office at (800) 722-4673.

*Phone contacts are individuals who offer phone and email support, but do not run a support group.


Alabama | Arizona | Arkansas | California | Colorado | Connecticut | District of Columbia | Delaware | Florida | Georgia | Hawaii | Idaho | Illinois | Indiana | Iowa | Kansas | Louisiana | Maine | Massachusetts | Michigan | Minnesota | Missouri | Nebraska | Nevada | New Hampshire | New Jersey | New Mexico | New York | North Carolina | Ohio | Oklahoma | Oregon | Pennsylvania | Puerto Rico | Rhode Island | South Carolina |
South Dakota | Tennessee | Texas | Utah | Vermont | Virginia | Washington | West Virginia | Wisconsin

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Alabama  

Calera Area Support Group
Calera Public Library
9700 Hwy. 25
Calera, AL 35040
For more information, please contact Support Group Leader Jo Ann Bokenkamp
Email: JoAnnBokenkamp@yahoo.com
Phone: (334) 730-1363
Assistant Support Group Leader: Clarissa Hallowell
Email: bhmsclerofriends@yahoo.com
Phone: (205) 492-7482

Florence  (Telephone Support)
Contact: Sarah Logan, 256-332-0048

Huntsville
Meetings are held at 4900 Meridian Street, Morrison Building, Room 101-A, Huntsville, AL 35762
Meetings go from 1 p.m. - 3 p.m. For information and direction, please call (256) 323-0715.

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Arizona

Mohave Valley (Bullhead City) Support Group
Support Group Leader: Carol Hayward, 928-768-9323

Southern Arizona (Tucson) Support Group

Casas Adobes Congregational Church
6801 N. Oracle Rd.
Tucson, AZ 85704
Park in the East lot, off of Oracle Road
Support Group Leader: Pat Gould, (after 1 p.m.) 520-742-0199, pag90az@comcast.net
Support Group Leader: Matty Heenan 520-749-4709 or mattyheenan1@gmail.com

Please join us on the second Tuesday of the month from 1-3 p.m. Check below for 2018 dates:

  • January 9
  • February 13
  • March 13
  • April 10
  • May 8
  • No meetings in June, July and August
  • September 11
  • October 9
  • No meetings in November and December

For more information please contact Pat Gould at: (520) 742-0199

Phoenix Support Group
Support Group Co-Leaders:
Holly Roberts, 602-697-7727, hollyroberts@q.com   
Diane Wilson, 615-293-2709, dwsclero@gmail.com 

Next meetings are:

  • February 24, 2018 - Glendale
  • March 24 - Phoenix
  • April 28 - Phoenix
  • May 19 - Glendale
  • June 23 - Phoenix
  • July - no meeting
  • August - no meeting
  • September 22 - Phoenix
  • October 27 - Location to be announced

Glendale address – Abrazo Arrowhead Hospital – 18699 N 67 Ave., Glendale – Palo Verde Room, 2nd floor
Phoenix address  Abrazo AZ Heart Hospital  1930 E Thomas Rd., Phoenix  2nd floor classroom

Please email Holly or Diane to be included in monthly email list.

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Arkansas

 Benton Support Group
Support Group Leader:
Pam Ray, 501-778-8737, pamray@aol.com

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California

Fresno Support Group
Call for next meeting
Fig Garden Library, Fig Garden Meeting Room
3071 West Bullard Ave, Fresno, CA 93711
Contact: Mary Huckabee
Phone: (209) 852-2870
Email: maryhuckabee_sd@yahoo.com 

Palo Alto Support Group
10:30 a.m. - 12:30 p.m., 2nd Saturday of each month
The Palo Alto Medical Foundation, 2nd Floor, Room N2 Conference Room
795 El Camino Real, Palo Alto, CA 94301
Contact: Rachel Ho
Phone: (415) 680-4389
Email: rachelhosf@gmail.com

Santa Rosa Support Group
10 a.m. - 12 p.m., 4th Saturday of the month
Sutter Medical Center Warrack Campus, 2449 Summerfield Rd, 2nd Floor, Santa Rosa, CA 95405
Contacts:  Cathy Eddy - eddyc@sbcglobal.net - 707-538-9193; Jenene Robinson - jenjonrob@att.net - 707-894-3605
**Schedule, location, topics or speakers subject to change. Please contact Cathy to confirm.

Turlock Support Group
10 a.m. – 12 p.m. Call for next meeting date.
Raley’s Store, 2900 Geer Road, Turlock, CA
Contact: Mary Huckabee
Phone: (209) 852-2870
Email: maryhuckabee_sd@yahoo.com

 

  • Southern California (Note: The Greater San Diego Chapter is now a part of the Southern California Chapter)

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Colorado

Learn more about support groups in Colorado from our chapter. 

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Connecticut

Learn more about support groups in Connecticut from our Tri-State Chapter.

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District of Columbia

Learn more about support groups in Washington D.C. from our chapter.

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Delaware

Learn more about support groups in Delaware from our Delaware Valley Chapter. 

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Florida

If you live in Southeast Florida, learn more about support groups from the Southeast Florida Chapter. For other areas of Florida, look below:

Scleroderma Support Group of Volusia County (Florida)
Coronado Community United Methodist Church, New Smyrna Beach, FL, Room 109
Second Sunday every other month
Time: 2 p.m.
Contact for directions, info: Eileen Savell, 386-689-4431, email: eileensavell.sclero@gmail.com

Jacksonville, Florida Support Group
Meetings take place at The Salem Centre, 7235 Bonneval Road, Room 234, Jacksonville, FL 32256
Meetings will be held from 12 p.m. to 2 p.m. on the following dates:

  • February 10, 2018
  • March 10
  • April 14
  • May 12
  • June - Lunch event TBA
  • July 14 cancelled
  • August 11
  • September 8
  • October 13
  • November - Lunch event TBA
  • December - No meeting

SEEKING GROUP CO-LEADER, for more information please contact:
Vicky Pina, (800) 722-4673, Vicky.Pina@gmail.com

Lady Lake Scleroderma Support Group
Support Group Leader: Jean Clark, 352-753-9500

Central Florida Support Group (Orlando Area)
Meetings take place at Exit Realty Office
401 S. Rosalind Ave.
Orlando, Florida 32801
For more information please contact:
Jan Gura - 407-376-3076, JRGura@earthlink.net
Jennifer Scheinberg - 407-257-5908, JPScheinberg@gmail.com

Sarasota Area Support Group
Waldemere Medical Plaza, 1921 Waldemere St. Sarasota, Florida, 2nd Floor, Mimosa Room (located directly across from Sarasota Memorial Hospital on Waldemere Street).
Support Group Leader: Cindy Grantham-Spears, 941-539-4479, cindygrantham941@gmail.com
Please contact the Support Group Leader to confirm future meetings.

Tampa Support Group
Support Group Leader: Lynn Goff, 813-995-2700, jlynnk1@verizon.net

Susan Marie Foundation - Scleroderma Support Group Meeting
Time: Last Saturday of every month at 10 a.m.
Location: Lakes Regional Library, Rm B, 152900 Bass Rd, Ft Myers
RSVP to Sandie at sandie@smsclerodermafoundation.com.

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Georgia

Learn more about support groups from our Georgia Chapter.

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Hawaii

Waipahu Support Group
Support Group Leader: Ken Athans, 904-891-3085, hawaiisclerodermanetwork@gmail.com
Kaiser Permanente Clinic, 94-1480 Moaniani Street, Waipahu, Hawaii 96797
Conference room B from 6 p.m. - 8 p.m.
Call or email for upcoming dates

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Idaho

Southern Idaho Scleroderma Support Group
For Patients, Family Members and Friends
Location:  St. Luke's Meridian Medical Center, 520 S. Eagle Rd., Meridian, ID  83642
Directions & Parking: Enter from Eagle Road and go to the main entrance.  Parking is located at the front of the building.

Time: 10 a.m. – 11:30 a.m.

Meeting Schedule:

  • Saturday, February 10, 2018
  • Saturday, March 10, 2018
  • Saturday, April 14, 2018
  • Saturday, May 12, 2018
  • Saturday, June 9, 2018
  • Saturday, July 14, 2018
  • Saturday, August 11, 2018
  • Saturday, September 8, 2018
  • Saturday, October 13, 2018
  • Saturday, November 10, 2018
  • Saturday, December 8, 2018

For More Information:
Dee Burlile, JoAnna Harper, Sean Burlile
scleroderma.idaho@gmail.com or 800-722-4673

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Illinois
 Learn more about support groups from our Greater Chicago Chapter.

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Indiana

Central Indiana Scleroderma Self Help Group (TWO LOCATIONS)
North Location - 7250 Clearvista Drive, Indianapolis, IN 46256
#CHN 7250,
Visionary Ballpark Conference 
This is on the Community Hospital North campus in the 7250 building, second floor

South Location - Community Hospital South, 1402 East County Line Rd., Indianapolis, IN 46227
Conference Rooms 5 & 6

Meetings include time to meet and greet and share stories and information. Some of the meetings will have guest presenters. The atmosphere is informal and later arrivals are welcome.

Contact: Maureen Hays at mhays85@att.net, 317-781-9726 

 

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Iowa

For more information about support groups in Iowa, contact the Heartland Chapter.

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Kansas   

Topeka Area Support Group
Topeka Shawnee County Library
1515 SW 10th Ave, Topeka, KS 66605
Hughes Room #205
First Meeting will be September 14 from 6 p.m. - 8 p.m.
For more information please contact Support Group Leader Emily Morris at 785-215-1236 or emilymorris0417@hotmail.com

Wichita Support Group
Support Group Leader: Sharon Leiker at 316-683-8335, leikers@cox.net

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Louisiana

Baton Rouge Support Group
Contacts:
Del Anselmo, 225-756-2452 (home) or 225-324-3666 (cell) delzorah@gmail.com 
Rebecca Nugent 225-270-5590
The Settlement Shopping Center, Suite C-1
7809 Jefferson Highway
Baton Rouge, LA 70810

Many, Louisiana Area Support Group

Beulah Baptist Church
31665 Hwy 191
Many, LA 71449
Please contact Support Group Leader Tina Dowden for more info at 936-332-3296 or sclerodermamany@gmail.com

New Orleans Area Support Group
University Medical Office Bldg. (UMOB)
2025 Gravier Street New Orleans, LA 70112
Meeting time is 6 p.m. to 8 p.m.
For more information, please contact the Support Group Leader Joy Mitchell - nolascleroderma@gmail.com or 504-301-7737.

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Maine
For more information about support groups in Maine, contact the New England Chapter.

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Massachusetts

 For more information about support groups in Massachusetts, contact the New England Chapter.

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Michigan

For more information about support groups in Michigan, contact the chapter.

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Minnesota

For more information about support groups in Minnesota, contact the chapter.

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Missouri

For more information about support groups in Missouri, contact the chapter.

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Nebraska

For more information about support groups in Nebraska, contact the Heartland Chapter.

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Nevada

Las Vegas Area Support Group

Check back soon for more information on upcoming meetings. 

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New Hampshire

For more information about support groups in New Hampshire, contact the New England Chapter.

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New Jersey

For support groups in Burlington/Camden, Warren and Woodbury, contact the Delaware Valley Chapter.

For support groups in Northern New Jersey, contact the Tri-State Chapter.

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New Mexico

To inquire about creating a support group, please contact SFinfo@scleroderma.org, or call 800-722-4673.

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New York

For information about support groups in New York, contact the Tri-State Chapter.

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North Carolina

Durham
Triangle Area Support Group
Support Group Leaders: Teresa Stone, 919-596-0560, m. 919-323-9598, stone35@frontier.com
or Jane Pahner, 919-969-7676, japahner@yahoo.com
Bethesda Baptist Church, 1914 South Miami Boulevard, Durham, NC
2 p.m. - 4 p.m.

2018 Meeting Dates

  • Jan. 14
  • Feb. 11
  • Mar. 11
  • Apr. 8
  • May 20
  • June 10
  • July 8
  • Aug. 12
  • Sep. 9
  • Oct. 14
  • Nov. 11
  • No meeting in Dec.

Fayetteville Scleroderma Support Group
The Fayetteville Scleroderma Support Group meets in the Medical Arts Center at 101 Robeson St., Room 106; 10 a.m. to 12 p.m. on the third Saturday of every month except for July and December.
Scleroderma patients and their loved ones are invited for support and information about the disease.
For more information, please contact Support Group Leaders:
Donna Thomas 910-308-9792 and Kim Sublett 910-237-2390 or via email at donnat55@embarqmail.com

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Ohio
 
For more information about support groups in Ohio, contact the chapter.

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Oklahoma

For more information about support groups in Oklahoma, contact the chapter.

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Oregon

For more information about support groups in Oregon, contact the chapter.

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Pennsylvania

For more information about additional support groups in Pennsylvania, contact the Delaware Valley Chapter.

WESTERN PENNSYLVANIA

Pittsburgh Area

Last Saturday of every month except where noted.

April 28, 2018; 3 p.m. - 4:30 p.m. 
Panera Bread (meeting room) - please note the new location.
5430 Centre Avenue
Pittsburgh, PA  15232
CONTACT Caroline & Tim Graettinger SFgroupPITT@gmail.com; (724) 743-3642 

Future meetings: May 26, June 30, July 21*, August 25, September 29, October 27, November 24 and December 22*

*July 21 and December 22 meetings are scheduled to accommodate the National Patient Education Conference in July and the Christmas holiday.

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Puerto Rico
 
San Juan

Contact: Manny & Sylvia Quevedo, 787-792-4038, or 787-792-3882, email lordrealty@lordrealty.com.

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Rhode Island

For more information about support groups in Rhode Island, contact the New England Chapter.

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South Carolina

For more information about support groups in South Carolina, contact the chapter.

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South Dakota

Black Hills Support Group

Rapid City Public Library
610 Quincy Street, Rapid City, SD 57701

Meetings are the first Wednesday of every month from 5 p.m. to 7 p.m. at the Rapid City Public Library with the exception of July 11* (second Wednesday of the month):

  • April 4
  • May 2
  • June 6
  • July 11* (2nd Wednesday)
  • August 1
  • September 5
  • October 3
  • November 7
  • December 5

For more information, please contact Support Group Leader Ron Sasso
Email:  BHScleroderma@gmail.com, Phone: 605-593-3759

Sioux Falls Support Group

For information about the Sioux Falls Support Group, contact the Heartland Chapter.

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Tennessee

For more information about support groups in Tennessee, contact the chapter.

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Texas

For more information about support groups in Texas, contact the chapter.

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Utah

Utah Regional Support Group
Support Group Leader: Rachel Lando: (305) 761-4186, ScleroSLC.Rachel@gmail.com
Info on meeting dates to come.

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Vermont
 
For more information about support groups in Vermont, contact the New England Chapter.

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Virginia

Fredricksburg Area Support Group
Support Group Leader: Christine Hamblin, 540-720 -2079, hamblinc@aol.com

Norfolk (Phone Support)
Contact: Audrey Gutterman, 757-855-5200, audgut@aol.com.

Richmond Area Support Group
Support Group Leaders: Christine Hamblin, 540-720 -2079, hamblinc@aol.com; Teresa Crumpler, 804-233-5809, cteresa@comcast.net; or Shirley Hill-Rasberry, 804-329-5223, tacnn@comcast.net

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Washington

For more information about support groups in Washington, contact the chapter.

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West Virginia

Huntington Area Support Group
River Cities Community Church
4385 Route 60 East
Huntington, WV 25705

Thursday, March 7 at 6:30 p.m. in Room 301
Please park in the RED lot
You will see two doors with canopies, use the second door.
For more info contact Karen Baker
karen_baker69@yahoo.com
1-304-736-9882

Weirton (Telephone Support)
Contact: Sandra Fennych, 304-723-5177, sfennych@comcast.net

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Wisconsin

Green Bay/Northeast Wisconsin
Dates/Times: Second Wednesday of every month, 1-3 p.m. 
Location: Bellin Health Family Medical & Wellness Center Bellevue
3263 Eaton Road
Green Bay, WI 54311
 
Support Group Leader: Valarie Hutchison
920-544-9676
sclerodermawi@gmail.com

Milwaukee Area

Dates/Times: Third Saturday of every month, 10 a.m. - 12 p.m.
Location: Froedtert Hospital (Community Conference Room 2)
8700 W. Watertown Plank Rd.
Milwaukee, WI 53226
Community Conference Room 2 located in the Wisconsin Athletic Club building.
Enter building on the 87th Street side and look for Community Conference Room entrance.

Support Group Leader: 
Kelly Kohls, sclerodermamilw@gmail.com
 

For more information about support groups in Wisconsin, please contact the Greater Chicago Chapter.

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Spanish-Speaking Contacts

  • In Los Angeles: Josephine Battyany, (310) 287-0793
  • In NY: Beatriz Nunez, 631-667-2655
  • In Puerto Rico: Manny Quevedo, 787-399-4038 (Monday – Friday 8:30 a.m. – 5 p.m. only), lordrealty@lordrealty.com

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Wilmington area Support Group

Support Group Leader- Betty Hughes- 1-910-231-7925

 

This group meets at the Pender County Public Library

103 S Cowan St, Burgaw, NC  28425

 

For upcoming meeting, please contact the Support Group Leader to confirm times and dates