Patients and Newly Diagnosed

Having scleroderma didn't stop Texas Chapter President Cindi Brannum from being awarded Chapter Volunteer of the Year at the 2008 Scleroderma Foundation National Conference.A new diagnosis of scleroderma doesn't have to be overwhelming, even though the disease is complex. The symptoms of scleroderma vary greatly for each person, and the disease's effects can range from mild to severe. The severity depends on which parts of the body and to what extent in which they are affected. A mild case can become serious if not properly treated. Quick and proper diagnosis and treatment by qualified physicians may help minimize the symptoms of scleroderma and decrease the chance of irreversible damage.

Scleroderma is not contagious, an infection, a cancer or malignant. There are an estimated 300,000 people in the United States who have scleroderma. About one-third of those people have the systemic form of the disease. Since the symptoms of scleroderma are similar to those of other autoimmune diseases, diagnosis is difficult. There also may be many misdiagnosed or undiagnosed cases.

About Scleroderma

There are two major classifications of scleroderma: localized scleroderma and systemic sclerosis (SSc).

Medical Information

Becoming better informed and more organized will help you be a more effective partner in your healthcare.

Resources

We have compiled this list to assist patients and their families, many of whom have expressed a need for these types of services.

Connect with Others

You are not alone! We offer chapters and support groups all across the U.S. Members of these groups can offer you beneficial support and guidance.