Patient Education Days
The Scleroderma Foundation hosts various educational events for patients, family members and caregivers throughout the year. Many of these events are run by our chapters and support groups. To find an event near you, contact your local chapter or support group.
National Patient Education Conference
We also bring together the leading scleroderma experts from around the world to our National Patient Education Conference. This event - held in a different U.S. city each year - is one of the largest gatherings for the scleroderma community. It includes panel discussions, workshops and other activities to help answer your questions about the disease.
Sample workshops and discussion topics include:
Conference attendees also can meet with vendors in our exhibit hall, attend a welcome networking dessert reception, and meet with high-profile scleroderma physicians, researchers and other health care professionals in a one-on-one environment. The conference is an excellent opportunity to meet new friends and discuss ways to cope with the disease the a supportive, positive environment.
**Please note that these titles are subject to change. If you attend the conference, be sure to check your program book for the most accurate listing of topics and workshop offerings.
African-American Patient Education Day
In 2011, the Scleroderma Foundation held its first education event dedicated solely to the African-American community. We partnered with scleroderma experts from Johns Hopkins University Medical Center and Georgetown University Medical Center to host this unique event. We hope to hold the event again in 2013.
Physician and Continuing Education Courses
The following continuing medical education (CME) and continuing education (CE) courses are available for health care professionals about scleroderma and related diseases:
Note: When you click a link below, a new page will open to an external site and you will leave the Scleroderma Foundation website.
Pulmonary Hypertension in Systemic Sclerosis
Online Program by Virginia D. Steen, MD; Georgetown University Medical Center
- Patients & Newly Diagnosed
- Healthcare Professionals