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Welcome to the Ohio Chapter Website!

We offer support groups, educational events and other resources for the scleroderma community.

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Find a Support Group

Check out our list of groups>>  

 

 

 




UPCOMING EVENTS                   

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Team leaders for Ohio Chapter walks will be awarded raffle tickets for a
7-day condo stay for up to six people in North Fort Myers, Florida. One ticket will be awarded for each $100 raised. Walks will be held in Boardman, Toledo, Cincinnati, Cleveland and Fairborn. Register on-line soon.  Beds include: one king, one queen, two twin beds and one queen sleeper sofa in study.  
See photos of the condo HERE!

 

 


Be sure to sign up for the Ohio Chapter E-Newsletter, and Like our Facebook page for the latest happenings!

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You'll want to attend the Dayton area 7th Annual Stepping Out to Cure Scleroderma Walk on 8/4/18!

Hit the Links! Register for the Dr. Susan K. Leone Memorial Golf Scramble for Scleroderma in Boardman

Register now for the new walk - Stepping Out to Cure Scleroderma - Cleveland's Walk for Research!

Got "spare" time? Bowl for Scleroderma in Beavercreek, OH on 9/22/18!

Tee off at the Dave Ludolph Memorial Golf Tournament in Delaware, OH on October 6! Email info@sfohio.org for info here!

Don't Miss our Patient Education Conference - Register for State Conference in Columbus, OH on October 12-14!

Our Ugly Dress Gala on October 13, 2018 is a blast! Register here!


These events are already over, but you can still donate!

Toledo:
Stepping Out to Cure Scleroderma Walk
June 9, 2018
DONATE HERE!>>

Cincinnati:
Family Fun and Dog Walk
Saturday, June 30, 2018
DONATE HERE!>>

 


 

Girlfriends walk Purple People Bridge

Let Your Voice Be Heard!

Action Item!  Please click here to sign up for our action alerts. It's the best way to get advocacy information immediately and to find out when we need you to contact your representatives.

 

 

 

Breaking News!Capitol Dome Cherry Blossoms Square
On Friday, June 22, U.S. Representative Peter T. King (R-NY, 2nd District) spoke on the floor of the House of Representatives to recognize June as Scleroderma Awareness Month.  

Representative King is the lead sponsor of H.R. 4638, National Commission on Scleroderma and Fibrotic Diseases Act of 2017, to evaluate and make recommendations regarding improvements to the coordination and advancement of NIH-supported research activities related to fibrosis and fibrotic diseases.

As you may already know, we are currently striving to find co-sponsors for our bill, H.R. 4638, National Commission on Scleroderma and Fibrotic Diseases Act of 2017.
You can join the effort to advocate for additional support for research!
Download THIS LETTER, fill in the blanks with your contact information, and send it as an email attachment to advocacy@scleroderma.org. Your letter will be hand-delivered to your member of Congress on Capitol Hill.

If you are interested in learning more about the bill as well as its current progress, please visit the link below:
H.R.4638 - National Commission on Scleroderma and Fibrotic Diseases Act of 2017

 


 

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Scleroderma Video with Jason Alexander

 

About Us

Board of Directors
 
Officers
Debbie Metz, President 
Open Position, Vice President
Jerry Metz, Secretary
George Kinstedt, Treasurer
Members-at-Large
Mariann Boyanowski
Shanelle Boyd
Josette Frye
Lucille Miller
Patti Jordan
Amanda Ludolph
Kari Matsko
Consultant to the Board
Trisha Gosselin, RN

Contact Information

Scleroderma Foundation, Ohio Chapter
P.O. Box 107
Pataskala, OH 43062
Phone: 866-849-9030
Email: info@sfohio.org
Staff
Tina Fellows, Executive Director

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Look through photo galleries from previous events held by our chapter.

 

 

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Watch videos pertaining to events held by our chapter and a few fun extras.

 

 

Girlfriends walk Purple People BridgeA Twist on "Girlfriend's Weekend"

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Actelion 2018

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