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UPCOMING EVENTS

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Team leaders for Ohio Chapter walks will be awarded raffle tickets for a
7-day condo stay for up to six people in North Fort Myers, Florida. One ticket will be awarded for each $100 raised. Walks will be held in Boardman, Toledo, Cincinnati, Cleveland and Fairborn. Register on-line soon. Beds include: one king, one queen, two twin beds and one queen sleeper sofa in study.
See photos of the condo HERE!

Be sure to sign up for the Ohio Chapter E-Newsletter, and Like our Facebook page for the latest happenings!

You'll want to attend the Dayton area 7th Annual Stepping Out to Cure Scleroderma Walk on 8/4/18!

Hit the Links! Register for the Dr. Susan K. Leone Memorial Golf Scramble for Scleroderma in Boardman

Register now for the new walk - Stepping Out to Cure Scleroderma - Cleveland's Walk for Research!

Got "spare" time? Bowl for Scleroderma in Beavercreek, OH on 9/22/18!

Tee off at the Dave Ludolph Memorial Golf Tournament in Delaware, OH on October 6! Email info@sfohio.org for info here!

Don't Miss our Patient Education Conference - Register for State Conference in Columbus, OH on October 12-14!

Our Ugly Dress Gala on October 13, 2018 is a blast! Register here!

These events are already over, but you can still donate!

Toledo:
Stepping Out to Cure Scleroderma Walk
June 9, 2018
DONATE HERE!>>

Cincinnati:
Family Fun and Dog Walk
Saturday, June 30, 2018
DONATE HERE!>>

Let Your Voice Be Heard!

Action Item! Please click here to sign up for our action alerts. It's the best way to get advocacy information immediately and to find out when we need you to contact your representatives.

Breaking News!
On Friday, June 22, U.S. Representative Peter T. King (R-NY, 2nd District) spoke on the floor of the House of Representatives to recognize June as Scleroderma Awareness Month.

Representative King is the lead sponsor of H.R. 4638, National Commission on Scleroderma and Fibrotic Diseases Act of 2017, to evaluate and make recommendations regarding improvements to the coordination and advancement of NIH-supported research activities related to fibrosis and fibrotic diseases.

As you may already know, we are currently striving to find co-sponsors for our bill, H.R. 4638, National Commission on Scleroderma and Fibrotic Diseases Act of 2017.

You can join the effort to advocate for additional support for research!

Download THIS LETTER, fill in the blanks with your contact information, and send it as an email attachment to advocacy@scleroderma.org. Your letter will be hand-delivered to your member of Congress on Capitol Hill.

If you are interested in learning more about the bill as well as its current progress, please visit the link below:
H.R.4638 - National Commission on Scleroderma and Fibrotic Diseases Act of 2017

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Scleroderma Video with Jason Alexander

About Us Board of Directors Officers Debbie Metz, President Open Position, Vice President Jerry Metz, Secretary George Kinstedt, Treasurer Members-at-Large Mariann Boyanowski Shanelle Boyd Josette Frye Lucille Miller Patti Jordan Amanda Ludolph Kari Matsko Consultant to the Board Trisha Gosselin, RN	Contact Information Scleroderma Foundation, Ohio Chapter P.O. Box 107 Pataskala, OH 43062 Phone: 866-849-9030 Email: info@sfohio.org
Staff Tina Fellows, Executive Director