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Find a Support Group Check out our list of groups>>         UPCOMING EVENTS                    Team leaders for Ohio Chapter walks will be awarded raffle tickets for a 7-day condo stay for up to six people in North Fort Myers, Florida. One ticket will be awarded for each $100 raised. Walks will be held in Boardman, Toledo, Cincinnati and Fairborn. Register on-line below.  Beds include: one king, one queen, two twin beds and one queen sleeper sofa in study.   See photos of the condo HERE!     All of our fundraisers have auctions, which is a fun way to get some really neat items!  They have handmade items donated, as well as tickets to sporting events, etc.  Some have silent auctions, some have Chinese auctions, some have raffles and some have all of the above!  If you can't make it to all of the events but would still like a chance to bid on these wonderful things, go to our EBAY PAGE!  It's easy and you might get a steal! Be sure to sign up for the Ohio Chapter E-Newsletter, and Like our Facebook page for the latest happenings! Dayton: Stepping Out to Cure Scleroderma Walk Saturday, August 5, 2017 Register HERE! >>> Dayton Education Day - More info here! September 23, 2017 Youngstown Area: Dr. Susan K. Leone Memorial Golf Scramble Saturday, August 12, 2017 Columbus: Education Day - More info here! Saturday, August 26, 2017 Akron / Canton Area: Hike and Family Picnic Sunday, August 27, 2017 Register HERE!>>> Akron / Canton Education Day - More info here! Thursday, September 7, 2017 Youngstown: Education Day - More info here! Monday, September 11, 2017 Beavercreek: Bowl for Scleroderma Saturday, September 23, 2017 Delaware: Dave Ludolph Memorial Golf Outing Saturday, September 30, 2017 Cleveland Area: Education Day and Gala - More info here! October 7, 2017   If you missed an event to which you wanted to donate, you can still donate to the World Scleroderma Day Virtual Walk: DONATE HERE!

ADVOCACY RECENT NEWS! Scleroderma made it onto the list for the conditions to by studied by the 2017 Department of Defense Peer Reviewed Medical Research Program!  Now we need to work on getting on the list for 2018!  The only way to get on the list is to ask our Senators to recommend to the subcommittee that scleroderma receives research funding.  The advocacy committee will be getting letters signed at most events this year and sending them and /or hand-delivering them to our Ohio Senators, Senator Rob Portman and Senator Sherrod Brown. The National Institutes of Health (NIH) is still forming a collaborative team regarding fibrosis, even though our Scleroderma and Fibrosis Research Enhancement Act of 2015 didn’t pass!  If this bill had passed last December, it would have mandated that they facilitate the fibrotic diseases working together and using scleroderma as a prototype disease.  They have decided they will do this voluntarily.  This is a big win for scleroderma research and could be due to all of the hard work on the part of those affiliated with the Scleroderma Foundation in finding co-sponsors for the bill across the United States. The Ohio Chapter is working on getting a federal bill sponsored to officially designate June as Scleroderma Awareness Month throughout the whole United States.  Our lobbyists in Washington D.C. have helped us approach a potential sponsor for the bill.  Ohio Senators Portman and Brown may be co-sponsors.  We are very hopeful that it will pass unanimously very soon. Right now, we’re waiting to introduce another scleroderma bill to congress. In the meantime, you can ask your senator to keep scleroderma on the Department of Defense list of conditions to be studied in 2018!  It’s easy.   Action Item!  Please click here to sign a petition to ask your senators to keep scleroderma on the Department of Defense Peer-Reviewed Medical Research Program list of conditions to be studied in 2018!   Our chapter won the 2016 Outstanding Awareness Award at the 2016 National Patient Education Conference in New Orleans, Louisiana!   Read about Ohio's Bill 133 - We got it passed!

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Scleroderma Video with Jason Alexander

Photo Gallery

Look through photo galleries from previous events held by our chapter.

 

 

Video Gallery

Watch videos pertaining to events held by our chapter and a few fun extras.

 

 

A Twist on "Girlfriend's Weekend"

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