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Join a Stepping Out to Cure Scleroderma Walk

Click here to see events happening throughout New England!

Join a Support Group

Click here to find a support group near you. We're here to help.

Watch a Video

Choose from a variety of scleroderma information videos offered by the Scleroderma Foundation, or news on Scleroderma Foundation New England.

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What is Scleroderma?

Scleroderma, or systemic sclerosis, is a chronic connective tissue disease generally classified as one of the autoimmune rheumatic diseases. The word “scleroderma” comes from two Greek words: “sclero” meaning hard, and “derma” meaning skin. Hardening of the skin is one of the most visible manifestations of the disease.

Download a Free Scleroderma Information Packet

Can't download it? Have us mail you a copy! Email: rdube@scleroderma.org

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Find a support group in your area or connect with others by phone. Support groups are a great way to share information and provide encouragement to one another. Looking to start a new support group? Contact us!

Click here for more information >>

Clara Health

Find Clinical Trials with Clara Health

Clara Health offers an online platform to empower patients with the knowledge they need to search for clinical trials and make informed treatment decisions. Lilly Stairs, Head of Patient Advocacy, is available to speak with support groups about the services clarahealth.com provides to patients looking for clinical trials.

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Read About What's Going On

Check out articles and past editions of our newsletter, The New England BEACON, for information on research, SFNE activity updates, event information and more.

Join Our Board of Directors

Scleroderma Foundation New England is actively reviewing candidates for the SFNE Board of Directors. Applicants should have experience in non-profit development and will bring specific board skills. We are currently seeking a board lawyer and board clerk as well as community leaders with specific skills in planned giving and community outreach. Please submit a resume and/or letter of intent to the SFNE Board Search Committee for review.

Applicants may send information to jarmitage@sfnewengland.org or to Board Search Committee, 462 Boston Street, Suite 1-1, Topsfield, MA 01983.

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About Us

Board of Directors
Don Legere, President
Katherine Bedard, Vice President
Tim Hagan, Treasurer

Board Members
Elysia Cappellucci
Tony Cappellucci
Marie Coyle
Jane Ladas
Don Legere
Andrea Mahoney
Selena Valeriani

Board Advisors
Tom Curran
Peter L. Hart
Walter Zagrobski

Medical/Scientific Advisory Board
Vincent Falanga, M.D.
Harrison Farber, M.D.
Carol Feghali Bostwick, Ph.D.
Humphrey Gardner, M.D.
David M. Leader, DMD
Thomas Medsger, Jr., M.D.
John Mulliken, M.D.
Nicole Orzechowski, D.O.
Andrew Plaut, M.D.
Robert Simms, M.D.
Michael Whitfield, Ph.D.
Michael York, M.D.

Contact Information

Executive Director: Jack Armitage, jarmitage@sfnewengland.org
Office Manager: Rebecca Dube rdube@sfnewengland.org

Office Mailing Address
Scleroderma Foundation, New England Chapter
462 Boston Street, Suite 1-1
Topsfield, MA 01983

Phone: 978-887-0658
Fax: 978-887-0659
General Information: sclerodermainfo@sfnewengland.org

Our Mission

The MISSION of the Chapter is to help constituents make contact with each other through support groups, newsletters, and meetings;

To EDUCATE and INFORM the public about scleroderma, what it is, and its consequences through a central base;

To PROMOTE and raise funds for medical research seeking the cause of and cure for scleroderma.

 

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Photo Gallery

Look through photo galleries from previous events held by our chapter.

 

 

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Watch videos on scleroderma, news events, and a few fun extras. 

 


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