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Join a Stepping Out to Cure Scleroderma Walk

Click here to see events happening throughout New England!

Join a Support Group

Click here to find a support group near you. We're here to help.

Watch a Video

Choose from a variety of scleroderma information videos offered by the Scleroderma Foundation, or news on Scleroderma Foundation New England.

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What is Scleroderma?

Scleroderma, or systemic sclerosis, is a chronic connective tissue disease generally classified as one of the autoimmune rheumatic diseases. The word “scleroderma” comes from two Greek words: “sclero” meaning hard, and “derma” meaning skin. Hardening of the skin is one of the most visible manifestations of the disease.

Download a Free Scleroderma Information Packet

Can't download it? Have us mail you a copy! Email: rdube@scleroderma.org

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Find a support group in your area or connect with others by phone. Support groups are a great way to share information and provide encouragement to one another. Looking to start a new support group? Contact us!

Click here for more information >>

YouTube logo Speaker videos available on SFNE YouTube Page

Click here to access videos of the presenters at the 2018 SFNE Patient Education Seminar. On SFNE’s YouTube page, you can see presentations by Dr. Andrew Plaut, Dr. Robert Simms, Maureen Kerrigan, Esq., Dr. Jonathan Garlick, Andrew Botieri, Kendra Raymond and our Ask-the-Experts panel. You can also see a video with interviews from the 2017 Boston Walk. Check it out!

Resources for Financial Assistance Programs

Depending on your treatment regimen and your type of health insurance, options for financial assistance for medications can vary. Click here to access a descriptive list of resources for financial assistance programs by various organizations and pharmaceutical companies.

Clara Health

Find Clinical Trials with Clara Health

Clara Health offers an online platform to empower patients with the knowledge they need to search for clinical trials and make informed treatment decisions. Lilly Stairs, Head of Patient Advocacy, is available to speak with support groups about the services clarahealth.com provides to patients looking for clinical trials.

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Read About What's Going On

Check out articles and past editions of our newsletter, The New England BEACON, for information on research, SFNE activity updates, event information and more.

ScleroMen logoScleroMen Facebook Group

As scleroderma manifests itself in a unique way in men, their issues and concerns are unique as well. This support system provides a means for men with scleroderma to connect with each other - share stories, seek advice and ask questions - in a caring and supportive environment. Join ScleroMen and become part of an understanding and educated group of men finding ways to deal with scleroderma and its complications. Contact co-leaders Andrew Botieri (508) 982-7523 or Lee Korotzer at Scleromen@scleroderma.org to join the page by request.

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About Us

Board of Directors
Don Legere, President
Katherine Bedard, Vice President
Tim Hagan, Treasurer

Board Members
Brenda Brown
Elysia Cappellucci
Tony Cappellucci
Marie Coyle
Peter Hart
Jane Ladas
Don Legere
Andrea Mahoney
Chris Simms

Board Advisors
Tom Curran
Walter Zagrobski

Medical/Scientific Advisory Board
Vincent Falanga, M.D.
Harrison Farber, M.D.
Carol Feghali Bostwick, Ph.D.
Humphrey Gardner, M.D.
David M. Leader, DMD
Thomas Medsger, Jr., M.D.
John Mulliken, M.D.
Nicole Orzechowski, D.O.
Andrew Plaut, M.D.
Robert Simms, M.D.
Michael Whitfield, Ph.D.
Michael York, M.D.

Contact Information

Executive Director: Jack Armitage, jarmitage@sfnewengland.org
Operations Manager: Rebecca Dube rdube@sfnewengland.org
Programs & Events Specialist: Anne Sweeney
asweeney@sfnewengland.org

Office Mailing Address
Scleroderma Foundation, New England Chapter
462 Boston Street, Suite 1-1
Topsfield, MA 01983

Phone: 978-887-0658
Fax: 978-887-0659
General Information: sclerodermainfo@sfnewengland.org

Our Mission

The MISSION of the Chapter is to help constituents make contact with each other through support groups, newsletters, and meetings;

To EDUCATE and INFORM the public about scleroderma, what it is, and its consequences through a central base;

To PROMOTE and raise funds for medical research seeking the cause of and cure for scleroderma.

 

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Photo Gallery

Look through photo galleries from previous events held by our chapter.

 

 

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Watch videos on scleroderma, news events, and a few fun extras. 

 


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