We'll See You in:


2019 Scleroderma Foundation
National Patient Education Conference

THANK YOU to all who attended the 2018 conference in Philadelphia, which was our largest ever.  Attendance has grown each year, which demonstrates how much the conference is needed.

Join us July 19-20-21, 2019
for the National Patient Education Conference
in Chicago, Illinois

Registration information will be posted soon.  Hotel information will be made available upon registration.  

Sign up for National Patient Education e-Alerts for more news
on the 2019 conference in Chicago.

Reasons Why You Should Attend the National Patient Education Conference

  • Understand how to cope with the emotional challenges of living with scleroderma
  • Develop strategies for staying motivated
  • Meet people who want to take charge of their scleroderma, their health, and their lives
  • Build a support network and talk with others who share similar experiences
  • Learn about current therapies from the medical community
  • Be empowered to become a more effective partner in your own health care
  • Discover ways to increase public awareness of the disease
  • Make new, long-lasting friendships

About the National Conference

Did you know that the actual per person cost of hosting the conference is more than $700? We would like to thank our corporate sponsors and donors for helping to reduce the cost for participants.

The Annual National Patient Education Conference offers educational and networking opportunities for people living with scleroderma, their caregivers, family members and friends. We also offer a juvenile program at the conference that is open to juvenile patients, their siblings or even the child of an adult patient.

Workshops, panel discussions and other educational sessions are led by leading scleroderma researchers and healthcare professionals. Whether you are newly diagnosed or have had scleroderma for many years, the National Conference is a great way to learn about the disease and become connected with others that are dealing with scleroderma.

With more than 60 workshops, dozens of exhibitors and the chance to meet other patients and caregivers, the weekend's activities offer an excellent opportunity for attendees.

Conference Scholarship Program

Conference scholarship information will be posted soon. The deadline to apply is in March. Decisions regarding scholarship awards will be announced mid-April. If you have any questions, please contact us at (800) 722-4673.

Please support the conference scholarship program with a generous gift today. Conference scholarships are for first-time attendees who have scleroderma, or the parent-caregiver of a minor who has scleroderma, and who would otherwise be unable to attend.  



Boehringer Ingelheim 2018 Platinum National Sponsor

tenacious 2018 Gilead United Therapeutics 2018 Bronze Conference Sponsor reata_horizontal_logo-2018-Bronze Natl
Arena Pharmaceuticals 2018 Corp Conf Sponsor
Corbus 2018 Corp Conf Sponsor
Genentech 2018 Corp Conf Sponsor