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Local Events

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Stepping Out to Cure Scleroderma Events

Nebraska Stepping Out Walk and Family Day

Nebraska - You Can Still Donate 

Iowa Stepping Out Walk and Family Day

Iowa -  You Can Still Donate


Patient Education Events

Fifth Annual "Sclero-What?" Education Conference

October 21, 2017
5th Annual Sclero-What? Education Day 2017 (Heartland Chapter)

Let's put an end to "Sclero-What?" Please join us in the Heartland for this amazing scleroderma education opportunity!  Our speakers this year include the following: 

Sandy Hong, MD is a pediatric rheumatologist in Iowa City, Iowa and is affiliated with University of Iowa Hospitals and Clinics. She received her medical degree from University of California San Francisco School of Medicine and has been in practice 16 years.

Shelley Van Pelt, RN, MSN, CNS is on the board of the Scleroderma Foundation Washington Evergreen Chapter and serves as the medical education and outreach coordinator. She has a master’s in nursing with 29 years of experience. Shelley’s presentation will be about scleroderma related health issues and nutrition to improve daily quality of life and happiness.

Britta Dimler “How to Live a Toxic free Life” with essential oils.

Dani Steinwandt will present her award winning speech about living with scleroderma from her viewpoint as an adolescent.

Dr. Marcus Snow joined Nebraska Medicine in 2015, the same year he announced his goal of building clientele and staff for a Scleroderma Clinic in Omaha. Dr. Snow is in his 9th year in practice here in Omaha (5 ½ in private practice and 2 ½ at UNMC/Nebraska Medicine) in Omaha. He sees patients on a regular basis at Village Pointe Clinic and also travels to Columbus, NE for clinic twice a month. His medical interests include general rheumatology (with special interest in scleroderma and Raynaud's Phenomenon).

Dr. Sundar Balasubramanian is a cell biology researcher and founder of PranaScience Institute. He is currently studying mechanisms involved in resistance to cancer therapy at the Medical University of South Carolina (MUSC). He is also a yoga biology researcher. A pioneer in the area of research combining Pranayama and salivary stimulation, he discovered Yogic breathing promotes salivary secretion, and it contains factors that are important for our healthy living. Dr. Sundar led a class in “Yogic Breathing for Symptom Management in Scleroderma” at the 2017 Scleroderma Foundation National Patient Education Conference.

Carole Deyoe…Previously available by prescription only... (pharmacist, comedian, scleroderma patient and carnivore) releases her sense of humor over-the-counter when she hits the stage. Originally from the New Jersey suburbs, Carole is a transplanted country girl whose act takes you through her life with sarcasm and wit. She shares one-of-a-kind insights which are often caring, often contemptuous - often both at the same time - but always funny. Audiences love her clever observations and performing is her favorite drug (edging out the Tilt-a-Whirl).

Registrations made before October 14 are FREE!  Registration made between October 14-21 will incur a $10 fee. Registration is limited to the first 150 registrations received.  
Please don't delay! Register Today!

To learn more and to register, please visit www.scleroderma.org/sclerowhat5 or email HeartlandChapter@scleroderma.org




"Paint Away Scleroderma"  

Barbara Burke is available to face paint for private parties to raise money for scleroderma. For more information or to book your event, please contact Barbara at 515-321-0621 or bb.sundance2011@gmail.com