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Stepping Out to Cure Scleroderma Events

Nebraska Stepping Out Walk, 5K Run, and Family Day

Stepping Out to Cure Scleroderma Walk/5K Run, and Family Day!

Our Nebraska event will be held on Sunday, June 3, 2018 at Chalco Hills Recreation Area in Omaha, Nebraska.

We will also be having our inaugural 5K Run this year.

There will be beverages, snacks, and lunch available. There will be games for the entire family and FREE face painting.

Please Note our Schedule of events has changed from previous Years.

Registration 5K and Walkers  7:30
Sales and Information Tables Open  8:00
Raffle Room Opens  8:00
Silent Auction Starts  8:00
Childrens Activities Start  8:30
5K Run Starts  9:00
Group Photos Start  9:00
Walk Starts 10:00
Food Sales Start 10:00
Raffle Room Closes 11:00
Raffle Winners Announced 11:15
Silent Auction Closes 12:00

 For more information or to register and set up a fundraising page online, Please visit: www.scleroderma.org/steppingoutomaha

 

Iowa Stepping Out Walk and Family Day

Iowa -  Our Iowa Event will be held on Sunday, June 11, 2017 at Grand View University in Des Moines, Iowa.

There will be beverages and snacks (including ice cream from Picket Fences Creamery), games for the entire family and FREE Face Painting!


 

Team Photos Start 12:30
Registration.  1:00 
Silent Auction/Raffle Room Opens.  1:00
Walk  2:00
Raffle Drawing  2:45
Silent Auction Ends  3:30
 

Parking at 1500 Morton Ave., Des Moines, IA

 

 

 

For more information or to register and set up a fundraising page online,

 

Please visit: www.scleroderma.org/steppingoutdsm


Patient Education Events

Sixth Annual "Sclero-What?" Education Conference

October, 2018
6th Annual Sclero-What? Education Day 2018 (Heartland Chapter) will be in Omaha, NE. is in the planning stage. Check back ofter for more details

Let's put an end to "Sclero-What?" Please join us in the Heartland for this amazing scleroderma education opportunity!  Our speakers last year included the following: 

Sandy Hong, MD is a pediatric rheumatologist in Iowa City, Iowa and is affiliated with University of Iowa Hospitals and Clinics. She received her medical degree from University of California San Francisco School of Medicine and has been in practice 16 years.

Shelley Van Pelt, RN, MSN, CNS is on the board of the Scleroderma Foundation Washington Evergreen Chapter and serves as the medical education and outreach coordinator. She has a master’s in nursing with 29 years of experience. Shelley’s presentation will be about scleroderma related health issues and nutrition to improve daily quality of life and happiness.

Britta Dimler “How to Live a Toxic free Life” with essential oils.

Dani Steinwandt will present her award winning speech about living with scleroderma from her viewpoint as an adolescent.

Dr. Marcus Snow joined Nebraska Medicine in 2015, the same year he announced his goal of building clientele and staff for a Scleroderma Clinic in Omaha. Dr. Snow is in his 9th year in practice here in Omaha (5 ½ in private practice and 2 ½ at UNMC/Nebraska Medicine) in Omaha. He sees patients on a regular basis at Village Pointe Clinic and also travels to Columbus, NE for clinic twice a month. His medical interests include general rheumatology (with special interest in scleroderma and Raynaud's Phenomenon).

Dr. Sundar Balasubramanian is a cell biology researcher and founder of PranaScience Institute. He is currently studying mechanisms involved in resistance to cancer therapy at the Medical University of South Carolina (MUSC). He is also a yoga biology researcher. A pioneer in the area of research combining Pranayama and salivary stimulation, he discovered Yogic breathing promotes salivary secretion, and it contains factors that are important for our healthy living. Dr. Sundar led a class in “Yogic Breathing for Symptom Management in Scleroderma” at the 2017 Scleroderma Foundation National Patient Education Conference.

Carole Deyoe…Previously available by prescription only... (pharmacist, comedian, scleroderma patient and carnivore) releases her sense of humor over-the-counter when she hits the stage. Originally from the New Jersey suburbs, Carole is a transplanted country girl whose act takes you through her life with sarcasm and wit. She shares one-of-a-kind insights which are often caring, often contemptuous - often both at the same time - but always funny. Audiences love her clever observations and performing is her favorite drug (edging out the Tilt-a-Whirl).

 



"Paint Away Scleroderma"  

Barbara Burke is available to face paint for private parties to raise money for scleroderma. For more information or to book your event, please contact Barbara at 515-321-0621 or bb.sundance2011@gmail.com