website picture 2.jpg

Welcome to the Greater Chicago Chapter Website!

Our chapter offers support groups, events and other resources for people living in Illinois, Northern Indiana, and Wisconsin.
Learn More »

E-Newsletter Signup

Please leave this field empty

Awareness Video - Photos Needed

The Greater Chicago Chapter is creating an awareness video about scleroderma and we want YOU to be in it! It's easy. Just send us a photo with your handwritten message about scleroderma. Learn more

Support Groups

Find a support group in your area or connect with others by phone. Support groups are a great way to share information and provide encouragement to one another. Looking to start a new support group? Contact us at 312-660-1131.

Patient Education

  • Save the date! Our next Scleroderma Patient Education Conference will be held Saturday, October 11 at Northwestern University in Chicago, IL
  • View slides from previous conferences on our SlideShare site.
  • View videos from previous conferences on our YouTube channel.


Fundraising Events

Save the date for these upcoming events! More info and registration will be posted as it becomes available.

  • Food Fight for Scleroderma, Chicago, IL - Sunday, April 27
  • Stepping Out to Cure Scleroderma, Highland Park, IL - Sunday, June 22
  • Stepping Out to Cure Scleroderma, Springfield, IL - Saturday, August 2
  • Stepping Out to Cure Scleroderma, Germantown, WI - Sunday, August 17
  • Reason to Rock, Fun Walk & 50's Fest, Geneva, IL - Sunday, August 24
  • Stepping Out to Cure Scleroderma, Dixon, IL - Saturday, September 13

Start a Fundraiser

Interested in starting your own fundraiser? Become a scleroderma "Hope Raiser!" Whether you are throwing a party, running a race or have a unique fundraising idea, you can support scleroderma patients and help in the search for a cure! Read more about becoming a Hope Raiser or call us at 312-660-1131. 

About Us

Board of Directors
Joe Werner, President
Julie L. Drewniak, Vice President/Secretary 
Jennifer Bryson, Treasurer
Stephanie Somers, Executive Director

Contact Information

Chapter Contact: Stephanie Somers, Executive Director
Scleroderma Foundation, Greater Chicago Chapter
134 N. LaSalle St. Suite 1360
Chicago, IL. 60602
Phone: 312-660-1131
Fax: 312-660-1133

Board Members
Rosemary Arnold
Janine Capon
Mary Carns
Tony Cogan
Cleetus Friedman
Carol Goldman
Peter Goldman
Anna Hockett
Jack Napoli
Mike Robbins
Renee Trikolas 
John Varga, M.D.

Sustaining Board Members
Jules and Leslie Cogan
Marilyn Murphy

Medical Advisory Board
Richard Burt, M.D.
Jane Dematte, M.D.
Jane Dematte, M.D.
Ikuo Hirano, M.D.
Amy Paller, M.D.
Stuart Rich, M.D.
Dean Schraufnagel, M.D.
Nadera Sweiss, M.D.
John Varga, M.D.



event gallery.jpg

Photo Gallery

Look through photo galleries from previous events held by our chapter.



video.jpgVideo Gallery

Watch videos pertaining to events held by our chapter and a few fun extras. 


Find Us On The Web!

facebook button inspire logo
United Therapeutics Logo Gilead Logo