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Patient Education

The Annual Chicagoland Patient Education Conference will be in Oakbrook, IL on Saturday, April 16.

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Scleroderma Foundation: Greater Chicago Chapter

Making life easier for patients. Making strides toward a cure.

The mission of the Scleroderma Foundation is focused on three critical goals:

  1. SUPPORT: To help patients and their families cope with scleroderma through mutual support programs, peer counseling, physician referrals, and educational information.
  2. EDUCATION: To promote public awareness and education through patient and health professional seminars, literature, and publicity campaigns.
  3. RESEARCH: To stimulate and support research to improve treatment and ultimately find the cause of and cure for scleroderma.

Whether you're a scleroderma patient, have a friend or family member with scleroderma, or just want to learn more about the disease, we have valuable resources, education opportunities and fundraising events for you!


About Us

Board of Directors
Tony Cogan, President
Julie L. Drewniak, Vice President/Secretary 
Jennifer Bryson, Treasurer
Stephanie Somers, Executive Director

Contact Information

Chapter Contact:
Stephanie Somers, Executive Director
Veronica Chevalier, Marketing & Events Coordinator
Scleroderma Foundation, Greater Chicago Chapter
134 N. LaSalle St. Suite 1360
Chicago, IL. 60602
Phone: 312-660-1131
Fax: 312-660-1133
Twitter: @chiscleroderma
Instagram: @chiscleroderma

Board Members
Rosemary Arnold
Mary Carns
Cleetus Friedman
Carol Goldman
Peter Goldman
David Helfand
Anna Hockett 
Mike Robbins
Renee Trikolas 
John Varga, M.D.

Sustaining Board Members
Jules and Leslie Cogan
Marilyn Murphy

Medical Advisory Board
Richard Burt, M.D.
Jane Dematte, M.D.
Jane Dematte, M.D.
Ikuo Hirano, M.D.
Amy Paller, M.D.
Stuart Rich, M.D.
Dean Schraufnagel, M.D.
Nadera Sweiss, M.D.
John Varga, M.D.



Patient Education

The Scleroderma Foundation Greater Chicago Chapter takes pride in hosting a regional patient education conference every year in the Chicago Suburbs. At this conference, you can meet with patients and caregivers alike from all areas that the Greater Chicago Chapter serves. 

The next Chicago Area Conference will take place in April of 2016. Check back for a specified date, time, and place. We hope to see you there!

For more educational resources, and a peek at what the conferences entail, feel free to view our SlideShare presentations and YouTube videos of previous conference sessions. 

Education Summit 


Patient Support

Support groups provide a forum to share thoughts, concerns and information. They are a great way to share information and provide encouragement to one another. Find a support group in your area or connect with others by phone.

We have new support groups in Highland Park, IL, Northwest Indiana and Milwaukee, WI. 

Looking to start a new support group in your area? Contact us at 312-660-1131.

Thank you to our 2016 sponsors! 

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