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Thanks to All Walk Attendees and Supporters!

Thanks to your fundraising efforts, this was a record year for our scleroderma walks, with more than $250,000 raised! We look forward to seeing all of you at a 2019 walk!

 

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Spring Patient Education Conference Date Set

Our next Patient Education Conference is set for Saturday, April 27, 2019 in Oakbrook, IL. Save the date - registration opens soon! 

 

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Have You Joined a Support Group Yet?

You're not alone in struggling with scleroderma. Find a support group near you!

 

Online Educational Resources Available

Visit our YouTube, WordPress, and SlideShare websites to access our online resources!

 

 

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What's New at the Scleroderma Foundation of Greater Chicago

New Support Group - Chicago
Upcoming dates for the newly-formed Chicago support group are now set. Join the group and connect with fellow patients in Chicago! Get more info.

Next Patient Education Conference - Saturday, April 27 
Join us for a day of learning and networking with world-renowned scleroderma specialists discussing emerging treatments, new research and practical strategies for managing your symptoms. Registration opens soon!

 
 

Our Mission

Improving the lives of patients. Making strides toward a cure.

The mission of the Scleroderma Foundation is focused on three critical goals:

  1. SUPPORT: To help patients and their families cope with scleroderma through mutual support programs, peer counseling, physician referrals, and educational information.
     
  2. EDUCATION: To promote public awareness and education through patient and health professional seminars, literature, and publicity campaigns.
     
  3. RESEARCH: To stimulate and support research to improve treatment and ultimately find the cause of and cure for scleroderma.

Whether you're a scleroderma patient, have a loved one struggling with scleroderma, or just want to learn more about the disease, we have resources, education events and fundraisers you'll love!

Contact Information

Stephanie Somers Gresh, Executive Director
Melissa Spear, Marketing & Fundraising Manager

Scleroderma Foundation Greater Chicago Chapter
125 S. Clark, 17th Floor
Chicago, IL 60603
Phone: 312-660-1131
Email: GCchapter@scleroderma.org 
Facebook: facebook.com/gcscleroderma

Board of Directors 
Tony Cogan, President 
Julie L. Drewniak, Vice President/Secretary 
Jennifer Bryson, Treasurer

Rosemary Arnold
Mary Carns
Dan Clarin
Jules Cogan
Cleetus Friedman 
Carol Goldman 
Peter Goldman
David Helfand
Renee Trikolas 
John Varga, M.D. 

Medical Advisory Board
Richard Burt, M.D.
Jane Dematte, M.D.
Ikuo Hirano, M.D.
Amy Paller, M.D.
Stuart Rich, M.D.
Dean Schraufnagel, M.D.
Nadera Sweiss, M.D.
John Varga, M.D.

 

 

Patient Education

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Spring Patient Conference
The Scleroderma Foundation Greater Chicago Chapter is dedicated to keeping the scleroderma community informed, connected and supported. Our next Patient Education Conference will be Saturday, April 28, 2019 in Oakbrook, IL. Registration opens soon!

Scleroderma 101
Scleroderma 101 is a bi-annual small group session offering information and support for recently diagnosed scleroderma patients. Top specialists and scleroderma support group leaders will be on site to help you understand your diagnosis, build a support system and live better. The next Scleroderma 101 date is not yet set - stay tuned!

For presentations and videos from past conferences, take a look at our SlideShare and YouTube sites. 

 

Patient Support

Support groups provide a forum to share thoughts, concerns, information and meet others who understand the experience of living with scleroderma. Find a support group in your area or connect with others on our online support community, Inspire.

Looking to start a new support group in your area? Contact us at 312-660-1131.


Actelion 2018

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