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Scleroderma Foundation: Greater Chicago Chapter

Coming Up:

April 22, 2017 : Patient Education Conference - Oak Brook, IL 

May 7, 2017 : Food Fight for Scleroderma - AceBounce Chicago

Making life easier for patients. Making strides toward a cure.

The mission of the Scleroderma Foundation is focused on three critical goals:

  1. SUPPORT: To help patients and their families cope with scleroderma through mutual support programs, peer counseling, physician referrals, and educational information.
  2. EDUCATION: To promote public awareness and education through patient and health professional seminars, literature, and publicity campaigns.
  3. RESEARCH: To stimulate and support research to improve treatment and ultimately find the cause of and cure for scleroderma.

Whether you're a scleroderma patient, have a friend or family member with scleroderma, or just want to learn more about the disease, we have valuable resources, education opportunities and fundraising events for you!


About Us


Contact Information

Chapter Contact:
Stephanie Somers Gresh, Executive Director
Melissa Spear, Marketing & Events Manager
Scleroderma Foundation, Greater Chicago Chapter
134 N. LaSalle St. Suite 1360
Chicago, IL. 60602
Phone: 312-660-1131
Fax: 312-660-1133
Email: GCchapter@scleroderma.org 
Facebook: facebook.com/gcscleroderma
Twitter: @chiscleroderma
Instagram: @chiscleroderma

Board of Directors 
Tony Cogan, President 
Julie L. Drewniak, Vice President/Secretary 
Jennifer Bryson, Treasurer
Rosemary Arnold
Mary Carns
Cleetus Friedman
Carol Goldman
Peter Goldman
David Helfand
Mike Robbins
Renee Trikolas 
John Varga, M.D.
Jules Cogan 

Medical Advisory Board
Richard Burt, M.D.
Jane Dematte, M.D.
Ikuo Hirano, M.D.
Amy Paller, M.D.
Stuart Rich, M.D.
Dean Schraufnagel, M.D.
Nadera Sweiss, M.D.
John Varga, M.D.



Patient Education

Our next Patient Education event will take place in Oak Brook, IL on April 22! Make sure you check back for registration information. If you are looking for more educational resources, please visit YouTube and SlideShare for past conference presentations and videos.

Education Summit 


Patient Support

Support groups provide a forum to share thoughts, concerns and information. They are a great way to share information and provide encouragement to one another. Find a support group in your area or connect with others by phone.

We have new support groups in Highland Park, IL, Northwest Indiana and Milwaukee, WI. 

Looking to start a new support group in your area? Contact us at 312-660-1131.

Thank you to our 2016 sponsors! 

2016 Actelion Logo


2016 Bayer Logo

2016 Bronze National Sponsor Reata