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Welcome to the Greater Chicago Chapter Website!

Our chapter offers support groups, events and other resources for people living in Illinois, Northern Indiana, and Wisconsin.
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Scleroderma Foundation: Greater Chicago Chapter

Making life easier for patients. Making strides toward a cure.

The mission of the Scleroderma Foundation is focused on three critical goals:

  1. SUPPORT: To help patients and their families cope with scleroderma through mutual support programs, peer counseling, physician referrals, and educational information.
  2. EDUCATION: To promote public awareness and education through patient and health professional seminars, literature, and publicity campaigns.
  3. RESEARCH: To stimulate and support research to improve treatment and ultimately find the cause of and cure for scleroderma.

Whether you're a scleroderma patient, have a friend or family member with scleroderma, or just want to learn more about the disease, we have valuable resources, education opportunities and fundraising events for you!

About Us

Board of Directors
Tony Cogan, President
Julie L. Drewniak, Vice President/Secretary 
Jennifer Bryson, Treasurer
Stephanie Somers, Executive Director

Contact Information

Chapter Contact:
Stephanie Somers, Executive Director
Scleroderma Foundation, Greater Chicago Chapter
134 N. LaSalle St. Suite 1360
Chicago, IL. 60602
Phone: 312-660-1131
Fax: 312-660-1133

Board Members
Rosemary Arnold
Janine Capon
Mary Carns
Cleetus Friedman
Carol Goldman
Peter Goldman
David Helfand
Anna Hockett 
Jack Napoli
Mike Robbins
Renee Trikolas 
John Varga, M.D.

Sustaining Board Members
Jules and Leslie Cogan
Marilyn Murphy

Medical Advisory Board
Richard Burt, M.D.
Jane Dematte, M.D.
Jane Dematte, M.D.
Ikuo Hirano, M.D.
Amy Paller, M.D.
Stuart Rich, M.D.
Dean Schraufnagel, M.D.
Nadera Sweiss, M.D.
John Varga, M.D.



Patient Education

Hear from medical experts on topics related to scleroderma and connect with others in the scleroderma community. Education events are free to attend; friends and family are welcome. We hope to see you on April 18th for our next patient education conference!

Scleroderma Patient Education Conference
Saturday, April 18, 2015
Naperville Yellow Box
1635 Emerson Ln
Naperville, IL

Join us for a day of learning and networking. Experts will discuss various topics related to scleroderma. There is also time for you to meet other patients and caregivers, and to ask questions of our medical experts. 

Register Now

If you're unable to make one of our patient education conferences in person,  we've also uploaded SlideShare presentations and YouTube videos of previous sessions. 

Patient Support

Support groups provide a forum to share thoughts, concerns and information. They are a great way to share information and provide encouragement to one another. Find a support group in your area or connect with others by phone.

We have new support groups starting in 2015 in Highland Park, IL and Milwaukee, WI. 

Looking to start a new support group in your area? Contact us at 312-660-1131.

Thank you to our 2015 sponsors! 

Bayer 2015 Bronze Logo

Actelion 2015 Logo

Gilead 2015 Logo