Madison, WI - NEW! 

 You’re not alone - we’re here to help! Contact a support group leader to join. RSVP today!


Thanks for walking!

You made a difference this summer! We are excited to walk with you in 2017!


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Visit our YouTubeWordPress, and SlideShare websites to access our online resources!



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Scleroderma Foundation: Greater Chicago Chapter

What's Coming Up:

Making life easier for patients. Making strides toward a cure.

The mission of the Scleroderma Foundation is focused on three critical goals:

  1. SUPPORT: To help patients and their families cope with scleroderma through mutual support programs, peer counseling, physician referrals, and educational information.
  2. EDUCATION: To promote public awareness and education through patient and health professional seminars, literature, and publicity campaigns.
  3. RESEARCH: To stimulate and support research to improve treatment and ultimately find the cause of and cure for scleroderma.

Whether you're a scleroderma patient, have a friend or family member with scleroderma, or just want to learn more about the disease, we have valuable resources, education opportunities and fundraising events for you!


About Us

Board of Directors
Tony Cogan, President
Julie L. Drewniak, Vice President/Secretary 
Jennifer Bryson, Treasurer
Stephanie Somers, Executive Director

Contact Information

Chapter Contact:
Stephanie Somers, Executive Director
Veronica Chevalier, Marketing & Events Coordinator
Scleroderma Foundation, Greater Chicago Chapter
134 N. LaSalle St. Suite 1360
Chicago, IL. 60602
Phone: 312-660-1131
Fax: 312-660-1133
Email: GCchapter@scleroderma.org 
Facebook: facebook.com/gcscleroderma
Twitter: @chiscleroderma
Instagram: @chiscleroderma

Board Members
Rosemary Arnold
Mary Carns
Cleetus Friedman
Carol Goldman
Peter Goldman
David Helfand
Anna Hockett 
Mike Robbins
Renee Trikolas 
John Varga, M.D.

Sustaining Board Members
Jules and Leslie Cogan
Marilyn Murphy

Medical Advisory Board
Richard Burt, M.D.
Jane Dematte, M.D.
Jane Dematte, M.D.
Ikuo Hirano, M.D.
Amy Paller, M.D.
Stuart Rich, M.D.
Dean Schraufnagel, M.D.
Nadera Sweiss, M.D.
John Varga, M.D.



Patient Education

This year's education conference will be taking place on October 15 at Northwestern Memorial Hospital. 

Scleroderma Patient Education Conference
October 15, 2016


8:00 - 9:00 am Registration and continental breakfast
9:00 - 3:00 pm Speaker Presentations (Break for lunch. Lunch provided.)
Northwestern Memorial Hospital, Lurie Medical Research Building
303 E. Superior St.
Chicago, IL 60611
Free Parking: 222 E. Huron St parking structure (between St. Clair and Fairbanks) Be sure to pick up a validation pass at the conference to receive free parking.

Speakers and topics to include: 
Monique Hinchcliff, MD, MS -  Skin Fibrosis Research
Beth Doerfler, MS, RD, LDN -  Nutrition case studies in scleroderma
Jane Dematte DAmico, MD -  Interstitial Lung Disease
Michael Cuttica, MD -  Pulmonary Hypertension
Jaehyuk Choi, MD/PhD -  Photopheresis
Elisa Hoellerich, PA-C  - Advice for Caregivers
Nelson Bennett, MD -  Erectile Dysfunction
Jessica Mandac, PT -  Physical Therapy

5th Annual Walter Barr Keynote Presentation: Genetics in Scleroderma
Shervin Assassi, MD, MS
Associate Professor, The University of Texas, Health Science Center at Houston
Dr. Assassis current research interests include correlation of clinical features of systemic sclerosis with genetic and gene expression data to identify novel therapeutic targets and to develop clinically useful prediction models for response to treatment.

For more educational resources, and a peek at what the conferences entail, feel free to view our SlideShare presentations and YouTube videos of previous conference sessions. 

Education Summit 


Patient Support

Support groups provide a forum to share thoughts, concerns and information. They are a great way to share information and provide encouragement to one another. Find a support group in your area or connect with others by phone.

We have new support groups in Highland Park, IL, Northwest Indiana and Milwaukee, WI. 

Looking to start a new support group in your area? Contact us at 312-660-1131.

Thank you to our 2016 sponsors! 

2016 Actelion Logo


2016 Bayer Logo

2016 Bronze National Sponsor Reata