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Chapter Board meeting Dates, 2013

Dates and Locations to be determined.

Click Here To See Our National Calendar

2013 Events Coming UP: SAVE THE DATES!
SPRING PATIENT EDUCATION EVENT
Many Many thanks to all who attended our Spring Patient Education Event at Ditka's on Sat. April 6, 2013. It was our largest event ever with 126 patients and family members attending. Many thanks also to our wonderful speakers.

Keynotes: Linda Mcnamara, RN, MBA and Karen Kemper, MSPH, PhD, Co-authors of "The Ugly Dress"
Jen Ryan, PT,DPT,MS,CCS Rush University Medical Center

Richard Burt, MD, Northwestern Memorial Hospital
Look for pictures from this event
here!

 Sunday June 23, 2013, 11th Annual Highland Park 11th Annual "Stepping Out to Cure" Scleroderma Walk

Highland Park, IL Online registration is now open!

Register yourself, your team or join a team here!

 

Upcoming 2013 Events:

Looking for a fun run/walk in North Webster Indiana? Join in on Saturday, July 13, 2013 and help raise money for the Scleroderma Foundation, Chicago Chapter.

Visit the Official Walk Website >>

Fun run/walk, 4 or 7 mile, in North Webster to raise awareness and funds for The Scleroderma Foundation.

  • When: July 13, 2013 Registration begins at 9 AM Run/Walk begins at 10 AM
  • Who:
    Everyone Welcome! Bring friends and family for a day of fun.  Pre-register below and send in form or on July 13. Dogs Welcome!
  • $15 Individual  
    $25 Family  $10 T-shirt
  • Where: Registration and starting line at North Webster American Legion—756 Indiana 13  North Webster, IN 46555
  • Lunch available after at
    North Webster Legion Pavilion tickets $7 adult $4 kids
  • Download registration form >>
  • Questions: Email Kensea.Myers@me.com or Pia@advboat.com
 Three more "Stepping Out" walks coming in September.
    Dixon IL. Highland IN, and Germantown Wi. Watch for details coming soon!
 
 

2012 recap! 

Our Fall Patient Education Event was one of our best ever. Almost 100 patients, Family members and Friends attended the morning session.

The Chicago Chapter would like to thank all of the speakers at this past Saturday's Education Conference. Dr. John Varga, from Northwestern, Lauren Miller PsyD, Dr. Bethane Schlosser, Bethany M. Doerfler MS. RD. LDN. and Dr. Robert Simms from Boston University. Our patients appreciate your time and valuable information. Thanks to all who attended and see you in the spring with our Spring Patient event. 

 

 Cooking up a Cure 2012 

Cooking up a Cure 2012 was a huge success with over $75,000 being raised for the Scleroderma Foundation, Chicago Chapter. We would like to thank all of our sponsors:

Christina Noel Photography, TableScapes, Solstice Communications, Michael Fine Auctioneers, LLC, Salvage One. 

We would also give a huge shout out to our volunteers, and our presenting Sponsor, Paula and Roy May as well as all of the participating 2012 restaurants and vendors.  

Finally, an extra large thank you to our auction chairwomen, Lynn Merel, Nancy Domash and Paula May. For the 4th year in a row, these three ladies have put together the most fantastic silent and live auction.So much work goes in to putting together this auction, and we are truely greatful! 

 

Photos from 2012 event click here

 

Local Events 

DIXON IL. WALK 5K/RUN 

Over $10,000 was raised to fight scleroderma! Thank you all who particiapted in the Dixon Walk 2012!  Over 250 participants had a great time for Scleroderma! 

HIGHLAND INDIANA WALK 

It was a great walk! good turn out and good weather, just a beautiful day altogether. We had a  sunny day full of fun. The face painter Sparkle, a Clown passing out balloons and Rover...the Dog also passed out gift bags for kids. Pre-walk refreshments, Dunkin Donuts donated coffee and donuts, we had juice also fruit kabobs and passed out fruits bags. For lunch we grilled hot dogs, had chips and plenty of water through out the day. Lord willing ready for next year! September 14th, 2013. Visit our facebook page to view walk pictures

Germantown "Stepping out to Cure Scleroderma" Walk

 

What a great success! 400 walkers joined us on a beautiful day to walk for scleroderma.Thanks to everyone who came out, volunteers, committee, walkers, donors, and family members! View all the pictures from the walk on our facebook page