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Welcome to the Delaware Valley Chapter Website!

Founded in 1988, our chapter serves eastern Pennsylvania, southern/central New Jersey and Delaware. Learn More »

To donate directly to the Delaware Valley Chapter, mail checks to:
SFDV
385 Kings Highway North
Cherry Hill, NJ 08034
 

SIZZLING  NEWS...New Advocacy

The Scleroderma and Fibrosis Research Enhancement Act of 2015: Help and Support is Needed in Key States

AdvocacyAttention scleroderma supporters who live in: Alabama, Alaska, Arkansas, Arizona, Colorado, Florida, Georgia, Idaho, Illinois, Indiana, Iowa, Kansas, Kentucky, Louisiana, Maine, Michigan, Missouri, Mississippi, Nebraska, Nevada, New Hampshire, North Carolina, North Dakota, Ohio, Pennsylvania, South Carolina, South Dakota, Tennessee, Texas, Utah, West Virginia, Wisconsin, and Wyoming.

Sen. Kirsten Gillibrand (D-NY) is prepared to introduce the Scleroderma and Fibrosis Research Enhancement Act into the Senate. But before she can introduce the legislation, she needs a Republican Senator to join her to lead this important bipartisan effort. Any Republican Senator can become a scleroderma champion, but first they need to be educated by the people they represent…YOU!
Some senators are particularly well-positioned to lead this legislation based on their positions on key committees or their leadership on rare disease issues.

If a Republican Senator represents your state, the community needs you to make the commitment to reach out to their office on Capitol Hill and ask them to lead this important legislation. 

Please take action now and write your Republican Senator today >>

- A FREE CME/CNE "The Lung in Scleroderma" Web Activity - Physicians, Registered Nurses, HealthCare professionals. 1.75 hours
This activity has been designed to meet the educational needs of physicians, registered nurses, and other health care professionals involved in the management of patients with scleroderma.
Jointly sponsored/co-provided by Postgraduate Institute for Medicine and The Scleroderma Foundation.
http://www.cmeuniversity.com/course/disclaimer/110166

See our newest events: View Latest Events

Chapter Support Group Meetings
support groupClick here for more information >> 

Shop Online and Help the Delaware Valley Chapter
scleroderma teddy bears for saleSearch and shop with www.goodsearch.com. When you select the Scleroderma Foundation Delaware Valley Chapter, money from advertisers will go to the SFDV without you spending a dime!

Find us on Facebook
Stay connected with the Delaware Valley Chapter >>

Resources

Available to distribute to your doctors' offices. Contact the SFDV office for printed copies.
Chapter Brochure
Support Group Information Card


In-depth compilation of social services in our territory, what they provide, and how to contact them:
Social Services Guide - National, NJ, PA, DE 

The SFDV Is Here To Help

The Scleroderma Foundation Delaware Valley Chapter (SFDV) is a 501(c)(3) nonprofit organization serving the needs of people with Scleroderma in central/southern New Jersey, eastern Pennsylvania, and Delaware.

 

Our Mission

  • To help patients and their families cope with Scleroderma through mutual support programs, peer counseling, physician referrals, and educational information.
  • To promote public awareness and education through patient and health professional seminars, literature, and publicity campaigns.
  • To stimulate and support research to improve treatment and, ultimately, find the cause and cure of Scleroderma and related diseases.



 

Contact Information

Scleroderma Foundation Delaware Valley Chapter
385 Kings Highway North
Cherry Prof. Bldg.
Cherry Hill, NJ 08034
Toll-free Phone: 866-675-5545
Local Phone: 856-779-7225
Email: DVchapter@scleroderma.org

Board of Directors
Joan Forrer, President
Susan Pierce, Secretary
Nancy Waltermire, Treasurer

Board Members
Neerja Bhagat
Bill Cowan
Nathan Hayward
Christine Gaydos
Pat McGann
Joyce Roby-Washington
Nancy Waltermire
Elizabeth Walker
Donna O'Sullivan

Staff
Fee Sepahi, Executive Director
Colleen Ferara, Support Group Manager
Mary Ann Steffen, Administrative Assistant

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Photo Gallery

Look through photo galleries from previous events held by our chapter.

 

 

video.jpgVideo Gallery

Watch videos pertaining to events held by our chapter and a few fun extras. 

 


Find Us On The Web!

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actelion_logo_gen_small.jpg Plasma Services Group
 Benjamin Foods
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Pitcairn Properties

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Ocean Trophies

 

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Cruise for a Cure Sponsor:
AMA Resources
Cirillo Bros
Women's Club