Colorado Support Groups
Support Groups provide a forum to share feelings, concerns, information, and as well as a place to offer peer support and encouragement. Solicitations or research projects are not conducted at support group meetings.
Support groups often feature speakers specializing in scleroderma or related topics. To find out information about upcoming speakers or meeting topics, please contact the support group leader or chapter office.
This schedule is subject to change. Before attending a group for the first time, please call to verify date and time. Groups are free of charge and open to everyone.
New in 2016: "Virtual" support group teleconferences are call-in meetings. If you are unable to attend our regularly scheduled face-to-face support groups (or even if you do attend), these virtual support groups will provide educational information and the opportunity to talk to others with scleroderma simply by calling in to join the meeting.
"Virtual" Support Group
Teleconference Support Group
7 p.m. - 8 p.m., Thursday evenings.
Call 712-775-7031, enter call ID 781-611-035# when prompted.
Contact: Cyndy Besselievre
August 4, 2016 - Dr. Tracy M. Frech, MD, MS, University of Utah, Department of Internal Medicine, Division of Rheumatology, Director of Systemic Sclerosis Clinic will present on "Management Challenges of the Gastrointestinal Tract in Systemic Sclerosis".
November 10, 2016 - Speaker and topic to be announced.
Southern Colorado Support Group
11 a.m. – 1 p.m., 3rd Saturday of odd months.
Penrose Cancer Center, Room CC-A, 2222 N. Nevada Ave., Colorado Springs, CO 80907.
Contact: Cyndy Besselievre
January 16, 2016 - Dawn Franz, a nutritionist at Natural Grocers, will lead a discussion on probiotics.
March 19, 2016 - Dr. Paul Menard-Katcher, Gastroenterologist at University of Colorado Hospital, will present on GI Manifestations in Scleroderma.
May 21, 2016 - Dr. Allison Nicklin, PT, will present on the benefits of physical therapy.
July 16, 2016 - Lauren Languido, Student Therapist & Doctoral Student, Psychology Clinic - University of Colorado-Denver, will present on the psychological challenges of scleroderma. Different One-Time Location: Penrose Hospital, Volunteer Conference Room, 2222 N. Nevada Ave., Colorado Springs, CO 80907 (This room is located in the main hospital. Enter through the main entrance, pass the volunteer desk and turn left toward the pharmacy. The Volunteer Conference Room is located down the hall, behind the pharmacy, on the right-hand side of the hall.)
September 17, 2016 - Update from workshops presented at the 2016 National Patient Education Conference.
November 19, 2016 - Holiday party. (Location to be announced.)
Mile High Support Group
11 a.m. – 1 p.m., 2nd Saturday of the month.
Arthritis Foundation, 2280 S. Albion Street, Denver, Colorado, 80222. See directions.
Contact: Sandee Maas
January 9, 2016 - View and discuss a video from the 2015 National Patient Education Conference titled "The Scleroderma Hands and Their Care" by Francesco Boin, MD.
February 13, 2016 - MELT Method presentation by certified instructor Juan Flores. Click here for more information.
March 12, 2016 - Mona Rodriguez Merrick, a certified Holistic Health Coach and Pilates Instructor will present on "Empowerment Through Small Changes" - how to make healthy changes that are as unique as you are.
April 9, 2016 - Byron J. Kish, Esq., CABHI Trainer and Coordinator, Colorado Disability Benefits Support Program (DBS), will present on the basics of disability benefits.
May 14, 2016 - Heather Egermayer of Home Helpers will present on "In-Home Care or Community Care: Which is Best for You?"
June 11, 2016 - Pre-Walk rally and picnic in the park. Click here for invitation & information. Different One-Time Location: Mamie D. Eisenhower Park, 4300 E. Dartmouth Ave., Denver, CO 80222 (corner of Colorado Blvd. and Dartmouth Ave.) See map.
July 9, 2016 - Support Group Leader, Sandee Maas, will lead an interactive meeting! Please bring your favorite "trick" (tool, gimmick or way of doing a daily task that makes life with scleroderma easier for you) to share with the group.
August 13, 2016 - Update from workshops presented at the 2016 National Patient Education Conference.
September 10, 2016 - To be announced.
October 8, 2016 - To be announced.
November 12, 2016 - To be announced.
December 10, 2016 - Holiday party!
Northern Colorado Support Group
10:00 a.m. – 12:00 p.m., 4th Saturday of even months.
Medical Center of the Rockies, Mt. Meeker and Arapahoe Peaks Rooms (lower level), 2500 Rocky Mountain Ave., Loveland, CO 80538
Contact: Judy Laible
February 27, 2016 - Patricia Kuyper, an Occupational Therapist at UCHealth, will discuss the benefits of occupational therapy for scleroderma.
April 23, 2016 - View and discuss a video from the 2015 National Patient Education Conference titled "Scleroderma Symptom Management Including Pain and Fatigue: Why, & What Can Be Done" by Janet Pope, MD, MPH, FRCPC.
June 25, 2016 - Presentation by Bob Davidson and Aislinn Kottwitz from The Conversation Project.
August 27, 2016 - Update from workshops presented at the 2016 National Patient Education Conference.
October 22, 2016 - Deanna O'Connell, Registered Dietitian, Community Health Educator, will discuss diet and scleroderma.
December, 2016 - Holiday luncheon and party. (Date and location to be announced.)
Western Slope Support Group
11:00 a.m. – 1:00 p.m., 2nd Saturday of odd months.
Community Hospital, Lower Level - Rooms 1 & 2, 2021 N. 12th St., Grand Junction, CO 81501 (NOTE: New location for 2016 meetings.)
Contact: Garnet Hoover
January 9, 2016 - Dr. Jessica Mears, Rheumatologist at the Arthritis Center of Western Colorado, will present on the Spectrum of Scleroderma - An Overview of the Aspects of the Disease. Click here for more information.
March 12, 2016 - Canceled.
May 21, 2016 (PLEASE NOTE DATE CHANGE!) - Open discussion meeting to share your questions and concerns about scleroderma. Different One-Time Location: Starvin Arvins, 204 Ute Street, Delta, CO 81416
July 9, 2016 - Garnet Hoover will demonstrate "Hand Stretches for Quilters & Other Achy Hands" and will present a video from the 2015 National Patient Education Conference - "The Scleroderma Hands and Their Care". (PLEASE NOTE NEW LOCATION!) Community Hospital, 2351 G Road, Grand Junction, CO 81505, Room Legacy 1 (located on 1st floor by the cafeteria).
September 10, 2016 - Update from workshops presented at the 2016 National Patient Education Conference.
November 12, 2016 - Holiday party!