2015 Denver Walk - Kids

Welcome to the Colorado Chapter Website!

We are based in Denver, Colorado. You are not alone, so please feel free to contact us.
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To donate directly to the Rocky Mountain Chapter, please mail checks to: 2280 S. Albion Street, Denver, CO 80222

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Chapter Support Group Meetings

Chapter support group meetings are held regularly in Denver, Colorado Springs, Grand Junction and Loveland. Scleroderma patients, their caregivers, family and friends are welcome. Meetings are educational and a great opportunity to meet others living with scleroderma who understand what you are going through.  You are not alone.

Click here for more information >> 

 

"You Don't Look Sick!" - When Public Opinion Goes Wrong 

Sandee Billen Maas

Living with scleroderma, you have probably heard more than once "but you don't look sick". Many people do not understand the pain and challenges you go through on a daily basis while struggling to live with scleroderma.  Denver support group leader Sandee Billen Maas, who has had scleroderma since 2011, is hoping to change this public opinion when she speaks out at IgniteDenver23 on Thursday, June 30 at 7:00 pm at the Oriental Theatre in Denver.  Come and give Sandee your support!  Click here to purchase your $5.00 tickets!

 

Carrabba's Cares Days

Carrabba's

Celebrate World Scleroderma Day on Wednesday, June 29 at Carrabba's in Lakewood.  Enjoy a tasty meal, relax with friends over a glass of wine or get takeout to surprise the family for dinner and Carrabba's will donate 15% of your check to the Scleroderma Foundation when you present the Carrabba's Cares Days flyer to your server.

 

 

Sedalia Designs Supports Scleroderma

Sedalia Designs

If you missed Marcy Shoenborn's creative jewelry designs at the "Stepping Out" Walk on June 18, you can purchase her unique jewelry at my.sedaliadesigns.com/SF.  Marcy and Sedalia Designs will donate a portion of your purchase to the Scleroderma Foundation.  Marcy also created special footprint earrings just for the Stepping Out Walk that you can still get by contacting our Chapter office at cochapter@scleroderma.org or 303-806-6686.  They'll go great with your Stepping Out t-shirt when you wear it to promote scleroderma awareness!

 

Scleroderma Awareness Month

June is Scleroderma Awareness Month and for the 3rd year in a row, the Scleroderma Foundation has joined forces with the Scleroderma Research Foundation and the Scleroderma Society of Canada to spread awareness primarily on social media through it's "Hard Word. Harder Disease." campaign.  We can all help spread the word!  Learn more at www.hardword.org.  Follow, like and share our posts and tweets on Facebook and Twitter throughout the month of June.

 

Food Fight!

Food Fight dessert

"Food Fight! Chefs Fighting for a Hard Disease" on Wednesday, Sept. 7 at BAC Appliance Center in Englewood, features local chefs creating their favorite dishes in the categories of appetizer, main course and dessert. You get to be the judge of who creates the best taste. This year we've added a mixologist category to the competition too. But it's not just the chefs and mixologists competing - you'll get to stay on top of the bidding on your favorite auction items with up to the minute texts when you've been outbid so you can stay in the competition too! Learn more about this foodie event of the year and get your tickets today at www.cheffoodfight.com

 

Northern Colorado "Stepping Out"

2015 Northern Colorado Stepping Out

We are "stepping out" on Sunday, Sept. 11 at Fort Collins City Park for the 6th annual Northern Colorado Stepping Out to Cure Scleroderma Walk!  Jazzercise will return to provide a great warm up routine again this year and walk as a team.  We invite you and your team to join us too for all the fun and festivities!  Register, set up your team and start fundraising today at www.scleroderma.org/steppingoutftcollins.  Take a step to cure scleroderma!

 

Special 10% Discount on Glider Gloves

Glider Gloves outdoor picture

Glider Gloves is offering the Scleroderma Foundation a special 10% discount on their touch screen gloves. These gloves allow you to interact with a screen with your gloves on so your hands stay warm. Take advantage of the discount when you shop online at www.glidergloves.com and use the promo code GGSF10 to receive your discount.  

(The Scleroderma Foundation in no way endorses any products, drugs, treatments, clinical trials, or studies.  Information is provided for educational purposes only.) 

 

 

Sponsor a Chapter Event

Support the cause to find a cure for scleroderma by partnering with us on our 2016 fundraising events. Click here for NORTHERN COLORADO Stepping Out to Cure Scleroderma Walk sponsorship information.  Food Fight! opportunities include cash sponsorship, participating chefs and auction/in-kind items.

 

  

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Find Us Online!

Stay connected with the Colorado Chapter on Facebook and Twitter.

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About Us

Board of Directors
Theresa Rice, President
Martha Williams, Vice-President
Deanna Ragsdale, Secretary
Michael Noble, Treasurer


Contact Information

Scleroderma Foundation, Colorado Chapter
2280 S. Albion Street
Denver, CO 80222
Phone: 303-806-6686
Email: cochapter@scleroderma.org

Cyndy Besselievre, Executive Director
cbesselievre@scleroderma.org

Andrea Ofiesh, Chapter Manager
aofiesh@scleroderma.org 

Board Members
Jimmy Gonzales
Gloria Jara
Sandee Maas

Medical Advisory Board
Aryeh Fischer, MD, Rheumatologist, University of Colorado Health-Anschutz Campus
Todd Bull, MD, Pulmonologist, University of Colorado Health-Anschutz Campus
Brett Fenster, MD, Cardiologist, National Jewish Health
Kristin Kilbourn, PhD, MPh, Psychologist, University of Colorado Denver
Jason Kolfenbach, MD, Rheumatologist, University of Colorado Health-Anschutz Campus
Michelle MacDonald, MS, RD Clinical Dietitian, National Jewish Health
Paul Menard-Katcher, MD, Gastroenterologist, University of Colorado Health-Anschutz Campus
Katharine Moore, MD, Pediatrics, Children's Hospital Colorado 

 

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Photo Gallery

Look through photo galleries from previous events held by our chapter.

 

 

2011 FC WalkVideo Gallery

Watch videos pertaining to events held by our chapter and a few fun extras. 

 


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2016 Bronze National Sponsor Reata