What is Advocacy?
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Advocacy is the act of educating the public about an issue, supporting or defending a cause, and recommending an action.
During an election cycle, all eyes turn to national, state and local politics. The Scleroderma Foundation advocates on the behalf of the entire scleroderma community throughout the entire year, whether there is an election or not. Several times a year, scleroderma patients and family members visit their Congressional leaders in Washington, D.C. This important action has helped us cultivate new relationships with elected officials and strengthen existing relationships with others.
Over the next few months, we will continue to share your scleroderma stories throughout the halls of Congress. This is an exciting time and we hope you will be a part of it! Become a scleroderma advocate today!
We need your help again as the 113th Congress wraps up the current session.
Due to the strong and effective outreach of scleroderma advocates earlier this year, "scleroderma" was once again included on the Senate's list of conditions eligible for study through the Department of Defense Peeri-Reviewed Medical Research Program. This list accompanies the annual FY 2015 Defense Appropriations Bill. However, Congress has yet to vote on or finalize any FY 2015 appropriations measure, including the Defense Bill.
3. Co-sponsor the bipartisan Scleroderma Research and Awareness Act (H.R. 1429/S. 1239). This important legislation seeks to improve health outcomes for scleroderma patients by directing NIH to expand research activities and enabling an innovative public awareness program through the Centers for Disease Control and Prevention. Take action now >>
- U.S. Senate Website
- U.S. House of Representatives Website
- National Governors Association Website
- Important News from Washington, D.C.
- Tips to Talk to Your Elected Officials