Advocates on Steps of Congress 2013
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What is Advocacy?

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Tell your senators and representatives that scleroderma is important to you!

become an advocate buttonAdvocacy is the act of educating the public about an issue, supporting or defending a cause, and recommending an action.

During an election cycle, all eyes turn to national, state and local politics. The Scleroderma Foundation advocates on the behalf of the entire scleroderma community throughout the entire year, whether there is an election or not. Several times a year, scleroderma patients and family members visit their Congressional leaders in Washington, D.C. This important action has helped us cultivate new relationships with elected officials and strengthen existing relationships with others.

Over the next few months, we will continue to share your scleroderma stories throughout the halls of Congress. This is an exciting time and we hope you will be a part of it! Become a scleroderma advocate today! 

 

1.  Reinforcing Support For Scleroderma - Congress Finalzing Federal Spending Legislation Now!  Nov 12 - Dec., 2014

We need your help again as the 113th Congress wraps up the current session.  

Due to the strong and effective outreach of scleroderma advocates earlier this year, "scleroderma" was once again included on the Senate's list of conditions eligible for study through the Department of Defense Peeri-Reviewed Medical Research Program.  This list accompanies the annual FY 2015 Defense Appropriations Bill.  However, Congress has yet to vote on or finalize any FY 2015 appropriations measure, including the Defense Bill. 

It is essential that we remind them of the importance of finalizing Defense appropriations for FY 2015, and ensuring that through this process, “scleroderma” remains on the eligible conditions list!

If you or your family, friends, etc., live in one of the following states, Take Action Now>>  Alabama, Alaska, California, Illinois, Indiana, Iowa, Kentucky, Louisiana, Maine, Maryland, Mississippi, Missouri, Rhode Island, South Dakota, South Carolina, Tennessee, Washington, Vermont

2.  Congress Can Help - Provide the National Insititutes of Health (NIH) with $30.95 billion by supporting the 6% funding increase proposed in the Senate's FY 2014 Labor-HHS-Education Appropriations bill.  While NIH supports a scleroderma research portfolio, recent years of near level funding and sequestration are significantly reducing research resources.  The FY 2014 funding increase recommended by the Senate would recover the funds lost through sequestration and facilitate expansion of the scleroderma research portfolio at NIH.  Take action now >>

3.   Co-sponsor the bipartisan Scleroderma Research and Awareness Act (H.R. 1429/S. 1239).  This important legislation seeks to improve health outcomes for scleroderma patients by directing NIH to expand research activities and enabling an innovative public awareness program through the Centers for Disease Control and Prevention. Take action now >>

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