Who We Are

See also...

National Board of Directors

If you would like to contact the national board of directors, please email board@scleroderma.org.



Cos Mallozzi, Chair
North Venice, Florida

Carol Feghali-Bostwick, Ph.D.
Vice Chair
Charleston, South Carolina


Greg Marion, Treasurer
San Antonio, Texas

Bill Martin, Secretary
Escondido, California

Mary Blades
Springfield, Missouri

Kevin Boyanowski
Charlotte, North California

Katayun Jaffari, Esq.
Philadelphia, Pennsylvania

Bob Kacick
Marion, Iowa

Jane Ladas
Newburyport, Massachusetts

Mike Levengood, Esq.
Lawrenceville, Georgia


Mark Orozco
San Diego, California


National Medical and Scientific Advisory Board

The Scleroderma Foundation relies on the advice and guidance of our Medical and Scientific Advisory Board with regard to all medical issues. Medical Advisory and Scientific Board members are distinguished researchers and clinicians in scleroderma and related fields. 

For their academic affiliations, biographical or contact information, please refer to American College of Rheumatology (ACR) or the Association of Rheumatology Health Professionals Membership Directory. You may also email Kerri Connolly, Director of Programs and Services, at kconnolly@scleroderma.org for more information about the foundation's Medical and Scientific Advisory Board.

Current members of the Scleroderma Foundation Medical Advisory and Scientific Board:

Steering Committee

John Varga, M.D., Chair
Maureen D. Mayes, M.D. Richard Silver, M.D.  Virginia Steen, M.D. 


Philip Clements, M.D. Lorinda Chung, M.D. Aryeh Fischer, M.D.
Tracy Frech, M.D. Daniel Furst, M.D.
Jessica Gordon, M.D.
Laura Hummers, M.D.
Sergio Jimenez, M.D.   Dinesh Khanna, M.D., M.S.  
 Robert Lafyatis, M.D.  Janet Pope, M.D.    Arnold Postlethwaite, M.D.  
    Robert F. Spiera, M.D.     


Members Emeriti

Frank Arnett, M.D.  Carol Black, M.D.  Michael Ellman, M.D.   
Thomas Medsger, Jr., M.D. Frederick Wigley, M.D. 

National Office Staff

Robert J. Riggs
Chief Executive Officer
Deborah Pearce
Chief Operating Officer
Kerri A. Connolly
Director of Programs and Services
Edward J. Garvey
Finance Officer
Ryan Burrill
Programs and Services Manager
 Irina Shuruyeva
Accounting Assistant
David Murad
Director of Chapter Relations
Molly Paradis
Office Associate
Shenna Gianetta
Executive Assistant
Maureen Zuluaga
Database Manager
Jennifer Dobson
Development Officer
Linda Norris
Database Administrator
Steve Sookikian
Communications Officer
Karen Gottesman
Director of Pharma and Biotech Engagement